Sharing Your 2009 Conference Experience
Posted 01 November 2009 - 12:21 PM
Something that I really enjoy about the conferences is that the normal age barriers seem to disappear, I'm in my fifties, yet I had so many wonderful conversations with folks of all ages.
I also want to thank some "angels"....sadly I don't know their names, that helped out with the Hospitality room. When we were setting up for the noon opening, a mom and daughter from Fla stepped in to give us a hand...and then, Sun nite, some really great folks gathered most everything up and put it in bins etc, making my Monday morning cleanup a breeze!
If you haven't been to a conference before...do what you can to make it next year....the Network will be celebrating 25 years of patient support! It will be held at the Hyatt Regency Crystal City in Arlington VA, a suburb of Washington DC, October 8-10.
Posted 02 November 2009 - 03:21 AM
Posted 08 November 2009 - 11:26 PM
Something wonderful was the release of nn's new "narcolepsy in the classroom" brochure. It is a thrilling new tool for community outreach. For me this has been a little life line upon returning home -- a way to feel momentum from the conference, that can counter my post-con-blues.
I find I am dreaming about the conference a lot. Rehashing it.
I love my memories of our evening gatherings. They were pretty wild and wonderful. The sing along with narcolepsy lyrics to pop songs was just as sweet ac could be. Strikes me we could all get a few friends (or a support group) together and sing these and make up more songs. Don't you think?
And then we had the pj party. I made myself into the sand woman, hense my Nick name here-- and used pink-sparkle-sand to bless people's dreams.
Another total highlight for me was Dr. Naiman's emphasis on the energy we misuse (waste) in self- judgement.
There's more to say but sleepiness has got her grip for me. Bye now.
Posted 09 November 2009 - 03:12 PM