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Support Group In Los Angeles? Anyone Interested


35 replies to this topic

#1 octsun

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Posted 26 October 2009 - 09:55 PM

searched high & low but haven't found any N support group in L.A..
if anyone knows of one, please let me know.
you'd think in a city this big.
if one doesn't exist, calling all angelenos - let's start one
thanks!

#2 dreamseeker

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Posted 17 January 2010 - 08:19 PM

searched high & low but haven't found any N support group in L.A..
if anyone knows of one, please let me know.
you'd think in a city this big.
if one doesn't exist, calling all angelenos - let's start one
thanks!


I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?

#3 octsun

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Posted 04 February 2010 - 11:49 PM

dreamseeker,

haven't been on site for a while.
great to hear about your interest.
i live in hollywood.
what area of LA are you in?
i'm more than happy to travel.
i too haven't yet met anyone in person with N.
hope to hear from you.

#4 awilliams

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Posted 17 February 2010 - 08:13 AM

Hello LA!

If you are suffering from narcolepsy and experience Excessive Daytime Sleepiness (EDS) as a result, you may qualify for a Research Study in the Tucson area. The study is assessing the safety, tolerability and effectiveness of a potentially new EDS treatment. If you are interested and/or would like to hear more about the research opportunity, please contact me through www.narcolepsystudy.com. The website has additional information and a self-assessment to find out if you may potentially qualify for the study. If you would like to obtain materials with information about the study, please call 1-866-497-5211 and I will be able to assist you with your questions and additional information.

Wish you all the best and hope to hear from you soon!

Warm regards,

The Narcolepsy Study Team



#5 Shaunissima

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Posted 07 April 2010 - 08:44 PM

Hey I just found this page. I've been looking for a narc support group as well. I live in Glendale, CA. Please email me and I'd be happy to help organize something. shaunasgreatgrades@gmail.com

#6 Lorena

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Posted 07 May 2010 - 07:03 PM

I have also been looking for a support group but haven't found one. Should anyone find a support group i'd be interested in joining as well. I'm in Los Angeles.

#7 Guest_Nashi_*

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Posted 08 May 2010 - 12:24 AM

I have also been looking for a support group but haven't found one. Should anyone find a support group i'd be interested in joining as well. I'm in Los Angeles.

Hi,

Recently diagnosed and also looking for a group in LA.

#8 Guest_ladawn_*

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Posted 15 May 2010 - 09:30 PM

I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?



#9 Guest_ladawn_*

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Posted 15 May 2010 - 09:41 PM

i believe my nephew has narcolepsy, i live in idaho and its like stepping back in time by 15 years. been seeing drs for almost a year and they put it a unexplained, or fainting spells and he dont get enough salt other than that he is healthy. but i see his episodes and its like a dream state but he is awake, he used to sleep walk when he was younger, he has the cataplexy, sleep paralysis, and more. i need a support group to talk to or someone with narcolepsy
i need to know if this is what he has or if it is just unexplained... need help

#10 Guest_NeedSleepHelp_*

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Posted 09 July 2010 - 02:36 AM

HAve you guys gotten a group together yet? I am in LA.

#11 Guest_asa_*

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Posted 21 July 2010 - 11:27 PM

I would love to go to a support group!! Please contact me.

draw@slingblade.com

#12 Guest_redondoscorpion_*

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Posted 18 February 2011 - 11:30 PM

any new information on a Los Angeles area support group? I am in Redondo Beach. Please email me at redondoscorpion@yahoo.com with any information you may have. Thanks!

#13 Dave

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Posted 06 March 2011 - 11:33 PM

I'm near Los Angeles, and would definitely make it if there is a support group setup. Even a small one would be cool, I've never met a narcoleptic in person either, or even someone who fully understands what it means.

#14 Rrrapture

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Posted 22 April 2011 - 03:37 PM

I live in LA and would like to meet with a support group. Afternoons or evenings are the best time for me (no mornings, please:))

I also haven't met any other narcoleptics in person. Has anyone gotten back to you, Dave?

Message me or email me at grayrachelle@yahoo.com.

Thanks!

I'm near Los Angeles, and would definitely make it if there is a support group setup. Even a small one would be cool, I've never met a narcoleptic in person either, or even someone who fully understands what it means.

.

#15 Guest_daryl johns_*

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Posted 26 April 2011 - 06:02 AM

I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?


Long Beach give me a call 562 544 4325

#16 Guest_Neels13_*

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Posted 02 May 2011 - 01:41 AM

Hello! I don't really do the posting thing too much but am in desperate need of support for daily living in l.a. So if you would like to start a group I am game! Purposelyplaced@gmail.com. Maybe we can start a meet up group on meetup.com or something like that to get the word out!

#17 Guest_uvachick2002_*

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Posted 31 May 2011 - 04:57 PM

Hi,
I would love to join a narcolepsy support group. Please let me know: uvachick2002@hotmail.com

#18 Patrick Sandy

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Posted 29 July 2011 - 12:43 PM

I live in West Los Angeles and would be interested to meet other local PWN's. Any doctor recommendations also welcome!

#19 sleepnow

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Posted 19 November 2011 - 10:35 AM

I'm in Santa Monica

#20 Rrrapture

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Posted 05 December 2011 - 12:14 AM

Hi folks,

I'm still around and still interested in meeting. Best email address for me is msrachellegray at gmail.com.
(I keep forgetting to check my yahoo account!)

I live in the Mid Wilshire area. Weekend days are good for meeting. 6pm-8pm ok too, Mon thru Friday.

Peace

I'm in Santa Monica





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