Breastfeeding And Narcolepsy Question
Posted 29 October 2009 - 02:22 PM
The adderall while pregnant helps a little. I'm not falling asleep everyday while my daughter is running around, and my sleep paralysis went from every two weeks to about once every two months.
I am really concerned about not being able to breastfeed because I need to be on medication for the safety of my children. I really would like to breastfeed at least for 6 months. I dont have help during the day, I am pretty much alone for 12 hours with my daughter, and soon with my son as well. I am babysitting a one year old for a job currently and am getting a flavor for what it will be like with two kids. I must say, it is very hard even on the adderall 10mg and i find myself trying to stay awake some days, and struggling.
If anyone has any experience with breastfeeding and narcolepsy, possible medications, possible solutions... I'd appreciate it! I was thinking of maybe not soley breastfeeding and supplementing with formula so I could go on something... But I would love some advice from experienced parents!
Thanks in advance!
Posted 29 October 2009 - 05:35 PM
I am also a mom with Narcolepsy who has had past ADD symptoms (although I think these are due to the N as I did not have them before developing the N symptoms) and who has benefitted from Adderall in the past. I am also a big fan of breastfeeding and I nursed my children for a long time...however, I was not taking Adderall at the time. I did some research and found the following about Adderall: "FDA pregnancy category C. This medication may be harmful to an unborn baby. It could also cause premature birth, low birth weight, or withdrawal symptoms in a newborn if the mother takes Adderall during pregnancy. Tell your doctor if you are pregnant or plan to become pregnant during treatment. Amphetamine and dextroamphetamine can pass into breast milk and may harm a nursing baby. Do not use Adderall without telling your doctor if you are breast-feeding a baby. Long-term use of Adderall can slow a child's growth. " That statement is from the Drugs.com website. So, basically, it seems like a very bad idea to be taking Adderall while breastfeeding, and probably an even worse idea to take it while pregnant. I am not sure what to suggest as far as alternatives...I know that I was exceptionally tired during my pregnancies (basically they were like one big sleep attack and I woke up long enough to give birth). It may make more sense to try and find some alternatives to medication, such as seeing if family members can assist you with your older child so that you can sleep. For me, this wasn't possible. What I did was to set up a "safe room" in my house. I got a couple of those plastic pet yard pet fences and connected them together in my living room, in a big circle around the couch. Then I put my older child's toys in it, removed everything that could hurt a toddler, put in a few pillows and blankets, and basically hibernated for 9 months on the couch. I was within arms reach of my older child at all times. My older child survived (my husband prepared some snacks for the day and all I had to do was get up briefly and feed/change my older child). Other than that, I was essentially unconscious and in the land of nod. It wasn't ideal, but I ended up with a healthy baby and my older child was fine. He is actually very cuddly even now, perhaps due to all the time he spent cuddling with me that year. I guess for me, I had to make a conscious decision between exposing my kids to the medications vs being semi conscious. I chose the semi-conscious route and it worked out fine. My husband was very helpful, and once I stopped breastfeeding, I was able to start the meds and become functional again. I just think that a few years of sacrifice was worth it to ensure my children's health. The other alternative, as you mentioned, might be to formula feed. Another option would be to buy breastmilk, which is superior to formula. However, since it wouldn't be your breastmilk, it wouldn't necessarily have the exact match of antibodies needed. I am also wondering if an SSRI medication (like Prozac, for example) might help with the SP you have been having...I'm not sure, but I think SSRI medications are supposed to help with Cataplexy but I'm not sure if they help with sleep paralysis. I believe that the SSRI meds are safer for pregnancy and breastfeeding. You might want to check with your doctor.
Posted 30 October 2009 - 01:35 PM
What follows is my personal opinion and holds no merit for anyone else's life: I do not think it is good to take any type medication while pregnant or breastfeeding unless you must take it or you'll die. I don't care what pharmacists or doctors have to say. I don't care what the leading research is. In my head, anything that I put in my body affects my child. Again, that's just me.
Congratulations on the new addition to be!!!!!!
Posted 30 October 2009 - 02:52 PM
I absolutely did NOT take meds while pregnant (once I found out) or nursing. The first go round, I did not know that I had N. The second pregnancy was a living hell. I nursed the first 4 months but had to get back on meds because those 4 months were extended days of hell. It was a family choice, and my husband participated by being supportive and not at work as much. He worked a 40 - 45 hour work week instead of his usual overload. He was exhausted, but we did it as long as we could.
What follows is my personal opinion and holds no merit for anyone else's life: I do not think it is good to take any type medication while pregnant or breastfeeding unless you must take it or you'll die. I don't care what pharmacists or doctors have to say. I don't care what the leading research is. In my head, anything that I put in my baby affects my child. Period. Again, that's just me.
Congratulations on the new addition to be!!!!!!