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Having A Sleep Study And Want To Know What To Expect


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#1 NeedLots0Advice

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Posted 25 May 2009 - 08:53 AM

ok my doctor says that he would'nt be suprised if i had narcolepsy. and i agree because my energy levels are very low all the time. and has been this way for several years. iv tried all sorts of things to fight it but with always sleeping and being fatigued it's easy to give up to quick. tried high doses of vitamin B ect. Nothing seems to work. even went to a psycologist and they tried me on aderal and provigil. no luck. so a year later im final;y seeing a sleep speacilist. and am wondering what to excpect. i have a sleep study sceduled overnight, then one during the next day with 5 or so 20minute naps. well it seems like i'll be headed in the right direction maybe, because over the years iv aquired an even bigger problem. i noticed percocet sometimes gave me energy. not exactly real energy but fake energy. never the less it was energy. well i knew that path would'nt work so i sought out suboxone, and now i take suboxone daily 4mg. once a day. now here is my problem. i still have these fatigu problems. suboxone dont make that go away it just makes you think you got energy when you really dont. meaning you think you got energy till you go to do something. however the suboxone is addictive so it's not like im gonna be able to quit taking before i have my sleep study. since iv been on it a year. and problem with it is it makes me hyper somnic. meaning im awake but tired as hell and cant sleep at night untill i take sleeping medicine, or stay up late. i feel like i can sleep all day but the suboxone makes it a little more dificult to take nap[s during the day but i do. and sometimes i fall asleep during them naps sometimes i dont. so yea now i have a real catch 22- i don't feel i can tell the doctor this because i have heard that some of the things doctors use can be adictive and he prolly would refuse to help me if he knew i took suboxone. because suboxone is generaly intended to get people off opaits.

2. so will this sleep study be able to tell the doctor what is going on? or will the hyper sonmia the suboxone causes, cause my brain waves and patterns and such to show different results and all this be non helpful to the doctor? im really worried bout this sleep study because i want to get it all figured out but at the same time you can see im ikn quit a perdiciment. also i can take sleep meds before i leave the house for the 10pm sleep study? or

1. if i have trouble falling asleep on such a time appointent scedule would the doctors office offer sleep meds?

i dont have a scedule i sleep its a pretty crazy scedule but for the most part i sleep aropund 16 hours a day when i sleep at night i usaly sleep a solid 14-16hours +naps during the day when i can. the doctor explained to me, is whats happening is when my body is tired and wants to sleep my mind is awake and fully refreshed. and when the brain is tired and wants to sleep, the body already slept and thus is fully awake and refreshed. so thats why im tired all the time is because either my body or my brain wants to sleep 24hours a day he explained as if they are on 2 different sleep scedules.

#2 sleepless sleeper

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Posted 25 May 2009 - 06:08 PM

you have N, or at the very least you have hypersomnia, not to say that hypersomnia is the least of subjects. it is also one hell of a *BEEP*. these two are buddies extraordinaire.

you sound like me several years ago. ah, yeah. me. i got worse. others can get better.

if u r here for coddling, then ur not getting it from me. with a disease like this (i don't need to know what the outcome will be from ur reports, as pretty much no one here will) YOU MUST TELL YOUR DOCTOR every f'ing thing that you put into your body.
If he doesn't know, then you should tell him. You may have skewed everything thus far in your treatment by self medicating.
you DO NOT take anything - NO OTHER MEDS *NO MEDS AT ALL* when taking sleep tests.
You should be off any and ALL pills, meds, vitamins, illegal, off the street, wtf ever, for the half life of all medications BEFORE taking a test.

Otherwise - biggrin.gif WELCOME HOME. You've found a new family, and the right place to be. You will find no other support like you will find here. Take whatever you want after you get treated and play around with your prescribed meds. Hmm, well, I still don't think that is a good idea, but there are a few people on here that add their on mix into what the doc prescribes for them . Most are even legal.

Yes, most medications that are prescribed for these sleep disorders (diseases, disabilities) can be addictive. They can be speed, meth, and the date rape drug. Sleeping pills. You're medicine cabinet can fill up quickly, but most people take what is called "drug holidays." I personally have learned the VERY HARD way that these holidays are damn good ideas as it is just as good of an idea to take as little as possible (or none at all) on days that you can tolerate it.

Saddle up, cowboy or cowgirl. Or as we say here in WY, Cowboy up. We're all here for you in a way that will be more beneficial than you have yet realized. Like I said, you've come to the right place and keep us informed.







#3 sleepless sleeper

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Posted 25 May 2009 - 07:00 PM

I forgot to say that if you have any meds in your body when you take the sleep test, then it can give inaccurate readings. You may as well throw your money in the trash can. angry.gif If you have problems sleeping, then that is what you are getting a test for. wink.gif You don't want to be on pills. If your answer to this is that you need the pills so you can live your life and you SIMPLY MUST have the pills so you can live your life, sad.gif then my answer is that you so very much already have the reason why you should stop taking the pills long enough to get the test. dry.gif I bet that did not make sense. unsure.gif BUT IT WILL. Yes, sweet, it will. bwa ha ha a ha! ph34r.gif

Yes, today is a day after an almost sleepless night. HENCE sleepless sleeper. Yes, NeedLots0Advice, I may seem insane, BUT I am you a few years ago. I mean, I am me, but a few years ago I was you at the point that you are in - in your life right now. Not really YOU, per se, but me at the same point in my life that it seems that you are in your life right now.

Follow my advice if you do not want to be like me.




#4 NeedLots0Advice

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Posted 25 May 2009 - 11:05 PM

Um wow. you totaly misread what i wrote. i believe i have narcolepsy with no energy. im not wired or anything like that lol. the suboxone im on sorta can do that. but it's normal side affect. but actualy im always sleepy. and i sleep alot

#5 jenji

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Posted 25 May 2009 - 11:07 PM

NeedsLots0Advice:

You need to be off of everything to achieve true and accurate results from a sleep study. Otherwise you're just wasting your time and putting off a definitive diagnosis, whether that is a diagnosis of narcolepsy or the ruling out of narcolepsy.

It would be entirely unwise and inappropriate to go about a sleep study whilst on any drug that your doctor is not aware of. It also depends upon your doctor as some doctors are not fully informed regarding the fine art of sleep studies and will often overlook the need for a clean system and therein confound your results, which will only lead to another sleep study.

best,
jenji

#6 Lais02

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Posted 26 May 2009 - 12:20 AM

I agree with the others... get off of your meds before doing the sleep study. I did it wrong and it just postponed my diagnosis another year sad.gif I really didn't have a year to give up that way. Do it right the first time unlike me. I was still on an antidepressant, so it messed up my results.

Good luck, and do come back to see us smile.gif

#7 sleepless sleeper

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Posted 26 May 2009 - 10:25 AM

QUOTE (NeedLots0Advice @ May 25 2009, 10:05 PM) <{POST_SNAPBACK}>
Um wow. you totaly misread what i wrote. i believe i have narcolepsy with no energy. im not wired or anything like that lol. the suboxone im on sorta can do that. but it's normal side affect. but actualy im always sleepy. and i sleep alot


HA

I'm sleepy ALL THE TIME
And I don't sleep well

I didn't sleep well last night, either, but today is a bit more sane than yesterday.


The funny part was thinking that I was wired and had energy. Wired in the insane sense, sometimes from no sleep, but nrg? never.

What did I misread?
I interpreted as:
1) no energy
2) always sleepy
3) have been treated for a little while, but no sleep study
4) will be getting sleep study
5) taking nonprescribed med
6) have not told dr about said unprescribed med


INsomnia and narcolepsy are NOT mutually exclusive. Some of us are so darn special that we are blessed with both. wink.gif
woo hoo joy joy
happy happy joy joy


AGAIN - I am the one that your doctor should have warned you about.


P. S. Jenji is right about the doctors. Even some sleep SPECIALISTS will not inform you to be off all meds. This is because they either forget or just don't know, which blows what is left of my mind.

#8 NeedLots0Advice

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Posted 26 May 2009 - 11:10 AM

all my medicines are prescribed. im only currently on one medication wich is the suboxone. iv tried other meds through a psych doctor and that did'nt work so after years of flustration i ended up on suboxone wich totaly dos'nt treat fatigue. it only makes you think you have energy but when getting up to do something you find you don't. suboxone is one of them meds you can't simply stop taking. because as i said earlyer it is addictive its a partial antagonist / heavy opaite with a opait blocker. confusing i know. will cause puking. but thats not realy my problem nor an option for me atm. since it would delay a sleep study at least a year and if the doctor knew i was on it probably delay it indefinatly. what i have done is been taking less of my prescribed med. and as the sleep study gets closer. well iv just been thinking i may have to take sleep meds before i go to the night study part. my extreme fatigue is a result of idk but i sleep plenty 16 hours a day +naps when i can its just alot harder sleeping on a scedule. sad.gif and since the study starts at 11pm well.. at any rate it would make it easyer not being on that cause then i sleep like a lead brick all through the 30hour study but thats not realy a realistic option. mslt and another test forget what they called it but there doing it from 11pm till 6pm the next day. since the sub is very long acting theres no worries there but sleeping on a scedule, and sceduled 20minute naps the next day well that presents a problem since i dont have a sleep scedule.


what was it like for your sleep study. what about them daytime naps? what exactly do they expect to get from them?
normaly id nap like crazy but i dont really see me naping on a scedule.

also i know stimulants will probably have no effect on me. so i doubt thats a viable option for treatment. most meds work oposite on me aderall just made my mind awake did'nt help the fatigue and tiredness one bit when i was on it and provigil made me feel like i was in a quit room and all melo almost asleep on it. i know theres other meds out there but i guess thats for the doctor to determine. and i would like to hope theres other meds out there besides stimulants cause i dont think they would work unless adderal and provigil is crap anyways and there something i dont know about. but i think ill leave this for future discusion.

#9 BaRb79

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Posted 26 May 2009 - 07:18 PM

QUOTE (NeedLots0Advice @ May 25 2009, 08:53 AM) <{POST_SNAPBACK}>
ok my doctor says that he would'nt be suprised if i had narcolepsy. and i agree because my energy levels are very low all the time. and has been this way for several years. iv tried all sorts of things to fight it but with always sleeping and being fatigued it's easy to give up to quick. tried high doses of vitamin B ect. Nothing seems to work. even went to a psycologist and they tried me on aderal and provigil. no luck. so a year later im final;y seeing a sleep speacilist. and am wondering what to excpect. i have a sleep study sceduled overnight, then one during the next day with 5 or so 20minute naps. well it seems like i'll be headed in the right direction maybe, because over the years iv aquired an even bigger problem. i noticed percocet sometimes gave me energy. not exactly real energy but fake energy. never the less it was energy. well i knew that path would'nt work so i sought out suboxone, and now i take suboxone daily 4mg. once a day. now here is my problem. i still have these fatigu problems. suboxone dont make that go away it just makes you think you got energy when you really dont. meaning you think you got energy till you go to do something. however the suboxone is addictive so it's not like im gonna be able to quit taking before i have my sleep study. since iv been on it a year. and problem with it is it makes me hyper somnic. meaning im awake but tired as hell and cant sleep at night untill i take sleeping medicine, or stay up late. i feel like i can sleep all day but the suboxone makes it a little more dificult to take nap[s during the day but i do. and sometimes i fall asleep during them naps sometimes i dont. so yea now i have a real catch 22- i don't feel i can tell the doctor this because i have heard that some of the things doctors use can be adictive and he prolly would refuse to help me if he knew i took suboxone. because suboxone is generaly intended to get people off opaits.

2. so will this sleep study be able to tell the doctor what is going on? or will the hyper sonmia the suboxone causes, cause my brain waves and patterns and such to show different results and all this be non helpful to the doctor? im really worried bout this sleep study because i want to get it all figured out but at the same time you can see im ikn quit a perdiciment. also i can take sleep meds before i leave the house for the 10pm sleep study? or

1. if i have trouble falling asleep on such a time appointent scedule would the doctors office offer sleep meds?

i dont have a scedule i sleep its a pretty crazy scedule but for the most part i sleep aropund 16 hours a day when i sleep at night i usaly sleep a solid 14-16hours +naps during the day when i can. the doctor explained to me, is whats happening is when my body is tired and wants to sleep my mind is awake and fully refreshed. and when the brain is tired and wants to sleep, the body already slept and thus is fully awake and refreshed. so thats why im tired all the time is because either my body or my brain wants to sleep 24hours a day he explained as if they are on 2 different sleep scedules.


Hey first of all Relax...
N is not the hard part really..It's getting doctors and friends and family to understand it and treat it the way that will work best for you. We're not all the same!! My advice is not to take any medications that your doctor hasn't told you to take prior to your sleep study. During the sleep study it's a little overwhelming when you first walk in the room because of all the wires and stuff but you will be fine. Just pretend your not there. TRY AND RELAX!! The naps are'nt so easy but don't worry about them just let your body do what it's going to do. I was so worried my test would come back negitive for N only because that meant i was back at square 1 not knowing what was wrong with me. But it didn't it came back that I have N with C and SP. It's not the worst thing in the world to have but it is something that will effect us the rest of ourlives. But I would just really try to get rid of any negitive thoughts and messages from people and go into this with a carefree mind. And listen to your DR. and talk to him.. Take care
Good Luck!!


#10 angellus

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Posted 26 May 2009 - 08:17 PM

QUOTE (NeedLots0Advice @ May 25 2009, 09:53 AM) <{POST_SNAPBACK}>
ok my doctor says that he would'nt be suprised if i had narcolepsy. and i agree because my energy levels are very low all the time. and has been this way for several years. iv tried all sorts of things to fight it but with always sleeping and being fatigued it's easy to give up to quick. tried high doses of vitamin B ect. Nothing seems to work. even went to a psycologist and they tried me on aderal and provigil. no luck. so a year later im final;y seeing a sleep speacilist. and am wondering what to excpect. i have a sleep study sceduled overnight, then one during the next day with 5 or so 20minute naps. well it seems like i'll be headed in the right direction maybe, because over the years iv aquired an even bigger problem. i noticed percocet sometimes gave me energy. not exactly real energy but fake energy. never the less it was energy. well i knew that path would'nt work so i sought out suboxone, and now i take suboxone daily 4mg. once a day. now here is my problem. i still have these fatigu problems. suboxone dont make that go away it just makes you think you got energy when you really dont. meaning you think you got energy till you go to do something. however the suboxone is addictive so it's not like im gonna be able to quit taking before i have my sleep study. since iv been on it a year. and problem with it is it makes me hyper somnic. meaning im awake but tired as hell and cant sleep at night untill i take sleeping medicine, or stay up late. i feel like i can sleep all day but the suboxone makes it a little more dificult to take nap[s during the day but i do. and sometimes i fall asleep during them naps sometimes i dont. so yea now i have a real catch 22- i don't feel i can tell the doctor this because i have heard that some of the things doctors use can be adictive and he prolly would refuse to help me if he knew i took suboxone. because suboxone is generaly intended to get people off opaits.

2. so will this sleep study be able to tell the doctor what is going on? or will the hyper sonmia the suboxone causes, cause my brain waves and patterns and such to show different results and all this be non helpful to the doctor? im really worried bout this sleep study because i want to get it all figured out but at the same time you can see im ikn quit a perdiciment. also i can take sleep meds before i leave the house for the 10pm sleep study? or

1. if i have trouble falling asleep on such a time appointent scedule would the doctors office offer sleep meds?

i dont have a scedule i sleep its a pretty crazy scedule but for the most part i sleep aropund 16 hours a day when i sleep at night i usaly sleep a solid 14-16hours +naps during the day when i can. the doctor explained to me, is whats happening is when my body is tired and wants to sleep my mind is awake and fully refreshed. and when the brain is tired and wants to sleep, the body already slept and thus is fully awake and refreshed. so thats why im tired all the time is because either my body or my brain wants to sleep 24hours a day he explained as if they are on 2 different sleep scedules.


Its quite possible you will be wasting your time doing the study. You dont need to be able to have a sleep schedule or anything.. they will wake you in the moring and at set intervals they will comein and turn out the lights and tell you to go to sleep. They will be measuring everything through brains waves.. you cant fake or influence the out come. If you go into REM sleep during the naps... that is what they are looking for. Normal people dont do this in the time allotted.. then they will wake you... for what ever time period.. then come back and tell you to go to sleep while they monitor you. Taking the med you do.. i would bet will mess with the results.

When is your study?

#11 NeedLots0Advice

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Posted 26 May 2009 - 11:57 PM

sleep study overnight is tommorow at 11PM. that one is for i think there checking for apnea or something. and then the other study that nap study. i supposably sceduled right after so the next day. im not sure all they want at the very least i'll do the sleep apnea test. but iv been trying to lower my dose of the suboxone for bout a week, wich i highly doubt is enough time but i dont know; so i dont have problems with the nap study. guess i'll know by tommorow if it would even be worth taking that nap study on thursday, i may just have to rescedule the nap study for down the road a bit, so i can bring the lvl's of suboxone i take lower. cause it's pointless to do that study in withdrawl or on high lvl's of the sub since there looking for rem sleep. im slowly figurin it out. but gosh, iv had these horrible wanna sleep all the time symptoms i guess you call them forever, and the sub only wires my mind but dos'nt actualy do anything for the extreme fatigue.

#12 NeedLots0Advice

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Posted 26 May 2009 - 11:58 PM

at any rate, yea it's a huge dilema of catch 22. lol- what a mess

#13 Lais02

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Posted 27 May 2009 - 03:00 AM

I'm confused...

You ARE prescribed the Suboxone?

If so then why wouldn't you tell your sleep doc?

Sorry... I must have missed something.

ALSO!!!! IF YOU ARE PRESCRIBED A MEDICATION DO NOT STOP TAKING IT UNLESS YOUR DOCTOR HAS TOLD YOU TO DO SO. THIS IS IMPORTANT, BECAUSE SOME MEDS CAN CAUSE REALLY BAD STUFF IF YOU JUST QUIT TAKING THEM.

Keep us posted on whats going on. Welcome to the NN forum smile.gif

#14 NeedLots0Advice

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Posted 27 May 2009 - 03:08 AM

QUOTE (Lais02 @ May 27 2009, 03:00 AM) <{POST_SNAPBACK}>
I'm confused...

You ARE prescribed the Suboxone?

If so then why wouldn't you tell your sleep doc?

Sorry... I must have missed something.

ALSO!!!! IF YOU ARE PRESCRIBED A MEDICATION DO NOT STOP TAKING IT UNLESS YOUR DOCTOR HAS TOLD YOU TO DO SO. THIS IS IMPORTANT, BECAUSE SOME MEDS CAN CAUSE REALLY BAD STUFF IF YOU JUST QUIT TAKING THEM.

Keep us posted on whats going on. Welcome to the NN forum smile.gif


yes, there prescribed to me. and i know thats not one i can't just stop taking. and the reason i dont think it's a good idea to tell the sleep doctor about it is because, it is a replacement medicine generaly only given to people to get off of opaits (stuff like oxycontin, morphien, ect). so basicly id immediatly hit the crap list ;( , and from what i can tell most of the medicines they would use to help N in a class of drugs that can be habbit forming like scedule3 or 2. if so then even if i had narcolepsy they would never even try to treat it.

#15 BaRb79

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Posted 27 May 2009 - 06:24 AM

QUOTE (NeedLots0Advice @ May 27 2009, 03:08 AM) <{POST_SNAPBACK}>
yes, there prescribed to me. and i know thats not one i can't just stop taking. and the reason i dont think it's a good idea to tell the sleep doctor about it is because, it is a replacement medicine generaly only given to people to get off of opaits (stuff like oxycontin, morphien, ect). so basicly id immediatly hit the crap list ;( , and from what i can tell most of the medicines they would use to help N in a class of drugs that can be habbit forming like scedule3 or 2. if so then even if i had narcolepsy they would never even try to treat it.


You have to be ope n and honest with all of your dr,s...
Your only jipping yourself if your not..Also they won't let you just rescedule the naps. The over is not just so they can check for apnea it's part of the test. They need to know what kind of sleep you had the night before. If I were you I would rescedule until you have been totally honest with your dr. about all your meds. It sucks but your not going to get an accqurite test result. Basically your gonna waste your time.
You have to start over with your dr and if you have N you have it they arent gonna tell you they cant treat you because you might have needed help getting off another DRUG.. They do understand sometimes these things have a way of getting out of control. YOU JUST HAVE TO BE OPEN AND HONEST!!it's gonna be hard now but you can do it.
good luck!! smile.gif

#16 Lais02

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Posted 27 May 2009 - 12:13 PM

I agree with Barb. Telling your doctor does sound like a good thing to do in this case. If you keep it a secret then it is showing that you're hiding something. Just have the other doctor write the sleep doctor a letter about why you are on it if you're worried.

#17 NeedLots0Advice

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Posted 27 May 2009 - 05:20 PM

thanks for the help guys. iv decided to rescedule my appointment. been doing some thinking. and some things have come up. so now once again i dont have the time for the sleep study. and now with some stuff that has come up, it may not be best to have the study done. once agaion thanks for the help, and will probably see you guys around soon hopefully smile.gif