Can Anyone Help?
Posted 08 January 2010 - 12:39 PM
p.s. i am med free, i read that meds can make differences but i choose to get by without them until i can try more effective ones on the NHS. ( i live in the UK )
Posted 08 January 2010 - 01:29 PM
I had this same surgery about 4 years ago and before I was diagnosed with N. It did take me a long time to come out of the anesthesia-longer than it normally should I think. I remember the nurse and my husband trying to get me dressed to go home and I was still out of it. Like you I've also always had a hard time coming out of anesthesia for as long as I can remember. I've had lots of anethesia-worthy things done in the past-gallbladder removal, breast reduction, endoscopies every other year and a c-section. I don't know what the official explanation is, but for me I think that once the anethesia wore off I just kept sleeping because I was able to. It doesn't take much for me to sleep 18hrs if I'm tired and have the opportunity. If I'm knocked out from anethesia and nothing wakes me up I'll definitely sleep until something does! Good Luck!
Posted 09 January 2010 - 11:47 PM
I had my gallbladder removed about 6 months after the dramatic worsening of my narcolepsy, and 6 months before my narcolepsy was ever diagnosed. I don't have cataplexy, unlike you. I had no difficulty coming out of the ansthesia, and haven't before. It seems to me that the best predictor of your experience with this surgery will be your own past experiences. So, since it's been tough for you once before, how about talking with the doc who treats your narcolepsy about your concerns about coming out of anesthesia? If difficulty coming out of anesthesia is a relatively common experience for people with narcolepsy, your narcolepsy specialist might be helpful in explaining all of that to the surgeon and anesthesiologist before your gall bladder operation.
The other thing that comes to mind is, if possible, setting things up for friends who understand your narcolepsy and your difficulty awakening after anesthesia to come and get you home. Those friends might be able to advocate for you while you're struggling with coming to, and can't talk with the hospital staff yourself. Your friends might also be picked to have the muscle power to help you to safely get from the car into bed after going home.
My experience has been, personally, is that hospitals are pretty careful not to send overly sedated people on their way. The potential lawsuits are just too big for them.
Good luck, and I'll be interested to hear what you learn through the whole process! I hope it all goes well.
Posted 12 January 2010 - 06:15 AM
Posted 12 January 2010 - 09:18 AM
hi thanks for the replies. at least i know i will wake up now even if it takes a while lol. ill have to have a word with the docs tho before i go in. i just cant wait til its over and this awful pain stops. thanks for the replies tho they help.
Oh, Lord, can I remember that awful pain. I spent 5 weeks laying on the couch in one particular position, waiting for the surgeon to come back from holiday and get his act together to do the surgery. I watched a lot of comedy on DVD because it was the most effective thing in distracting me from how bad I felt. I'll be thinking of you, and hope the surgery is as soon as possible.
Posted 12 January 2010 - 11:12 AM