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Irishhh

Eyes Are Tired

26 posts in this topic

We've all talked about all the things that happen to us like cataplexy and eds. I've talked about my half asleep body thing that happens almost every morning, numerous times. I've read about medications, dreams, hallucinations, etc.

Everyday I feel like I've been holding a collapsing bridge and all the cars on it up with my eye laser vision or something.

I've never seen anyone mention this eye thing that I have and I don't know if I've ever mentioned it. So I suppose it is possible that other people are experiencing it too.

I was thinking that based on the way my eyes feel, they should be permanently bruised, if that were possible. My eyeballs should be bloodshot like I've been doing a little too much druggage! but they aren't. I have a little bit of a eyebag thing and a little purplelyblue, but nothing that I can't cover with makeup. I don't exactly look like as much of a zombie as I feel!

but my eyes man. my eyes are so dead tired. I don't know if it's just from straining them to be awake or what. It doesn't feel like a headache, like sometimes I'll get a migraine behind my eye. It's not that. It's different. Something I've never heard anyone mention.

It's a tired feeling in my eyes and all around them. Anyone else have this???

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We've all talked about all the things that happen to us like cataplexy and eds. I've talked about my half asleep body thing that happens almost every morning, numerous times. I've read about medications, dreams, hallucinations, etc.

Everyday I feel like I've been holding a collapsing bridge and all the cars on it up with my eye laser vision or something.

I've never seen anyone mention this eye thing that I have and I don't know if I've ever mentioned it. So I suppose it is possible that other people are experiencing it too.

I was thinking that based on the way my eyes feel, they should be permanently bruised, if that were possible. My eyeballs should be bloodshot like I've been doing a little too much druggage! but they aren't. I have a little bit of a eyebag thing and a little purplelyblue, but nothing that I can't cover with makeup. I don't exactly look like as much of a zombie as I feel!

but my eyes man. my eyes are so dead tired. I don't know if it's just from straining them to be awake or what. It doesn't feel like a headache, like sometimes I'll get a migraine behind my eye. It's not that. It's different. Something I've never heard anyone mention.

It's a tired feeling in my eyes and all around them. Anyone else have this???

Yep, exactly as you described it, Irishhh...minus the make-up part though. ;)

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but my eyes man. my eyes are so dead tired. I don't know if it's just from straining them to be awake or what. It doesn't feel like a headache, like sometimes I'll get a migraine behind my eye. It's not that. It's different. Something I've never heard anyone mention.

It's a tired feeling in my eyes and all around them. Anyone else have this???

Sometimes, when I am waking up from a nap or from being asleep, it feels like my eyes will hurt if I open them. They don't actually hurt, though.

The type of pain that my body is anticipating is a really SHARP pain. The kind that you get from looking into a bright light or something. It makes you flinch. That kind of pain.

And, during the day, sometimes my eyes are REALLY tired. I shut them, but I can't fall asleep because I am on meds. That's when the anticipation of pain can strike too - not just when I'm waking up. And, sometimes, it feels like they're kind of glued together a little.

...is that what you mean?

drago

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Yup. Eyelid nonsense here too.

For the most part my eyelids feel as though they have lead weights hanging from them and they're perpetually being pulled down by some sandman troll, while the part above my eye (eyebrow area) feels as though it starts to sag and then my whole face feels as though it begins to sag. People have told me they can see this on my face; that is, when I'm falling on my face exhausted, it's pretty obvious, as I cannot even conjure up a facial expression to save my life.

Anyway, the biggest issue with my eyes is that they often feel as though they're on fire; like there's tobasco in my eyes. And so I'll use eye drops to cool them down. This usually happens 5-6 days/week at various times throughout the day. I dunno, it seems that it could be some sort of misfit immune response to who knows what.

Overall, the more spent and stretched beyond my limit I become, the more my eyes start to act up.

And I do the same thing drago, my eyes are so heavy, so tired and so I shut them, but the uppers don't allow me a proper nap or rest during the day anymore; it's more of an "aware" nap; not restful in the least. Very frustrating.

jenji

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Yeah, I feel like my eyes strain to stay open too. Not all the time, but bad days are horrible. I think my eyes are just adamant that their natural position is shut. They dislike anything out of the norm. Unfortunately I need to be awake sometimes, eyes open and all. They clearly disapprove and they give me a stern talking to.

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My eyes are feeling this way right now. Like they are grainy and burning and should be bloodshot (not sure if they actually are or not)... hard to keep them open today-having a bad narco day.

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Sometimes, when I am waking up from a nap or from being asleep, it feels like my eyes will hurt if I open them. They don't actually hurt, though.

The type of pain that my body is anticipating is a really SHARP pain. The kind that you get from looking into a bright light or something. It makes you flinch. That kind of pain.

And, during the day, sometimes my eyes are REALLY tired. I shut them, but I can't fall asleep because I am on meds. That's when the anticipation of pain can strike too - not just when I'm waking up. And, sometimes, it feels like they're kind of glued together a little.

...is that what you mean?

drago

Mine never really feel glued together, but sometimes I have the anticipation pain. Like... When you're about to eat a pickle or something sour and you get that rush in your jaw. Except it's not in the jaw.

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Yeah, I feel like my eyes strain to stay open too. Not all the time, but bad days are horrible. I think my eyes are just adamant that their natural position is shut. They dislike anything out of the norm. Unfortunately I need to be awake sometimes, eyes open and all. They clearly disapprove and they give me a stern talking to.

lol they insist on being shut. if only they could speak for us.

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My eyes were always tired too, and bruised feeling. I used to tell my mom I had to "rest my eyes" and that I wasn't sleeping, but my eyes just needed to close. My eyes always looked insanely tired too. Dark circles which are still there. They're really bad on me. One time I went with my bf at the time to have lunch with his mother, and she immediately accused him of punching me when she saw my eyes. :( I was so mad at her, and I even had makeup on! I think the dark circles are getting better now though.

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My eyes were always tired too, and bruised feeling. I used to tell my mom I had to "rest my eyes" and that I wasn't sleeping, but my eyes just needed to close. My eyes always looked insanely tired too. Dark circles which are still there. They're really bad on me. One time I went with my bf at the time to have lunch with his mother, and she immediately accused him of punching me when she saw my eyes. :( I was so mad at her, and I even had makeup on! I think the dark circles are getting better now though.

Burt's bees eye radiance creme is wonderful for this. That and this one eye roller stuff by garnier fructis that I no longer use (animal testing).

You should try burt's. It's around $15-$18 depending where you buy it.

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Burt's bees eye radiance creme is wonderful for this. That and this one eye roller stuff by garnier fructis that I no longer use (animal testing).

You should try burt's. It's around $15-$18 depending where you buy it.

I will try this, thanks so much for the tip! :)

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Hi there,

My eyes feel tired all of the time too. They are heavy and all I want to do is close them. I feel like I should have blood shot eyes and huge purple bags underneath... but I seem to look normal. I am a little paranoid about it... like people think I am a druggie or abused or have a mega hangover or something. I think it feels worse than it looks for me. I really hope this feeling goes away with meds. BTW I am new here. I got diagnosed at the end of July. Started on Nuvigil a little over a week ago, my first delivery of Xyrem is coming tomorrow.

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I think the best way to descride my eyes would be to say it feels like they are kind of going cross eyed? They dont actually turn in.. but it feels like I cant focus them because they are too tired.. I dont know if that is just my eyes or if it has anything to do with N.

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I also would have to say I'm exactly like that. I have optic nerve head drusens and wondered if they cause it. Sounds like you are saying in general which would be my case. But at specific times it starts with the eyes, then to brain fog, then my knees give out. That would be when I walk into dept. store or grocery etc. So If you see that guy walking around with a really stupid look on his face stuggling to keep any kind of normal walk in the store. No, I'm not strutting. Maybe you could come say Hi. I'm probably just trying to remember what I doing there and how to get out.

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But at specific times it starts with the eyes, then to brain fog, then my knees give out. That would be when I walk into dept. store or grocery etc. So If you see that guy walking around with a really stupid look on his face stuggling to keep any kind of normal walk in the store. No, I'm not strutting. Maybe you could come say Hi. I'm probably just trying to remember what I doing there and how to get out.

Oh man, that is so me. Wandering the grocery store/mall aimlessly with no real idea of what I'm supposed to be finding or if there was a reason I ended up there at all. And I strut too. And bob my head as if listening to music. I've found that if I put headphones on people seem to find it a lot less freaky, except in the rare case where the headphone cord accidentally ends up poking out of my pocket and it's obviously not attached to anything...

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so glad this topic was started. haven't come across it anywhere and for me, this "aahh my eyes are sooo tired & sore" can be among the most annoying & debilitating characteristics of N. i hate it!

i too look in the mirror expecting to see swollen black & blue eyes. it's almost disappointing that i don't. i should look like a boxer who's been pummeled but instead my eyes just look tired and have dark circles beneath them.

it's a behind, around and sometimes in the eye soreness. not pain, not headache. eyes feel profoundly swollen, profoundly sore and so excruciatingly tired. a dull nagging ache. sometimes feels like i have toothpicks holding my eyes open and i just want to pull them out, close my eyes and sleep for days/weeks/months. while discomfort is in/around the eyes, when severe or constant, it incapacitates me.

pretty sure it's a result of the strain of trying to keep your eyes open, fighting off fatigue and sleep. it helps a little to shut my eyes which i do constantly throughout the day, while walking, at stoplights while driving, many times during a conversation, etc. I also have a habit (which must seem bizarre to others) of pressing my hands against my eyes for relief like a cold compress. i want to put a steak or a ice pack on them. i keep those drug store eye ice packs in my fridge and use them once in a while but nothing really helps. if i need to focus, concentrate or make eye contact, I either squint (and don't blink) or strain my eyes and force them to stay very wide open and don't blink.

while this may have no relevance to anything, i notice then when eye fatigue/swollen feeling is intense, I don't simultaneously have muscle weakness in limbs or cataplexy. i can have at same time when mild or moderate but when intense it's always one or the other. ?

started xyrem about a week ago. trying not hv any expectations cause so far northing's (stimulants alone, changes in diet...) helped with eye soreness and other symptoms of N. still on low dosage but (knock wood) hv already experienced some promising (ok, feels like a miracle) results. had two days for example in which i felt alive, human again - only minor sleep paralysis and minor daytime fatigue - and on those two days had NO eye soreness, no cataplexy or significant muscle weakness, no delirium and vastly improved cognitive abilities.

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And here I thought the eye thing was just because I have very poor vision! My eyes frequently have that gritty, burning, going to fall-out-of-my head feeling (still doesn't quite describe it, but close enough), which is balanced on other days with the swimmy, bleary, been driving for 12 hours straight feeling.

Question, has anyone else noticed a correlation between eye issues and nausea? I do work on a computer all day, so the monitor could be causing some of this (the nausea is almost always worse after I have been trying to focus on either fine print or focus to intently), but I'm curious if others experience this too.

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We've all talked about all the things that happen to us like cataplexy and eds. I've talked about my half asleep body thing that happens almost every morning, numerous times. I've read about medications, dreams, hallucinations, etc.

Everyday I feel like I've been holding a collapsing bridge and all the cars on it up with my eye laser vision or something.

I've never seen anyone mention this eye thing that I have and I don't know if I've ever mentioned it. So I suppose it is possible that other people are experiencing it too.

I was thinking that based on the way my eyes feel, they should be permanently bruised, if that were possible. My eyeballs should be bloodshot like I've been doing a little too much druggage! but they aren't. I have a little bit of a eyebag thing and a little purplelyblue, but nothing that I can't cover with makeup. I don't exactly look like as much of a zombie as I feel!

but my eyes man. my eyes are so dead tired. I don't know if it's just from straining them to be awake or what. It doesn't feel like a headache, like sometimes I'll get a migraine behind my eye. It's not that. It's different. Something I've never heard anyone mention.

It's a tired feeling in my eyes and all around them. Anyone else have this???

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Hi! Just wanted to say that I have always had a lot of problems w/ my eyes...ever since elem. school people have said that I always look like I'm asleep, and I usually get "You look SO tired!" at least twice a day from complete strangers (I work front desk at a hotel and a lot of my customers assume that I have been working a double shift even if I just got to work). Of course this makes me feel like I look terrible even if I left the house feeling reasonably good about the way I looked that day. Sometimes I tell people who say I look tired about my N but I usually just try to ignore them. I almost always have very swollen eyes and they do feel tired all the time even if the rest of me feels ok or even good...I have had dark circles and large bags under my eyes for as long as I can remember and if I can go a whole day without my eyes feeling like they are on fire and being rubbed with sandpaper it's like a miracle ... if it wasn't for my husband who compliments me a lot I would probably feel pretty sh--ty about myself by now! It seems to be worse when I am medicated (Adderall 30 mg 2 x day)...not sure why that is. I've gotten to where I almost never let anyone take a picture of me because I always look "stoned" (which I have also been accused of being more times than I can remember).

I'm not sure what to do about this problem other than over-the-counter eye creams and cold compresses (both of which I have tried with minimal results). Hang in there...you are definetly not alone and one of these days we'll find some kind of treatment that works!!!

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I have many eye problems, and agree with others in that I am glad it came up. I actually have many neurological nuances that are directly related to being tired, but are never mentioned as symptoms (secondary or even related) of Narcolepsy.

My eyes always feel tired and heavy, like there are lead weights tied to my eyelashes. I always have dark circles under my eyes.

I frequently wake up with my eyes swollen and am unable to fully open them. This usually clears up within 30 minutes.

My eyes are always dry and itchy. I cannot cry easily, and I cannot produce very many tears.

My vision will blurr. I have noticed that this happens when I feel exhausted and when my allergies flair up.

I have ocular migraines. My right eye will actually not move properly, in cooperation with the left eye; I think the neurologist called this nystagmus. Zomig helps this, but makes me sleepy. I have found that nothing is as effective as laying down in dark silence with a cold compress on the eyes upon onset. Onset of the ocular migraine is caused by being too tired, especially if I have spent much of the day doing activities that require focus in the central plane of sight.

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Wow, this is so weird. I was talking with my doctor yesterday about how Nuvigil makes my eyes so dry that I just can't stand it. He was saying that he hadn't heard that about Nuvigil before, and could I already have something going on with my eyes and the drug was making it worse? I told him that I thought that was possible. But with 300 mg of Nuvigil, by late afternoon my eyes feel so horrible I just can't keep them open. And at that point what's the point of staying awake... (And 300 mg isn't enough to shake the sleepiness anyway.) Of course after I hung up I thought, hey, maybe it's because with the meds I actually keep my eyes open more instead of sleeping all day! And I have been diagnosed with dry eyes by an eye doctor, but can't remember what I ever did with the eye drops he gave me.

And then there's this issue with my eyes randomly going crossed. No idea what causes that, but fortunately it's very rare.

I did find some good OTC eye drops. They're called Rohto Hydra and they actually have menthol in them. They're a bit intense at first, but very soothing and cooling. I've tried Systane and Systane Ultra, but they don't help as much as they used to.

I have many eye problems, and agree with others in that I am glad it came up. I actually have many neurological nuances that are directly related to being tired, but are never mentioned as symptoms (secondary or even related) of Narcolepsy.

My eyes always feel tired and heavy, like there are lead weights tied to my eyelashes. I always have dark circles under my eyes.

I frequently wake up with my eyes swollen and am unable to fully open them. This usually clears up within 30 minutes.

My eyes are always dry and itchy. I cannot cry easily, and I cannot produce very many tears.

My vision will blurr. I have noticed that this happens when I feel exhausted and when my allergies flair up.

I have ocular migraines. My right eye will actually not move properly, in cooperation with the left eye; I think the neurologist called this nystagmus. Zomig helps this, but makes me sleepy. I have found that nothing is as effective as laying down in dark silence with a cold compress on the eyes upon onset. Onset of the ocular migraine is caused by being too tired, especially if I have spent much of the day doing activities that require focus in the central plane of sight.

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Wow, this is so weird. I was talking with my doctor yesterday about how Nuvigil makes my eyes so dry that I just can't stand it. He was saying that he hadn't heard that about Nuvigil before, and could I already have something going on with my eyes and the drug was making it worse? I told him that I thought that was possible. But with 300 mg of Nuvigil, by late afternoon my eyes feel so horrible I just can't keep them open. And at that point what's the point of staying awake... (And 300 mg isn't enough to shake the sleepiness anyway.) Of course after I hung up I thought, hey, maybe it's because with the meds I actually keep my eyes open more instead of sleeping all day! And I have been diagnosed with dry eyes by an eye doctor, but can't remember what I ever did with the eye drops he gave me.

And then there's this issue with my eyes randomly going crossed. No idea what causes that, but fortunately it's very rare.

I did find some good OTC eye drops. They're called Rohto Hydra and they actually have menthol in them. They're a bit intense at first, but very soothing and cooling. I've tried Systane and Systane Ultra, but they don't help as much as they used to.

SleepySusan: A few quick thoughts (I haven't read this thread in months). First, I believe many stimulants can cause dry mouth (i.e., decreased secretions; anticholinergic effects), and I do recall reading that people who take stimulants for ADHD can have such dry mouth that they have mouth sores when they wake up (and can get advanced tooth/gum decay from it). It's not exactly equivalent to tear production, but perhaps there's some impact on tears too, or maybe even just a slight dehydration in some people from some of these stimulants. I'd have to read up more on that though....

Also, when your eye doctor diagnosed you with dry eyes, did he ever mention Sjogren's syndrome? Of course, I'm not a doctor and I'm not suggesting you have this, but I wanted to mention it because it did pop up in my head when I read the past two posts in this thread. Especially because Sjogren's syndrome is an auto-immune disorder, and auto-immune disorders like to come in multiples (i.e., you might count narcolepsy given the prevailing view is that it's an auto-immune disorder (although I'm not 100% sold yet)). Here is some info on Sjogren's symptoms:

The two main symptoms of Sjogren's syndrome are:

Dry eyes. Your eyes may burn, itch or feel gritty — as if there's sand in them.

Dry mouth. Your mouth may feel like it's full of cotton, making it difficult to swallow or speak.

And some more background generally:

Sjogren's (SHOW-grins) syndrome is a disorder of your immune system often defined by its two most common symptoms — dry eyes and a dry mouth.

Sjogren's syndrome often accompanies other autoimmune disorders, such as rheumatoid arthritis and lupus. In Sjogren's syndrome, the mucous membranes and moisture-secreting glands of your eyes and mouth are usually affected first — resulting in decreased production of tears and saliva.

Although you can develop Sjogren's syndrome at any age, most people are older than 40 at the time of diagnosis. The condition is much more common in women. Treatment focuses on relieving symptoms, which often subside with time.

Taken from: http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147

On an unrelated note, about the crossed eyes, does that just happen when you're tired, or absolutely randomly even when you're not tired?

Now, I think this abstract is much more helpful than my ramblings above. The paper is from 1992, and I didn't look up each drug to confirm everything, but it's some good food for thought if anyone reading this thread is taking any of these medications and having eye issues (I bolded the text I thought most applicable):

Optom Clin. 1992;2(4):73-96.

Ocular side effects of selected systemic drugs.

Jaanus SD.

Numerous systemic drugs produce adverse effects that involve the eye. Pigmentary inclusions of the lids or conjunctivae or both may be caused by a variety of drugs, including amiodarone, chlorpromazine, and gold salts, while conjunctivitis and blepharoconjunctivitis have been associated with isotretinoin, sulfonamides, salicylates, and antineoplastic agents. Dry eye complaints may be caused by antihistamines, beta-receptor blocking agents prescribed for cardiovascular problems, antianxiety agents, and tricyclic antidepressants. Several drugs have been well documented as causes of keratopathies and/or lenticular deposits, including chloroquine and hydroxychloroquine, chlorpromazine, gold salts, systemic corticosteroids, nonsteroidal antiinflammatory drugs, and the antiarrhythmic agent amiodarone. Visual acuity may be decreased by transient changes in refractive error caused by sulfonamides, the antifungal agent metronidazole, thiazide diuretics, and carbonic anhydrase inhibitors. Dilation of the pupil may be caused by anticholinergic drugs, antihistamines, antidepressant agents, and central nervous system stimulants such as cocaine, methylphenidate, and amphetamines. Nystagmus, diplopia, and extraocular muscle palsies have been associated with central nervous system depressants, antihistamines, barbiturates, and elevated blood ethanol concentrations. Intraocular pressure can be elevated in susceptible individuals by long-term use of topical or systemic corticosteroids. Numerous drugs have been associated with retinal toxicity, including chloroquine and hydroxychloroquine, thioridazine, tamoxifen, and talc, which may embolize to the retinal circulation when administered by long-term drug abusers. The antituberculosis agents ethambutol and isoniazid have been implicated as causes of reduced acuity, visual field defects, and disturbances of color vision. Optic neuritis and retrobulbar neuritis may result from the use of chloramphenicol. This paper describes these and other adverse ocular effects that may be encountered when examining patients who are taking systemic drugs.

Ugh. It's really late and I just stumbled onto a bunch of papers that would be good to cite but I've really got to get to sleep. For anyone that thinks that was a tease, knock yourself out. Here's the citation and a blurb:

Psychopharmacology (Berl). 2005 Sep;181(3):537-49. Epub 2005 Oct 12.

Does modafinil activate the locus coeruleus in man? Comparison of modafinil and clonidine on arousal and autonomic functions in human volunteers.

Hou RH, Freeman C, Langley RW, Szabadi E, Bradshaw CM.

....Clonidine exerted sympatholytic and sedative effects, whereas modafinil had sympathomimetic and some alerting effects. Modafinil may activate noradrenergic neurones in the LC involved in arousal and pupillary control, without affecting extracoerulear noradrenergic neurones involved in cardiovascular and salivary regulation.

And apparently 600 medications can have anticholinergic effects (i.e., could cause decreased tear production): http://www.clinicalgeriatrics.com/articles/Anticholinergic-Syndrome-Presentations-Etiological-Agents-Differential-Diagnosis-and-Treatm . On that note, I'm off to bed. Sorry for such a meandering post, but hopefully someone will find something interesting in it.

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Nyx, it's hard to say if my eyes go crossed when I'm tired or just randomly, because I'm ALWAYS tired. But it seems to be much more frequent when taking Provigil or Nuvigil. I just can't accommodate to near objects and then far objects, or the other way. Plus my cataplexy was way worse on Nuvigil, so it's not a great drug for me. I was thinking that maybe the Nuvigil caused my eyes to be so uncomfortably dry because when I take it I keep my eyes open more, but the Ritalin doesn't seem to bother me that way.

I take several meds with anticholinergic effects, so having dry eyes isn't anything new. But my eyes just go crazy on Nuvigil, and 300mg isn't nearly enough to shake the sleepiness for me. No future in increasing that drug for me. I do need to schedule an appointment with the eye doctor...

Thanks for answering.

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This post may never be read as its really old but i just wanted to say that i also have gritty sore and tired eyes every day. They can also get bleary, watery and blurry. I just thought that my eyes were getting worse due to me being in my early fifties, but now wonder if its not down to something else. I am meanwhile waiting for an appointment for an mslt as consultant thinks narcolepsy or hypersomnia. I have already got severe sleep apnea.  There is barely a day goes by that my eyes aren't sore and it drives me nuts. 

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