You forgot to mention that after the 72 hours, that your spouse/friends/family/teachers harass you for years about how lazy you are.
Heee heee!!! You guys are so funny, and so great! That's what I thought - everything I've read has said that N couldn't be cured, but I wanted to make sure I wasn't missing anything. I wonder if it's because it's sleep that's affected in N that makes the general public so sure that they are experts on both what ails us and how to cure it. Because everybody sleeps, and everybody has a bad night now and again, and so maybe folks figure they know all about it. Creatine, Coca-cola, acupuncture, more exercise, whatEVER.... Maybe after I've gotten used to the N diagnosis and lived with it for awhile, I'll be able to just laugh and shrug this stuff off.
After I got home, I came up with the wicked repost that I fantasized it would have been nice to have on the tip of my tongue: I could have told my acupuncturist-acquaintance that since she knew how to cure N, she'd better get on the phone to NIH and Stanford right away! Because she was going to do something that had never yet been done in the history of medical science, and that there are 150,000 PWN in this country alone who were going to be CURED, FINALLY, based upon her radical new insight!! AND WE'D ALL BE LINING UP! Sigh.... But it's the kind of thing that plays better in fantasy then reality, at least in this context. But maybe I'll remember it for some other person ready to cure narcolepsy that I just don't really like....
I read somewhere reputable that a normal person would have to go between 48-72 straight hours without any sleep at all, before he/she would feel the same kind of fatigue that a person with N (without effective meds) feels every minute of every day. I wish I could remember where I saw that. I've been relating that to people as I go around educating folks about N.
I start by asking if they've ever stayed up all night, and they say, oh,yeah, I know how you feel. I get them to tell me about this time they stayed up all night, so that they've got it clear in their minds.
And I say, so then, did you go to work the next day? Most people stop right there, and look surprised, but some people say, yeah, I did this one time. So I get them to tell me all about that, so that they really remember how they felt after 24 hours with no sleep.
And I say, then, did you stay up again all night the second night? And that's where everyone drops out. But I keep going. I say, well, imagine that you DID stay up all night that second night. And then, imagine that you went to work that second day. And they're starting to get it.
And I say, and then, imagine that you stayed up all night again that third night. And then I say, so, you're in the morning of the next day, and you have to go to work. And they look at me, sort of overwhelmed.
And I say, that's how a person with narcolepsy feels, and how their body functions, up until they finally get diagnosed and hopefully finally get some effective meds. Every. Single. Day. For you, to feel this way, you'd have to stay up for 72 hours straight, with no sleep at all. EVERY DAY (which of course is impossible - you can't have gotten your last sleep 72 hours previously 2 days in a row, but I leave that part out).
And once in awhile, somebody says, I thought I understood before, but I didn't.