Just wanting to share my response to the person who sent me the E mail regarding my proposal for initiating a State of Florida Proclamation for Narcolepsy Awareness Day.
This is a copy of what I sent, Ashley.
Pushing the limits of potental for a good cause: Again, any help here will be appreciated before I send off that letter to the Florida Governor's Office of External Affairs......(Please, please do send me an E mail via my profile.)
Good Afternoon, Ashley:
Thank you for your timely response!
I am writing you to send you a draft of the proclamation. Could you please forward it to the Governor's External Affairs Office on behalf of persons with Narcolepsy: Please find out line for proposed proclamation
herein: I will follow up with a formal letter to the Governor's External Affairs Office.
Thank you for your kind attention and help.
John Browne Ayes
STATE OF FLORIDA
WHEREAS: Narcolepsy is a chronic neurological disorder caused by the brain's inability to regulate sleep-wake cycles; and
WHEREAS: Narcolepsy affects an estimated 1 in every 2,000 Americans; and
WHEREAS: Narcolapsy is under recognized and under diagnosed condition; and
WHEREAS: The symptoms of narcolepsy causes accidents, injuries and problems with learning and employment; and
WHEREAS: Narcolepsy effects people neurologically, socially and emotionally; and
WHEREAS: Narcolepsy affects people of all ages, with onset typically between the ages of 14 to 25 as well as persons over 55 years of age; and
WHEREAS: THE NARCOLEPSY NETWORK is a nstionsl organization created to promote awareness and education of the the disease and support for those who suffer from narcolepsy.
NOW THEREFORE I________________________________________________Governor of the State of Florida do hereby proclaim
Day________Date___Year____to be Narcolepsy Awareness Day.
A Very Special Proposal Part 2
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