How Does It Start?
Posted 17 March 2009 - 11:43 AM
Posted 17 March 2009 - 12:36 PM
Not everyone develops such bad C and there's no way that I know of to tell if/when your C will get worse and how it will manifest itself. Sucks, huh?
Posted 01 May 2009 - 10:56 PM
Stress makes it worse, there's no doubt in my mind. Mine started 10 years ago.I would all of a sudden feel as if I was so weak that I absolutely had to lie down and i would find that i couldn't converse or do anything but lie there and shiver inside. Later I would feel it in my legs, they would go numb and feel very heavy and with this feeling the need to lie down and bury my head in a pillow or just hide somewhere. And, lots of other experiences. All this time not knowing what it was.
Try and make your life as stress-free as you can and take an anti-depressant like prozac. I hope this helps- I see it's an old post.
Posted 19 November 2009 - 03:35 PM
Posted 19 November 2009 - 04:31 PM
Posted 21 January 2010 - 04:41 AM
I have had Narcolepsy/Cataplexy all of my life (67years old). As a child, I didn't have sleep attacks, I simply couldn't stay awake if I was inactive, tried to read a book or do homework. Cataplexy was the most recognizable symptom which started when I was 13 whenever I laughed. Then came sleep paralysis and h.hallucinations. Sleep attacks came after my first child and worsened with my next two children. The Cataplexy has been severe and the worse to deal with. I finally found a doctor knowledgeable enough to put me on Anafranil which has suppressed most of my Cataplexy and allowed me to be more normal for the first time in my life. I also have Central Sleep Apnea and have to sleep with a C-pap and an oxygen machine. It does nothing for my sleepiness during the day but it will prevent my heart from enlarging. The development of Cataplexy is definitely different for everyone. From the knowledge I have acquired over the years, You can have Narcolepsy without Cataplexy but you can't have Cataplexy without Narcolepsy. I hope I have helped you in some way.
<!--fonto:Book Antiqua--><span style="font-family:Book Antiqua"><!--/fonto-->Do you remember how your cataplexy started? When you first noticed something wasn't right? I'm worried I'm developing it further. I have minor issues. Has anyone had this for a long time and noticed it getting worse? I know medication may mask some of this, but if anyone has any helpful info, I'd appreciate it! I can't seem to find anything on the development of cataplexy. My EDS and sleep paralysis has become worse over the years, so I assume it's possible for C to also do this??<!--fontc--></span><!--/fontc-->