Irishhh

Curiosity In Development

Birth month and illness poll   24 members have voted

  1. 1. In which month were you born?

    • January
      3
    • February
      0
    • March
      2
    • April
      2
    • May
      3
    • June
      0
    • July
      1
    • August
      3
    • September
      2
    • October
      1
    • November
      3
    • December
      4
  2. 2. Was your mother ill when she was pregnant with you? Feel free to post more information in the actual thread.

    • Yes
      4
    • No
      7
    • Not sure
      13
  3. 3. Did you have an illness that preceded your onset of narcolepsy? Feel free to post more information in the actual thread.

    • Yes, mono (glandular fever)
      6
    • Yes, chicken pox (shingles)
      0
    • Yes, severe viral infection
      0
    • Yes, repeated ear infections
      0
    • Yes, other illness
      2
    • No
      8
    • Not sure
      8

Please sign in or register to vote in this poll.

47 posts in this topic

I hope that you're doing alright, too exhausted. I haven't seen many of your posts lately.

My head has been really foggy. Your inbox is full at the moment so I can't send you a message.

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i'm a december baby! i'm right in the middle :(

my mom was as healthy as can be while she was preggers with me--no drugs, no smoking, no alcohol, AND she's a runner, so she even ran every day for six miles up to the point that her doctor said she could. no complications with birth, no weird/serious diseases during or after either--and no history in the fam!

HOWEVER--

i know narcolepsy has been linked to immune dysfunctions, and usually sets in during adolescence...

the summer before my freshman year of high school, i developed a case of SHINGLES--it was on the upper left quadrant of my face and almost blinded my left eye, because at first my parents thought it was acne, even though i'd never had it before...thank god they're both in the medical field and realized what it REALLY was and took me to the ER before it did any serious damage.

still...i'm wondering what effect shingles had on me, or what it could tell about me and my narcolepsy...VERY INTERESTING, especially with the theories on the causes of narcolepsy out there...

and look what i found, straight off mayo clinic's shingles (causes) page: "...it may be due to lowered immunity to infections as you grow older. Shingles is more common in older adults and in those who have weak immune systems."

what does it all meeeeeeeean?! hahahhaha

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Anyway, just wondering, what are all of your birth months? What time of day were you born (if you know)?

I was born March 7, 1986 at 11:11 p.m.

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i was born in February... this is indeed extremely interesting.

I did not start having these hallucinations (which happen EVERY NIGHT) until 2 weeks after a cyst had rapidly developed on my tailbone/butt area. After that the narcolepsy symptoms just poured in.

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may 27th here... gemini on the cusp of taurus... maybe that explains why i am the way i am HAHA to those who follow horoscopes.

i think mine is genetic.

i dont know if there was something to se it off.

i did have mono when i was in grade nine, and it was like it just never went away.

im trying to remember back to grade seven and eight what my sleep habits were but i just can't... mayb ei'll talk to my dad about it see if he remembers how i was before i was always tired.

highschool was definately when all my syptoms came out though

oh, out of curiosity, september-mid/end of october and march-early may just SUCK for me sypmtoms wise

before being dx'd i ran my car into a truck in oct a year and half back

and i always remember the start and end of the school years my face breaking out really badly and always being tired

like seasonal defective disorder but times 1000000000000000000 if u know what i mean

i think my body is on such a fine balance beam as far as keeping everythign in balance and regulated, that the change in temp/light/dry/wet/air pressure and everythign else tha tgoes with winter to summer and summer to winter just throws my already out of whack system into shut down mode. there are SO many things we have in common, im thinking this HAS to be one of them

it was actually this time last year i finally went to my dr and had a fit that something really was seriously wrong, and even though i felt better by the time i got my first round of bloodwork etc done (i always weould go through cycles - feel like poop in fall, get bloodwork, nothing really serious showed up, feel better by the time that is, then forget aobut it, same in spring, on and on.)

this time i kept at it and went to an audiologist, an ear nose and throat dr, a (useless ass) obgyn, a bum dr, and a neurologist.

well thank goodness. i was running out of people. but surely enough the neurologist knew right off what it was and sent me to the right place and now im in good hands.

hopefullly it wont take years to get my body somewhat in balance, but i guess im digressing. i'll leave this where it is for this thread: for those in places where the weather has sharp season changes how does this affect your N?? oh and how do you cope??

WElllll..... I live in an area (Northern Ky) that has the stupidest weather lately! It is the worst! Okay, so two days ago it was 70 degrees out, then yesterday it got so cold, actually got so cold in the middle of the night. I went to bed so hot, sweating even! We had the fan on in our room and the window open. It was so nice out! I woke up freezing my butt off! Had to shut the window, turn off the fan and turned on our space heater. So cold!

So then today it was snowing, not a lot, but a little.

Monday I woke up feeling great, on top of everything... and today... so tired. I hate today.

The weather changes here are really bad this time of year. I don't worry about coping. I just do. Luckily, I have someone to drive me to work and pick me up, as well as having my employer allowing me to work a couple hours less right now. I work 6.5 hrs instead of 8. It has helped a lot. Other than that, I just live. Tired, awake, whatever it is. I just do it. Because I have to.

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Awesome discussion thread. I believe that the initial research was done by Dr. Lois Krahn (she presented in Milwaukee on narcolepsy and nicotine). Dr. Eve Rogers actually mentioned the preponderance of March-born PWNs at our Suddenly Sleepy Saturday event. Eve knows Lois well (Eve studied at Mayo when Lois was at the one in MN - Lois is now at Mayo in Arizona). Beyond that, I was born in August and am unsure if my mother was ill during the pregnancy. I do know that the delivery did not go well. They had to use the forceps, and everyone thought that I had lost an eye for the first three days. While the viral trigger of this auto-immune condition has not been revealed yet, I do know that I tested positive for mono four times - March 1977, March 1983, November 1984, December 1999. My internal medicine (and primary) doctor has told me that this is impossible. He is not doubting me or the tests, but he believes that others missed something major given that I have tested positive 4 times. Personally, I have no doubt that the trigger event will be viruses in the chicken pox/mono family. I look forward to seeing what others post here.

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Dogdreams,

I almost forgot. As far as I know, cataplexy is the one symptom that causes a narcolepsy diagnosis all on its own. Whether you have additional triggers or not, the fact that you have classic triggers should be enough to immediately diagnose you as a PWN with C. On page 426 of The Clinical Neurophysiology Primer by Andrew Blum and Seward Rutkove (in Table 10), it clearly states that EDS for 3 months and cataplexy are enough for a diagnosis. I suggest you bring a computer and show your doctor! Hang in there!

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i was born in september :huh:

and my mum didnt have any complications during pregnancy that i know of...

in terms of getting ill before having narcolepsy, i started feeling narcoleptic from after i had glandular fever a few years back.

i have a differnet theory of how narcolepsy happens though...but thats for a different topic :P

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I was born in August. My mom was not sick during the pregnancy. We could set up a poll here to find our birthday months?! :)

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after i had glandular fever a few years back.

Pretty sure "glandular fever" is mono (UK style)!

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Lais02 made a great suggestion in the other thread - we should have a poll. Thus, I created a poll. Feel free to expand on your own items in a post.

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Awesome discussion thread. I believe that the initial research was done by Dr. Lois Krahn (she presented in Milwaukee on narcolepsy and nicotine). Dr. Eve Rogers actually mentioned the preponderance of March-born PWNs at our Suddenly Sleepy Saturday event. Eve knows Lois well (Eve studied at Mayo when Lois was at the one in MN - Lois is now at Mayo in Arizona). Beyond that, I was born in August and am unsure if my mother was ill during the pregnancy. I do know that the delivery did not go well. They had to use the forceps, and everyone thought that I had lost an eye for the first three days. While the viral trigger of this auto-immune condition has not been revealed yet, I do know that I tested positive for mono four times - March 1977, March 1983, November 1984, December 1999. My internal medicine (and primary) doctor has told me that this is impossible. He is not doubting me or the tests, but he believes that others missed something major given that I have tested positive 4 times. Personally, I have no doubt that the trigger event will be viruses in the chicken pox/mono family. I look forward to seeing what others post here.

ah good to know! thank you Mike! I was wondering who has done this research.....

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While the viral trigger of this auto-immune condition has not been revealed yet, I do know that I tested positive for mono four times - March 1977, March 1983, November 1984, December 1999. My internal medicine (and primary) doctor has told me that this is impossible. He is not doubting me or the tests, but he believes that others missed something major given that I have tested positive 4 times. Personally, I have no doubt that the trigger event will be viruses in the chicken pox/mono family. I look forward to seeing what others post here.

I totally agree that it could be related, but the one thing I can't figure out is why? Everyone gets chicken pox. How related are chick pox and mono? I don't think I've ever had mono, at least was never diagnosed with it. I used to get strep a lot as a kid. I vaguely remember having chicken pox. I know I was five, I rem. the house we lived in. I rem it being all over! My head itched and it would hurt to brush my hair, but my mom had to brush it because I had such long pretty hair (she'd say) lol... but also I rem. all the pink, the calamine (however you spell) lotion! and I also am very prone to stupid poison ivy, I found that out last summer. I'm trying to think of anything else. I also had the flu really bad a few times. When I was 16 it was esp. bad, and I've never had to go to the hospital for an illness. Other than this, I've just had allergies randomly, along with colds each year. I have a very dark past though with my family, my mother... I haven't talked about that on here, but I strongly believe that any sort of normal coping mechanism my body could've come up with had to fight very strong to keep me well. Stress is a very hard thing to fight IMO. and stress is a big C trigger for me.

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OMG I'm such a dumb! I can't believe I didn't think of this til now. DUH!

My mom and dad tried for 2 years to have a child, before they conceived. My mom went to this doctor who told her, Oh no, you can't have another child, you have cancer cells. You'll need a hysterectomy. I don't know what happened, if she didn't schedule her appt. or just thought she did. Either way, she went to the doctors office thinking her appt. was this one certain day. She shows up there and no one is there. The place is closed. She goes home. Calls them the next day, reschedules. She ends up going to the doctor before that appointment with stomach problems and because her period didn't come. Thinking there must be an issue because of the cancer cells or something. They do the pregnancy test, and what do you know? She's pregnant, with me.

So my mom carried me, while having these cancer cells, and had a complete hysterectomy after I was born. So they took out all the female reproductive stuff. She's not had a problem with that since, but she herself is a very sick woman. So... yeah.

I can't believe I hadn't thought of this before!

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Awesome discussion thread. I believe that the initial research was done by Dr. Lois Krahn (she presented in Milwaukee on narcolepsy and nicotine). Dr. Eve Rogers actually mentioned the preponderance of March-born PWNs at our Suddenly Sleepy Saturday event. Eve knows Lois well (Eve studied at Mayo when Lois was at the one in MN - Lois is now at Mayo in Arizona). Beyond that, I was born in August and am unsure if my mother was ill during the pregnancy. I do know that the delivery did not go well. They had to use the forceps, and everyone thought that I had lost an eye for the first three days. While the viral trigger of this auto-immune condition has not been revealed yet, I do know that I tested positive for mono four times - March 1977, March 1983, November 1984, December 1999. My internal medicine (and primary) doctor has told me that this is impossible. He is not doubting me or the tests, but he believes that others missed something major given that I have tested positive 4 times. Personally, I have no doubt that the trigger event will be viruses in the chicken pox/mono family. I look forward to seeing what others post here.

I've heard this also - the viral trigger.

seems that epstein barr virus (ebv) can be added to this list. extremely common (ebv has to do w/ mono - mono is not epstein barr, but i think u have had ebv if u have mono - i can't remember. i had to do a lot of testing for this 2 yrs ago). seems that the majority of US adult population has had ebv and never knew it.

there are a couple of others, also.

  • cytomegalovirus
  • and, um, ...
cytomegalovirus is either 5ths Disease or human parvo. whatever the name is for the other one of those two should go next to the bullet in place of "and, um, ...".

Both of these are also extremely common. I had never heard of the human parvovirus until when i was dx'd w/ N. Long story. Involves infectious diseases doctor and my gp that thought that I was a hypochondriac because I was tired "all the time" and had pain (herniated disc in neck that she should've found). Although these two are extremely common like EBV, they also usually go undx'd. Usually nothing bad comes from them, either. According to medical research that is. I bet you that we'll see research in a few years that shows that all these simple viruses that cause no real problems will end up being the cause of a few autoimmune diseases. Or other diseases. Similar to how strep throat can cause heart problems later in life if it is not treated.

I've had chicken pox, ebv (mono will show as ebv on tests even after it's gone) and/or 5th's and/or human parvo, and a few others. A couple of months ago I finally got over another undiagnosed long term (months) viral infection. The second one in my lifetime.

Then again-

I am convinced that DDT is partly the cause of my N. It's just odd that both my parents had brain tumors (dad had N also) and I have neurological illness. We were born in agricultural state when heavy use of now illegal pesticides was used. I guess more people would have these problems, though. Running around in a DDT fog from mosquito spray trucks was so much fun.

dogdreams, i'm having problems finding a post u made in reply to a question i had about ddt a long time ago. i made a statement that the CDC replied to an email I sent them asking about long terms effects of DDT on humans. The answer from them was that there were no long term effects. You said that they probably gave that answer because of ________________________________________. I want to find out what you said that should fill in the blank. Do you remember?

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dogdreams, i'm having problems finding a post u made in reply to a question i had about ddt a long time ago. i made a statement that the CDC replied to an email I sent them asking about long terms effects of DDT on humans. The answer from them was that there were no long term effects. You said that they probably gave that answer because of ________________________________________. I want to find out what you said that should fill in the blank. Do you remember?

No idea what I said. DDT is an endocrine disrupter and has long-term effects in animals so why not humans? It seems strange they'd say that.

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i spent hours on here yesterday going thru old posts, and only got half way through. don't feel like it now, but if and when i start again and then find it, i'll let you know. don't know if it's worth the time.

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Hi,

forgive me if this is a little long winded there is a point so bear with me.

I have been looking into narcolepsy, not because I have narcolepsy but because I have had a lamb born with it a few weeks ago. I was intrigued to learn of the link with autoimmune and also the colony of narcoleptic dogs who are genetic narcoleptics. however I could find nothing similar in sheep to what has been happening in this lamb. The closest I have come to finding something similar is with fainting foals the sometimes familial condition in some breeds of horse who have narcolepsy. However when talking to some breeders whose foals have been born with narcolepsy one thing became apparent in a number of cases this was linked to premature birth. I did

some reasearch into premature babies and they have trouble with circadian rythymns, higher requirements for REM sleep and I also found quite a few references and studies done in neonates and orexins ( hypocretins) and feeding;

I am wondering if the mechanisms for establishing normal patterns of REM sleep and all that goes with it is somehow disturbed or not correctly switched on in these premature births perhaps something similar happens with human babies? I can find however no reference to narcolepsy in babies only sleep apnoea. If anyone has any thoughts or comments or perhaps possible routes of enquiry. I would be interested to hear from them.

My lamb is now seven weeks old she is thriving but has some residual problems that may be related to the whole narcolepsy syndrome but she appears as with these fainting foals to be growing out of it.This thread in particular intrigued me as it seems whilst autoimmune may be one trigger perhaps there are others or underlying problems not yet fully classified?

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Hi,

forgive me if this is a little long winded there is a point so bear with me.

I have been looking into narcolepsy, not because I have narcolepsy but because I have had a lamb born with it a few weeks ago. I was intrigued to learn of the link with autoimmune and also the colony of narcoleptic dogs who are genetic narcoleptics. however I could find nothing similar in sheep to what has been happening in this lamb. The closest I have come to finding something similar is with fainting foals the sometimes familial condition in some breeds of horse who have narcolepsy. However when talking to some breeders whose foals have been born with narcolepsy one thing became apparent in a number of cases this was linked to premature birth. I did

some reasearch into premature babies and they have trouble with circadian rythymns, higher requirements for REM sleep and I also found quite a few references and studies done in neonates and orexins ( hypocretins) and feeding;

I am wondering if the mechanisms for establishing normal patterns of REM sleep and all that goes with it is somehow disturbed or not correctly switched on in these premature births perhaps something similar happens with human babies? I can find however no reference to narcolepsy in babies only sleep apnoea. If anyone has any thoughts or comments or perhaps possible routes of enquiry. I would be interested to hear from them.

My lamb is now seven weeks old she is thriving but has some residual problems that may be related to the whole narcolepsy syndrome but she appears as with these fainting foals to be growing out of it.This thread in particular intrigued me as it seems whilst autoimmune may be one trigger perhaps there are others or underlying problems not yet fully classified?

Aww your poor little lamb! That is so horrible, an innocent little baby being born with something so uncontrollable. It's different to me about humans, but animals... Animals really don't deserve it. Not that humans do, but well... I love animals more than people, so yeah! You see where I'm coming from, I'm just crazy :)

I don't really have much insight into this. I'm the one that started this thread, and the only thing I've really found on it was about humans and that there may be something that goes wrong in development. In fetal stages, in a certain trimester. There could be an illness introduced to the mother, even just a cold.

But since Narcolepsy itself isn't clearly defined (and I say this because a lot of us have similar symptoms they don't tell you about) I'm sure they are a little while away from being able to explain how it starts.

Science seems to think that animals should be tested on to find out how humans work, despite that we are different. and I know we need this to make medical advancements, yada yada, but I guess if they find anything they'll find it in the animals first? I don't know... Just my thoughts.

I hope your little baby lamb continues to do better. I hope it can grow out of it. My dad startled a foal once and the lady that they belonged to yelled at my dad because she said it was his fault they fell. She said, "You made my baby fall!" lol poor guy

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Aww your poor little lamb! That is so horrible, an innocent little baby being born with something so uncontrollable.

Hi Irishh thanks for the reply and sorry I didn't mean to hijack your thread. I had hoped it would add to the debate. sometimes with animals because they don't have all the reasoning we do, they just deal with things rather than the emotional response we people have. My little lamb adapts, The main trigger has been feeding so we have some fun sessions trying to get a bottle into her before she collapses but she works hard at not going down for as long as possible. That said at this stage I am past the worry point and am now looking to understand better the problems it brings for her but also the condition itself. If its possible to understand things in animals and this brings about understanding in people then it is a very fine line to walk and I admit sometimes some of the experiments make uncomfortable reading but I am a realist.

there are several potential explanations she is a rare colour varient and in people there are syndromes associated with this particular set of symptoms "griscelli syndrome" who also have neurological and sleep disorders but the premature birth was one that seemed to make a huge amount of sense particularly as she does appear to be improving. Of course if there is nothing potentially comparable in human babies then its hard to take things any further;

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