Posted 03 April 2010 - 09:54 AM
I was diagnose about 6 years ago, and have not been on much medication. I can tell that the narcolepsy has progressed over the years. It is not so much the daytime sleepiness that puts a damper on my life, but the cataplexy. I have 4 children plus two stepchildren. My eldest daughter is like my protector. She is the first one to ruch over when she sees my going down. I can't laugh to hard, get upset or mad. I can't even chase my two year old around the house. It really pisses mr off that things I took for granted I can no longer do! Has anyone had any real luck with the cataplexy meds? Also, when I have had a long day and I begin to crash, the sleep paralysis kicks in, and its not that I just become paralyzed, but It's like I am having a seizure. I begin to like convulse, and then when that settles down, even though I am paralyzed, I am still awake and can hear everything going on around me. Does that happen to anyone else or am I just "special"? I don't mean that in a good way either! To get out of the paralysis I have to fall asleep, which doesn't always happen quickly. Also does anyone suffer from headaches after the sleep paralysis and your nap?? Or feel like they have a fever and are really cold????