Do You Have One Or More Other Autoimmune Disorders?
Posted 23 July 2009 - 03:35 PM
I just got back from seeing my endocrinologist, who told me that I have the autoimmune thyroid disorder called Hashimoto's Disease. Last fall, I was diagnosed with microscopic collagenous colitis, which is also an autoimmune disorder. And of course, narcolepsy makes 3 autoimmune disorders for me. So far.
I got to wondering on the way home about whether I might be headed for yet other autoimmune diagnoses as time goes on. The doc says there is no way to know for any specific person, of course. But I was wondering what the trend might be among us. I'd be interested in your answer to my little poll, if you're comfortable with it.
If there is any research out there about how many autoimmune disorders people with narcolepsy tend to develop, I'd be interested in learning about it.
Posted 23 July 2009 - 11:18 PM
Wow! You are so...lucky (or not). While I do not have any diagnosed autoimmune disorders (other than narcolepsy), I am painfully aware that many things are out of whack in my immune system. I am fascinated to see what your poll turns up. I do hope that someone eventually does do research on this.
Posted 23 July 2009 - 11:24 PM
Posted 28 August 2009 - 12:23 PM
I spent the last 20 years undiagnosed and/or misdiagnosed.
You must educate yourself and become your own advocate. Do not accept anything short of thorough and compassionate care. It may take years to find the right doctor and the right answers during which you may be treated with incredulity and condescention, but this is your body, and your life.
Posted 25 October 2009 - 01:35 AM
Posted 25 October 2009 - 12:01 PM
Posted 26 October 2009 - 02:24 AM
Let's not forget though, Narcolepsy is not technically a proven autoimmune disease. Not yet.