If God Can Cure All...
Posted 01 October 2009 - 10:49 AM
I am sorry for ranting, i just dont know where esle to go where people will truly UNDERSTAND. thx.
Posted 01 October 2009 - 08:44 PM
Edited by EclecticPoet, 01 October 2009 - 08:58 PM.
Posted 02 October 2009 - 07:38 PM
I am glad that you are here and can vent with us. Sometimes we can't change the way other people think, they just don't see the truth. Pray for Grandma to be touched with the truth.
I am also a Christian and sometimes I feel less than, when "they" act all perfect. But the truth is they have faults too. I cannot compare my insides to their outsides. I have to say that my faith has taught me that I am loved, and worthy no matter what! I have a purpose, and that I am loved just the way I am, faults and all. I believe that for you too. So love you Grandma for who she is and what is good, and leave the other stuff behind.
Posted 04 October 2009 - 03:52 AM
The other thing that I try to remember is that people in general seem to assume that they know all of the relevant facts about narcolepsy, even though they've not made the slightest effort to educate themselves about the causes or symptoms of the illness. I know that people tend to do the same thing with other illnesses, but my subjective hunch is that it's an assumption that's much more prevalent with narcolepsy. Since I was diagnosed with narcolepsy 3 months ago, quite a number of friends have both minimized my symptoms and announced various ways that I should be curing my own illness (although of course it's incurable). It's really amazing to me that people who have not taken the slightest effort to educate themselves about the causes and symptoms of the illness are so ready to inform me of the cure!! My guess is that because almost everyone has at one time or another experienced periods of difficulty sleeping at night, and then difficulty staying awake during the day, people tend to assume that narcolepsy is very similar to their own experiences. And unfortunately (or should I say, fortunately for them), most of the time, they are soooooo very wrong.
One thing I'm doing is to try to keep adding short new daily posts called "Narcolepsy fact of the day" on my facebook account. I try to put up a new fact about narcolepsy every day, just for people to peruse briefly. My hope is that I'm educating my friends slowly but surely, in a nonconfrontational way, with little bits of information at a time. It seems to slowly be working.
Good luck in communicating more with your Grandmother. I hope that you two are able to find some ways to keep connecting with each other. Sometimes, particularly with elders, I just try to keep some differences from coming up too frequently. My Grandmother is constantly at me to lose weight, to do this, to do that... And I just nod and smile and change the subject, knowing that although she can be crazy-making, she really loves me.
Posted 08 June 2012 - 12:28 PM
ANYWAY what I was going to say was that your grandmother is probably reacting that way because of her generation and how she was brought up?
There are times when I definitely think "Why me?" I go to church every week, I pray on a daily bases... yeah I've made mistakes but in God's eyes all sin is equal. What helps me get through is something my mom has constantly told me. God never gives people more than they can deal with. So he must think all us Narcos are hella strong to get through this!! And I think we all are. even though it really sucks some times haha
Posted 08 June 2012 - 08:54 PM
I am also a Christian and not very long before my diagnosis a member of my congregation approached me to say that I was obviously sick because of some sin I was currently commiting. It really was hurtful so I cannot imagine how it feels to have someone you are so close to deny that you even have it. Some people I have told have been skeptical, but no outright denial yet. Perhaps with time and education she will soften her stance. I will pray for her and for you.
Posted 12 June 2012 - 01:25 PM
More recently I learned that many people believe that nightmares and strange dreams are demonic attacks or signs of profound mental illness. I've always had vivid dreams and used to entertain people at work by talking about them the next day. I no longer discuss my frightening dreams after having a couple of "friends" stop speaking to me because they either think I'm insane or that I'm under some satanic influence. But I've learned that people say these sorts of things out of fear and they are afraid because they lack education and have been told false things about such conditions. I had to forgive all those people after years of carrying that hurt around because it was eating away at me like acid. I finally learned that forgiveness is for me, NOT for them, and that long held anger cannot serve any positive purpose in my life. That whole experience has prepared me for this new experience with most likely having Narcolepsy. I am much more experienced with how society reacts to these things and will use better discernment this time about with whom I share if I am definitively diagnosed.
Posted 12 June 2012 - 10:20 PM
If having N is difficult for you, then accepting the diagnosis and living the best life you can in spite of it is your path to heaven. That's what is meant by "your cross to bear." Because the suffering of the cross is what leads a person to heaven. That's how we are imitators of Christ. That's why God allows suffering.
I am so passionate about my Christian faith that I have my Master's in Theology. If you want to talk about the details of that, feel free to message me.
Posted 13 June 2012 - 12:42 PM
I believe very strongly in miracles, but I think they're often more subtle than we expect them to be. I prayed a lot for help and guidance when my sleep problems started, and the first few doctors I saw didn't understand what was going on. I didn't experience a miraculous healing of my narcolepsy, but I did find a great neurologist who was able to diagnose me and prescribe a treatment that's working for me, and in my mind, THAT was the miracle!
Posted 11 December 2012 - 11:58 AM
I hope this helps. I know this was posted a long time ago so I hope things have gotten better but if not then this is just another added point of view.