octsun

Support Group In Los Angeles? Anyone Interested

38 posts in this topic

searched high & low but haven't found any N support group in L.A..

if anyone knows of one, please let me know.

you'd think in a city this big.

if one doesn't exist, calling all angelenos - let's start one

thanks!

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searched high & low but haven't found any N support group in L.A..

if anyone knows of one, please let me know.

you'd think in a city this big.

if one doesn't exist, calling all angelenos - let's start one

thanks!

I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?

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dreamseeker,

haven't been on site for a while.

great to hear about your interest.

i live in hollywood.

what area of LA are you in?

i'm more than happy to travel.

i too haven't yet met anyone in person with N.

hope to hear from you.

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Hello LA!

If you are suffering from narcolepsy and experience Excessive Daytime Sleepiness (EDS) as a result, you may qualify for a Research Study in the Tucson area. The study is assessing the safety, tolerability and effectiveness of a potentially new EDS treatment. If you are interested and/or would like to hear more about the research opportunity, please contact me through www.narcolepsystudy.com. The website has additional information and a self-assessment to find out if you may potentially qualify for the study. If you would like to obtain materials with information about the study, please call 1-866-497-5211 and I will be able to assist you with your questions and additional information.

Wish you all the best and hope to hear from you soon!

Warm regards,

The Narcolepsy Study Team

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Hey I just found this page. I've been looking for a narc support group as well. I live in Glendale, CA. Please email me and I'd be happy to help organize something. shaunasgreatgrades@gmail.com

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I have also been looking for a support group but haven't found one. Should anyone find a support group i'd be interested in joining as well. I'm in Los Angeles.

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I have also been looking for a support group but haven't found one. Should anyone find a support group i'd be interested in joining as well. I'm in Los Angeles.

Hi,

Recently diagnosed and also looking for a group in LA.

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I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?

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i believe my nephew has narcolepsy, i live in idaho and its like stepping back in time by 15 years. been seeing drs for almost a year and they put it a unexplained, or fainting spells and he dont get enough salt other than that he is healthy. but i see his episodes and its like a dream state but he is awake, he used to sleep walk when he was younger, he has the cataplexy, sleep paralysis, and more. i need a support group to talk to or someone with narcolepsy

i need to know if this is what he has or if it is just unexplained... need help

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HAve you guys gotten a group together yet? I am in LA.

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I would love to go to a support group!! Please contact me.

draw@slingblade.com

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any new information on a Los Angeles area support group? I am in Redondo Beach. Please email me at redondoscorpion@yahoo.com with any information you may have. Thanks!

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I'm near Los Angeles, and would definitely make it if there is a support group setup. Even a small one would be cool, I've never met a narcoleptic in person either, or even someone who fully understands what it means.

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I live in LA and would like to meet with a support group. Afternoons or evenings are the best time for me (no mornings, please:))

I also haven't met any other narcoleptics in person. Has anyone gotten back to you, Dave?

Message me or email me at grayrachelle@yahoo.com.

Thanks!

I'm near Los Angeles, and would definitely make it if there is a support group setup. Even a small one would be cool, I've never met a narcoleptic in person either, or even someone who fully understands what it means.

.

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I'd like to participate in a support group in L.A. Surely there are more of us out there.

I'd like to meet another narcoleptic face to face, I never have.

What part of town are you in octsun?

Long Beach give me a call 562 544 4325

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Hello! I don't really do the posting thing too much but am in desperate need of support for daily living in l.a. So if you would like to start a group I am game! Purposelyplaced@gmail.com. Maybe we can start a meet up group on meetup.com or something like that to get the word out!

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Hi,

I would love to join a narcolepsy support group. Please let me know: uvachick2002@hotmail.com

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I live in West Los Angeles and would be interested to meet other local PWN's. Any doctor recommendations also welcome!

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Hi folks,

I'm still around and still interested in meeting. Best email address for me is msrachellegray at gmail.com.

(I keep forgetting to check my yahoo account!)

I live in the Mid Wilshire area. Weekend days are good for meeting. 6pm-8pm ok too, Mon thru Friday.

Peace

I'm in Santa Monica

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Hi, Redondo Beach here. I've been looking for a group for quite some time now so if anyone out there knows of anything please email me at redondoscorpion@yahoo.com Thanks :) Nikki

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Hi Guys,

I know how hard it is to find anyone else with Narolepsy and "really" understands. That being said.

I'd honored to speak to to you! I live in North Orange County.

Best Wishes,

Melissa

mpaige514@yahoo.com

:rolleyes:

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I just made a group called Narcolepsy LA on Meetup: http://www.meetup.com/Narcolepsy-LA/

I agree with some of the others that it could be a great way for us to plan get-togethers, and connect with other PWN.

To join the Narcolepsy LA Meetup, follow the link and answer 3 questions briefly. http://www.meetup.com/Narcolepsy-LA/

If you're new to Meetup, create a username you're comfortable with (it can be viewed publicly). Photos and intros are all optional; if you hate answering questions then answering with just a word or two is acceptable. The questions are there to filter out spam and help us get to know one another.

I have suggested a meetup next Saturday at 2pm at Pipers in Los Angeles. It's just a starting point, if other times/days work better for everyone, then please email them or post a comment in the Meetup page.

Any and all are welcome to be involved with organizing, promoting, and giving feedback. I paid for 6 months in advance (to host the meetup); we can discuss details like optional membership dues at another time. It was important to me to get it started.

Thanks folks. I can't wait to meet you!

Rrrapture

p.s. email or message me if you have any questions.

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Are there no other LA people? Seems like all the N's are on the east coast.

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Are there no other LA people? Seems like all the N's are on the east coast.

I live in la. When is there another meeting?

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