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Type Of Doc?


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Poll: Type of Doc? (9 member(s) have cast votes)

What type of Doc do you see for managing your N symptoms?

  1. Sleep Doctor (6 votes [66.67%] - View)

    Percentage of vote: 66.67%

  2. Neurologist (2 votes [22.22%] - View)

    Percentage of vote: 22.22%

  3. General Practitioner (0 votes [0.00%])

    Percentage of vote: 0.00%

  4. Other (1 votes [11.11%] - View)

    Percentage of vote: 11.11%

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#1 sleepdeprivedinmich

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Posted 08 April 2010 - 10:19 AM

Just curious what type of Doc's everyone sees for managing N. I am newly diagnosed and wondering if my Sleep Doc is the best option or if I should see a Neurologist.

#2 amazingracie28

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Posted 08 April 2010 - 11:51 AM

Just curious what type of Doc's everyone sees for managing N. I am newly diagnosed and wondering if my Sleep Doc is the best option or if I should see a Neurologist.



Hiya Sleepdeprived!

Welcome to the boards Posted Image

My sleep doc is a Pulmonologist/sleep doc who is just fantastic, and I've heard that immunologists also sometimes look after PWN. I think you're best option is to go with the one most familiar with Narcolepsy-I've heard of patients running into neurologists who are still in the dark about it. Ask questions of whatever Neuro you're looking into and see what they know or how they feel about Narcolepsy.......

Hope you find a good one!

Amazingracie28

#3 Lisa Kato

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Posted 08 April 2010 - 10:10 PM

Hiya Sleepdeprived!

Welcome to the boards Posted Image

My sleep doc is a Pulmonologist/sleep doc who is just fantastic, and I've heard that immunologists also sometimes look after PWN. I think you're best option is to go with the one most familiar with Narcolepsy-I've heard of patients running into neurologists who are still in the dark about it. Ask questions of whatever Neuro you're looking into and see what they know or how they feel about Narcolepsy.......

Hope you find a good one!

Amazingracie28



As frustartedas I have gotten with Kaisert in the past amazingly when I finally got my referral they sent me to a Sleep Neurologist.

#4 mswanndeford

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Posted 09 April 2010 - 08:56 PM

Just curious what type of Doc's everyone sees for managing N. I am newly diagnosed and wondering if my Sleep Doc is the best option or if I should see a Neurologist.


Hey sleepdeprived, I also have a sleep doctor that is a pulmonologist. When I suspected I might have narcolepsy, my first thought was, I need to see a sleep specialist. I did a search for local doctors and found the group I am not going to. They had high ratings. They have been wonderful.

Good Luck!

#5 Janet

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Posted 10 April 2010 - 10:05 AM

Go to the best trained Sleep Specialist and Sleep clinic that you can even if you have to travel.

Many doctors learn little or nothing about sleep in school. Some doctors just learn about one area such as breathing disorders and apnea. There are many different sleep disorders and people with 1 disorder have a slightly greater chance of having a second sleep disorder. Proper treatment and your quality of life depends on a full and complete diagnosis.

The recommended way to diagnose narcolepsy is with 2 overnight tests and 2-4 days of daytime tests. This may also highlight restless legs, sleep apnea etc and create a clear and full picture.

Sleep Specialists train for several years at a recognized sleep centre in addition to their first speciality.



#6 John Knuckles

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Posted 11 April 2010 - 09:33 AM

It was only my sleep doctor that was able to connect the dots and did the right steps that led to my Dx. I was fighting my primary who wanted to go down the depression path. I am a happy fellow but after a long time of no relief and no improvement, I was just about to try the depression meds. My primary knew I was very reluctant to start depression meds so she wanted to make me happy, referred me to a neurologist, who referred me to the sleep doctor that Dx my sleep apnea 5 yrs ago to verify my CPAP was working. Long story short, sleep doctor immediately recognized my symptoms. After second sleep study with my cpap, followed by MLST, I was a Dx with Narcolepsy. I am still trying to find the right meds for me. I am having a hard time finding anything that lets me work. After maxing out nuvigil for months with about only a few hours of relief, now I am having major crashes with low doses of methylphenidate 3x day(one 20mg SR, two 5mg FA). No where close to getting back to work. Going back to sleep doctor in a few days, expecting to go a little stronger on the doses. Hoping to find what works for me. Just gathering my thoughts and typing this out is causing me to crash big time. bye for now.

#7 Lisa Kato

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Posted 11 April 2010 - 11:24 AM

It was only my sleep doctor that was able to connect the dots and did the right steps that led to my Dx. I was fighting my primary who wanted to go down the depression path. I am a happy fellow but after a long time of no relief and no improvement, I was just about to try the depression meds. My primary knew I was very reluctant to start depression meds so she wanted to make me happy, referred me to a neurologist, who referred me to the sleep doctor that Dx my sleep apnea 5 yrs ago to verify my CPAP was working. Long story short, sleep doctor immediately recognized my symptoms. After second sleep study with my cpap, followed by MLST, I was a Dx with Narcolepsy. I am still trying to find the right meds for me. I am having a hard time finding anything that lets me work. After maxing out nuvigil for months with about only a few hours of relief, now I am having major crashes with low doses of methylphenidate 3x day(one 20mg SR, two 5mg FA). No where close to getting back to work. Going back to sleep doctor in a few days, expecting to go a little stronger on the doses. Hoping to find what works for me. Just gathering my thoughts and typing this out is causing me to crash big time. bye for now.



Ahh the depression path. I finally told my doctor "I have counseling and coping skills shooting out my ears. I'll do more but in all my years I never met anyone suffering from depression who wakes up seeing translucent paisley fractals and floating shadow figures." I got referred to a psychiatrist and a neurologist. Funny that in Kaiser if you are concerned about hallucinations it takes 6 months to see a shrink. Fortunately the Neuro only takes 6 week, followed by a moth wait for a sleep study, followed by 2 weeks for results, followed by another month to retake the sleep study because of a rattly windo, followed by 2 weeks for results, took me 6 months to get diagnosed and medicated (I made the mistake of letting them know I had done a bit of illegal self medicating in the 80's so they did not want to prescribe with out confirming)