Jump to content


Photo

Can Anyone Help?


  • Please log in to reply
5 replies to this topic

#1 hathor

hathor

    Member

  • Members
  • 103 posts
  • Gender:Female
  • Location:england
  • Interests:i have lots of interest. i love history, movies, books (stephen king,dean koontz and barbera erskine are my favs), my dogs, travel.

Posted 08 January 2010 - 12:39 PM

Hi, i have a question i need help with if anyone can please. i have to go into hospital on the 19th feb this year to have my gallbladder removed. ive been through all the details of that with docs and surgeons. they know i have narcolepsy, i dont know if they know i have cataplexy but they will by the time they have signed me in. Anyway at my hospital appointment this week i saw one of the surgeons consultants, he went into the room next door where the surgeon was working and i heard him say that i had narcolepsy and if it would be ok to go ahead with the operation and the surgeon just said yes and didnt seem concerned. But i am !!! ive been under general anesthetic before when i was about 7 to have glass removed from my foot and i proberbly did have narcolepsy then, in fact i know i did, but it wasnt diagnosed. I remember coming round and and going back to sleep and waking up and apparently i did this afew times until they forced me to wake up hours later. i remember exactly how that felt and as soon as i got out of the hospital i just went back to sleep for the night. I was sedated at the dentist last year and he knew i had narcolepsy, i went out like a light , but once again was forced to wake up and get up way before i felt i should but then it only took me 10 mins and i felt more awake than ever!!! apart from these 2 times i have never had anything to knock me out ive been really lucky like that until now. I have looked on the internet but im getting conflicting reports back. One said that a woman with narcolepsy took 6 hours to come round instead of 6 mins and others say it doesnt affect us or are inconclusive and ive read so many i just cant concentrate on what they are saying any more (they do get a bit boring) so my question is, does it make any difference going under general anesthetic having narcolepsy and cataplexy? i would love to know any experiences anyone has had good or bad.
p.s. i am med free, i read that meds can make differences but i choose to get by without them until i can try more effective ones on the NHS. ( i live in the UK )




#2 amazingracie28

amazingracie28

    Member

  • Members
  • 114 posts
  • Gender:Female
  • Location:South Carolina
  • Interests:Jewelry design, blogging about Narcolepsy, devising ways to make up for my Narc'd out memory and concentration.

Posted 08 January 2010 - 01:29 PM

Hi Hathor,

I had this same surgery about 4 years ago and before I was diagnosed with N. It did take me a long time to come out of the anesthesia-longer than it normally should I think. I remember the nurse and my husband trying to get me dressed to go home and I was still out of it. Like you I've also always had a hard time coming out of anesthesia for as long as I can remember. I've had lots of anethesia-worthy things done in the past-gallbladder removal, breast reduction, endoscopies every other year and a c-section. I don't know what the official explanation is, but for me I think that once the anethesia wore off I just kept sleeping because I was able to. It doesn't take much for me to sleep 18hrs if I'm tired and have the opportunity. If I'm knocked out from anethesia and nothing wakes me up I'll definitely sleep until something does! Good Luck!



#3 Saraiah

Saraiah

    Member

  • Members
  • 382 posts
  • Gender:Female
  • Location:U.S.

Posted 09 January 2010 - 11:47 PM

Hi Hathor,

I had my gallbladder removed about 6 months after the dramatic worsening of my narcolepsy, and 6 months before my narcolepsy was ever diagnosed. I don't have cataplexy, unlike you. I had no difficulty coming out of the ansthesia, and haven't before. It seems to me that the best predictor of your experience with this surgery will be your own past experiences. So, since it's been tough for you once before, how about talking with the doc who treats your narcolepsy about your concerns about coming out of anesthesia? If difficulty coming out of anesthesia is a relatively common experience for people with narcolepsy, your narcolepsy specialist might be helpful in explaining all of that to the surgeon and anesthesiologist before your gall bladder operation.

The other thing that comes to mind is, if possible, setting things up for friends who understand your narcolepsy and your difficulty awakening after anesthesia to come and get you home. Those friends might be able to advocate for you while you're struggling with coming to, and can't talk with the hospital staff yourself. Your friends might also be picked to have the muscle power to help you to safely get from the car into bed after going home.

My experience has been, personally, is that hospitals are pretty careful not to send overly sedated people on their way. The potential lawsuits are just too big for them.

Good luck, and I'll be interested to hear what you learn through the whole process! I hope it all goes well.

Saraiah

#4 hathor

hathor

    Member

  • Members
  • 103 posts
  • Gender:Female
  • Location:england
  • Interests:i have lots of interest. i love history, movies, books (stephen king,dean koontz and barbera erskine are my favs), my dogs, travel.

Posted 12 January 2010 - 06:15 AM

hi thanks for the replies. at least i know i will wake up now even if it takes a while lol. ill have to have a word with the docs tho before i go in. i just cant wait til its over and this awful pain stops. thanks for the replies tho they help.

#5 Saraiah

Saraiah

    Member

  • Members
  • 382 posts
  • Gender:Female
  • Location:U.S.

Posted 12 January 2010 - 09:18 AM

hi thanks for the replies. at least i know i will wake up now even if it takes a while lol. ill have to have a word with the docs tho before i go in. i just cant wait til its over and this awful pain stops. thanks for the replies tho they help.


Oh, Lord, can I remember that awful pain. I spent 5 weeks laying on the couch in one particular position, waiting for the surgeon to come back from holiday and get his act together to do the surgery. I watched a lot of comedy on DVD because it was the most effective thing in distracting me from how bad I felt. I'll be thinking of you, and hope the surgery is as soon as possible.

Saraiah

#6 hathor

hathor

    Member

  • Members
  • 103 posts
  • Gender:Female
  • Location:england
  • Interests:i have lots of interest. i love history, movies, books (stephen king,dean koontz and barbera erskine are my favs), my dogs, travel.

Posted 12 January 2010 - 11:12 AM

hi saraiah. lol i sit up watching things ive downloaded all night i make sure i have a constant supply on my laptop so i dont watch the same things. ive been in constant pain lately with the gallstones ive been to docs and hospital but threre is nothing they can do now and even the strong pain killers arent working so im really looking forward to getting it taken out just for some decent sleep! to top it all off tho its been a really cold winter where i live and i did a narcoleptic special on some black ice. i have a suspected fractured elbow and ive been in so much pain with my wrist for 2 weeks now all because i shut off for a split second and down i went straight onto my hand. Ahhhh the joys of being a narcoleptic lol. thanks again for the replies.