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#1 Henry G

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Posted 26 January 2009 - 04:25 PM

I will be forced in to an involuntary very long drug holiday.

It's going to be very tough.

This is what happened. My shipments of medicines were seized from Brazil.

They were never seized for over 6 years. I can only imagine then, chances are my packages of medicines may have even been inspected before. And on seeing that: I am perfectly entitled to the medicines, a copy of a prescription letter attached, whoever was the Custom Officer would let it through.

But last week, I was struck very unlucky. An Officer decided to play the Jury and God, and mess with my life.

I received an official letter that stated (in summary):

The following items: 120 Ritalin tablets and 130 Amphetamine tablets have been seized as they are Controlled Drugs.

The letter further states that my course of action should be to write back. And if I do a Magistrates Court will decide in a civil hearing whether I am entitled to the seized package.

My complaint here is not so much as to whether I was right and wrong in the face of the Law. But the shambles and monkey justice that soon followed.

I rang the HM Customs and spoke with an Officer. That number was more of a central office phone line. I explained the situation briefly and he said: They shouldn't have even blocked my medicine. That was his words, and of course I am not one into taping conversation, that is their job. He was nice, nevertheless, and helpful. I then said look it was controlled drugs - class B - but they are also my medicine. I remember this guy saying: It doesn't matter, if it has a prescription, if it is for my own personal use. I am entitled to it. He further gave me the next number to ring - which was the Post Seizure Unit - so I could get in touch with the responsible Officer who decided upon withholding my meds.

It was a number that you a number that you rang, left your number and they would ring back. Eventually an Officer did.

I gave the reference number from my letter and he was aware of the situation. Probably the Officer in charge. Unlike the polite help I received earlier from an HM Customs Helpline. This one wasn't so diplomatic. I will replay of what I remember

'These are Class B Drugs and so we have seized them' - he began

'Yes but they are medicine. I need them' - I said

'These are Class B Drugs. Class B Drugs. You can't import Class B Drugs into the UK'

'I have been doing just that for the last 6 years.'

'These are Class B Drugs and you can't have them'

And so it became a "Yes it is. No it isn't. Yes it is" kind of argument.

I am shaking here. Anyway ..

'I really need these medicines or I won't even be able to write a letter well' I pleaded

To make matters worse I wasn't that alert of the time. I hate that. I often lose my ability to argue, discuss things better.

'Are you a British Resident?' he asked

'I am a British Citizen' I said

'So why are you getting medical treatment from Brazil and not from here?'

I couldn't say because I had a better experience with them. It was them that first believed me I may have the condition. When here in the UK, I've been pleading for over 4 years to my GP at the time. And like many typical stories: she thought I was inventing things. It was in Brazil, that I diagnosed with the condition by sleep lab tests. Polymnosonography and Multiple Latency experiments. Those results (even by the leading specialist there) were ignored here. So I was forced to undergo them again. The waiting time was under 2 years, in Brazil it was done quicker (2 months in the waiting queue). When I began seeing the specialists here, I was denied my two best medicine: Ritalin and Amphetamine. They wanted me on Provigil (which messes me up), Effexor (which messes me up) and Zolpidem (which messes anyone up). I was receiving my better meds from Brazil and was visiting that country at least once a year. So stuff the chemical lobotomy the UK Drug therapy. I am not taking those nasty meds (nasty for me and I did complain) - Effexor and Provigil. Finally I abandoned seeing the UK specialists and thought of remain like that. In the false comfort all will be OK; meds from Brazil and see them once a year.

So there, I am saying all the truth, what happened. But recently I have pressed my newer GP to get referred again to a Narcolepsy specialist in the UK. I somehow sensed that sooner or later a bad day would come. I have an appointment but it's a month way.

But back to the HM Customs Officer. Obviously and naturally I can only villify him. This is the person who is denying me treatment. By the letter of the law and the manual he consulted he may have complete authority. I just thought more of this guy as a psychopath who probably was enjoying the power trip. Who never had a proper education and had a grudge.

There are other ways to deal with the situation, even completely denying me my medicine. Without doing what he did next.

"OK so you say you need to take this Class B Drugs. Does your GP know that?" he asked

"Yes" I said

"Tell you what you should do. Get your GP to email me, explaining why you should have these substances. And then I will see what I can do"

And that was that. We put the phone down

An appointment was a week away. I didn't want to do that, just for the reason that making to any appointment can be very energy demanding. And my last pills were running out with the delay.

My GP emailed him and explained properly that those medicines are for my personal use. THat I have been confirmed with the diagnosis of Narcolepsy. And that without those my condition will deteriorate.

I naively believed all would work out then. From what he said, it appeared if my GP consented then he would release my medication.

I began cancelling other appointments and commitments because of this. I am finding hard to cook and stuff. A month of this will be Hell. Think any of you - no medicine for a month.

I never heard from the Officer and so decided to ring their office again.

This time the phone was picked up straight away by a lady. I called for him by name, as his email revealed. But he wouldn't speak to me, he said now I should email him.

And so I did and waited for the reply.This was today.

The reply came this afternoon. And basically he repeated all the Class B Drug argument again. But over a more official email, with legal language.

OK so this guy is playing with me. WHy didn't he just told me from the beginning give up or seek an appeal. Why this torture for almost two weeks? OK I am biased here, but I could only think: apparently 1 in 100 people are psychopaths and I just came across one.

Psychopaths are people that have no empathy. That enjoy power games over people's lives. Forgive me, my venting and getting personal, but this forum is for that.

Naturally I must contain myself and remain diplomatic when I seek the right channels for an official complaint. I still have some Amphetamines with me. Not much. So must act faster. Ritalin = completely finished. Which is pretty bad since it helps me "think"

My grievence with this little-mind fellow is this:

* Why make me go and see my GP and then email him?

* The official letter says about a separate court of civil proceedings deciding the fate of the medicine. Not a Judge Dredd: Where he is both the Police, Jury and Prosecutor.

Again apologies for my even childish portray of events. I am not OK. I am on survival mode. I have a lump on my throat and fighting a chronic depression that began.

The withdrawal symptoms of stopping my medicine will only exacerbate things. This is breaking me as it would anyone else. Thanks for reading , any suggestions please help. Thanks

#2 Marcianna

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Posted 26 January 2009 - 05:43 PM

Good God Henry! that is terrible! This guy is clearly an ASSanine person. I can see how they are trying to moniter the drugs coming into the country, and they should be. But a letter from the doctor should have been enough. I wish I had some advice to give you. I am a big fan of find them and kick their butt, but that is probably not a good idea in your case. lol... You will have to keep us posted on this as it could be very useful to us in the future. I imagine that traveling from place to place with our medication is similar right? Especially internationally. best of luck to you. be careful.

#3 jenji

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Posted 26 January 2009 - 06:41 PM

Henry, I'm so sorry to read of your predicament and don't apologize for venting, that's what we're here for.

First of all, I would ask for his supervisor and if he contends that he is the supervisor then ask for who he answers to; everyone answers to someone and if he still jerks you around, go online, look it up and then contact that individual directly. Then again, I find my under the radar sarcastic suggestions sometimes work best in these situations, but usually only in person.

For instance:
You say: I would like to talk to your supervisor.
He says: I am the supervisor.
rinse, repeat a few times.

And then I would say as if he were kidding, not threatening in any way, almost with a chuckle and a grin:

oh, come on now, even the President of The United States answers to the people.

In fact I used this once on a passive-aggressive control freak at a previous insurance company. It worked like a gem in that I finally talked to someone else, but I'm sure that's quite a rarity. Sometimes you have to dumb yourself down to passive-aggressive level in order to allow said person to refrain from their insecure, predatory posture. It's unfortunate, but sometimes true. It's difficult to reason with this type of individual, it's like trying to explain to Hitler that Jews were above all else, human beings; like trying to make sense out of nonsense, they just won't get it no matter how reasonable and sensible the particulars are.

The point is this: you don't have to deal with him, find his superior. And then with that individual, use analogies like keeping insulin from a diabetic. And remember that you are not crazy; you are not neurotic, although you may feel that way, not only from years of abuse via family, doctors, authority et al., but b/c your meds are wearing off in a very big way, which makes everything magnified and urgent in and of itself.

Also, although I suspect this jerk off has rationalized that he is right (at first they may know they're wrong, however a passive-aggressive personality can quickly rationalize that wrong to become right with no memory of the former), it sounds as though you're getting a bit of gender bias. You know, be a tough man; stop whining; man up. Well, even the toughest man cannot conquer a neurological disorder that literally switches the brain off whenever it sees fit, umkay? However, like you said, this dimwitted douche bag (that's all I could come up with and as a highly educated individual, that says alot about this particular douche bag) probably hasn't picked up a book with any significant content in it other than naked women and how to become a passive-aggressive douche bag in decades.

Good luck and keep us posted.

jenji

#4 Henry G

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Posted 26 January 2009 - 07:34 PM

I don't deal with him directly anymore. It will be other channels.

Because psychopaths enjoy seeing other suffers, it is a kick.
Sure he may rationalize it - that he is not - but trust me he is.
, and also have to trust my instinct - this guy is a psychopath.

I know them. I can tell them apart. That is another long story.
But I've trainned myself to detect them.

Psychopaths don't have to necessarily murder people.
What they suffer from is a psychological condition. God knows might be even neurological. They are everywhere. I think the stat is 1 in 100. When you cross their path, you wish you hadn't.

The best way to deal with psychopaths is not to deal with them.
They suck energy from people and thrive on it. They are pure egos.
You are not dealing with a human, but a semi-human / half-animal.

Obviously I will take this threw all channels of complaints. I owe it to others, anyone really. Thickos like that should not be in a position to make decisions
over the lives or healths of others. And I owe to myself to wipe this guy and the grievance he caused out of my mind.

But unfortunatelly the situation will remain. I will be out of meds. My future looks uncertain. I can live without meds but it wouldn't be life it would be strict vegetating. All projects I've accomplished, all meetings I've attended was because of those medicines. What is pretty hard (as all of you know) will become harder.

I am tired.

#5 Henry G

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Posted 26 January 2009 - 08:33 PM

QUOTE (jenji @ Jan 26 2009, 11:41 PM) <{POST_SNAPBACK}>
Henry, I'm so sorry to read of your predicament and don't apologize for venting, that's what we're here for.

First of all, I would ask for his supervisor and if he contends that he is the supervisor then ask for who he answers to; everyone answers to someone and if he still jerks you around, go online, look it up and then contact that individual directly. Then again, I find my under the radar sarcastic suggestions sometimes work best in these situations, but usually only in person.

For instance:
You say: I would like to talk to your supervisor.
He says: I am the supervisor.
rinse, repeat a few times.

And then I would say as if he were kidding, not threatening in any way, almost with a chuckle and a grin:

oh, come on now, even the President of The United States answers to the people.

In fact I used this once on a passive-aggressive control freak at a previous insurance company. It worked like a gem in that I finally talked to someone else, but I'm sure that's quite a rarity. Sometimes you have to dumb yourself down to passive-aggressive level in order to allow said person to refrain from their insecure, predatory posture. It's unfortunate, but sometimes true. It's difficult to reason with this type of individual, it's like trying to explain to Hitler that Jews were above all else, human beings; like trying to make sense out of nonsense, they just won't get it no matter how reasonable and sensible the particulars are.

The point is this: you don't have to deal with him, find his superior. And then with that individual, use analogies like keeping insulin from a diabetic. And remember that you are not crazy; you are not neurotic, although you may feel that way, not only from years of abuse via family, doctors, authority et al., but b/c your meds are wearing off in a very big way, which makes everything magnified and urgent in and of itself.

Also, although I suspect this jerk off has rationalized that he is right (at first they may know they're wrong, however a passive-aggressive personality can quickly rationalize that wrong to become right with no memory of the former), it sounds as though you're getting a bit of gender bias. You know, be a tough man; stop whining; man up. Well, even the toughest man cannot conquer a neurological disorder that literally switches the brain off whenever it sees fit, umkay? However, like you said, this dimwitted douche bag (that's all I could come up with and as a highly educated individual, that says alot about this particular douche bag) probably hasn't picked up a book with any significant content in it other than naked women and how to become a passive-aggressive douche bag in decades.

Good luck and keep us posted.

jenji



Hi jenji

I think this is for me, others and everyone else.

I believe it would be good therapy if we never put our own selves down. I know I did.

Put it this way. We are simply wonderful really.
And given a chance we would do lots of good things.
And our chance will come one day (hopefully soon).

I know I posted some zany things previously. Some even arrogant things. Some things easy to feel guilty later on and justify.

But I believe it is a bad habit for ourselves.

No need to go back and delete a post.

But then not necessarily follow my style - of post first, and read it later smile.gif

I do that. Because, even with N, I don't want to wait for that rare opportunity where I can express myself perfectly and clearly. Where I won't say something that: Oh dear, others may read this the wrong way.

I think it's important to bring it all out. And if under some N-spell or something, you may fear others will think of you as silly or wrong .. ah really - who cares. We shouldn't.

I wish I had been a little bit bolder on my opening thread. You know with *balls*. Sure freaking out - but balls, anger, before injustice.

But even that now. I've posted. So who - who cares.

People got the gist. We trust each other and share a common trait. Maybe to others we should explain ourselves better. But the more I read other people's thread, I see a common set of thoughts - ......... uh oh ....... can;t think no more. Hate when that happens.

I will post it anyway - instead of deleting all the initial work. Hugs to all. THanks for the support.

#6 chimbakka

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Posted 26 January 2009 - 09:55 PM

QUOTE (Henry G @ Jan 26 2009, 06:33 PM) <{POST_SNAPBACK}>
Hi jenji

I think this is for me, others and everyone else.

I believe it would be good therapy if we never put our own selves down. I know I did.

Put it this way. We are simply wonderful really.
And given a chance we would do lots of good things.
And our chance will come one day (hopefully soon).

I know I posted some zany things previously. Some even arrogant things. Some things easy to feel guilty later on and justify.

But I believe it is a bad habit for ourselves.

No need to go back and delete a post.

But then not necessarily follow my style - of post first, and read it later smile.gif

I do that. Because, even with N, I don't want to wait for that rare opportunity where I can express myself perfectly and clearly. Where I won't say something that: Oh dear, others may read this the wrong way.

I think it's important to bring it all out. And if under some N-spell or something, you may fear others will think of you as silly or wrong .. ah really - who cares. We shouldn't.

I wish I had been a little bit bolder on my opening thread. You know with *balls*. Sure freaking out - but balls, anger, before injustice.

But even that now. I've posted. So who - who cares.

People got the gist. We trust each other and share a common trait. Maybe to others we should explain ourselves better. But the more I read other people's thread, I see a common set of thoughts - ......... uh oh ....... can;t think no more. Hate when that happens.

I will post it anyway - instead of deleting all the initial work. Hugs to all. THanks for the support.


i agree with the not editing posts... some of the meaning gets lost, even if it's a meaning only a few can see

besides, most of the time we are too bloody tired to turn on the computer, let alone read posts and then write one or two.

im careful in my own life to chose words so they come out wiht my meaning but no way of someone interpreting it wrong and getting all pissy, at least when i need to (work, etc)
then again i also use my words carefully so that you can read between the lines and get the offensive gyst LOL

where was i?
oh
well as you may have noticed, many of my posts can be a little strong. sometimes i ramble on angry rants to make myself feel better, sometimes I "preach" about health stuff because if it's important info I can share i do so to try and help. sometimes, well sometimes i just don't make any f-n sense but i hit post anyway.
my point?
i really don't give a *BEEP* how any of you see me
I care about all of you, and worry when you are sad, and happy when you have good days
but if you think this or that, welli know who I am, and im not worried about who you think i am

ok realllly to the point, people will get what you are saying, and people wont. those who take offense dont get it so be it, those who get it even when its jumbled or what not well they are the ones to hold close etc

so ya, it's cool i get what you are saying and im sorry you are in a realy *BEEP* spot right now
is there any way you can get them to resend you some drugs and hopefully that guy won't be workin that day?
or, if you have to email/call, is there anyone who can help you with that (if you are worried about your ability to reason with terrorists to an effective degree?)

i hope you can figure something out. if it does take a long time hang in there... just remember that how *BEEP*ty you feel is a temporary situation (hopefully a shorter than long one, but temporary nonetheless). Think back and remember how it IS possible to feel somewhat "normal" and you will feel that way again.

when i have crappy days and i seem like its never going to end (at work, with health, hell anytime) that stupid thing from finding nemo gets stuck in my head: dori singing "just keep swimming just keep swimming...." haha it used to annoy me but now it actually works.

hopefully in all that you managed to find something substantial/significant to make it worth the time you spent reading...

#7 dogdreams

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Posted 26 January 2009 - 10:15 PM

QUOTE (Henry G @ Jan 26 2009, 04:34 PM) <{POST_SNAPBACK}>
Psychopaths don't have to necessarily murder people.
What they suffer from is a psychological condition. God knows might be even neurological. They are everywhere. I think the stat is 1 in 100. When you cross their path, you wish you hadn't.


Boy you said it. I used to live with one, so I know the drill well. It started out so nicely because psychopaths are good at hiding their true intent and pretend to be super nice to lure people in so they can manipulate them. By the end of my stay renting a room in this house when I was in college, I felt I was lucky to get away with my life. The situation was totally demented. Ironically, this person preached exactly the opposite of what she practiced. She'd preach about peace, love, and the benefits of consensus and the evils of "power over." Well, what she really meant was she wanted everyone to peacefully agree with whatever she said and not put up a fight. Now I know better.

I coined the term "hippie-crite" for this twisted sort of personality. Eugene, OR has tons of them...people who plaster their cars with 'peace' bumper stickers and Tibetan prayer flags, and then cut you off in traffic and give you the finger 3 times. You know the type. rolleyes.gif

I think this guy had you jumping through hoops not only to exert power over you, but also to blow you off. He probably figured you'd get tired of trying and give up, but of course that's not true.

I wish you luck in trying your other channels. Hopefully this guy doesn't pull too much rank around the office. dry.gif

I heard a quote the other day that you might appreciate: "I would rather meet a mother bear in the woods who's been separated from her cubs than meet a fool in his silliness."

#8 Henry G

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Posted 26 January 2009 - 11:15 PM

QUOTE (chimbakka @ Jan 27 2009, 02:55 AM) <{POST_SNAPBACK}>
i agree with the not editing posts... some of the meaning gets lost, even if it's a meaning only a few can see

besides, most of the time we are too bloody tired to turn on the computer, let alone read posts and then write one or two.

im careful in my own life to chose words so they come out wiht my meaning but no way of someone interpreting it wrong and getting all pissy, at least when i need to (work, etc)
then again i also use my words carefully so that you can read between the lines and get the offensive gyst LOL

where was i?
oh
well as you may have noticed, many of my posts can be a little strong. sometimes i ramble on angry rants to make myself feel better, sometimes I "preach" about health stuff because if it's important info I can share i do so to try and help. sometimes, well sometimes i just don't make any f-n sense but i hit post anyway.
my point?


I personally never noticed such a thing. I mean like most people we skim through other people's post. We only take time to read our own posts when revisiting our site (a number of times!). So it could well be we are creating a monster of ourselves when other never saw one.

Maybe it is a common trait to all of us?
Do we worry about the same very thing?

Do we suppose others are thinking ill of us - when that is not happening at all (even on the contrary!)

I can see where that could come from.

Living or being amongst people who are difficult. Difficult to bridge. THere's a block - specially on important things to us: such our health.

Living on edge is not nice.

QUOTE
i really don't give a *BEEP* how any of you see me
I care about all of you, and worry when you are sad, and happy when you have good days
but if you think this or that, welli know who I am, and im not worried about who you think i am


That is more applicable to others - the outside world. Because they are the ones to quickly misinterpret things, judge things, condemn.

Oh God! Even I felt antipathy to a guy. Thought he was proud, aloof and cold. And later was told he suffered from a rare neurological condition known as Narcolepsy.

Sometimes it is not even their fault also. Which is why advocating Narcolepsy is very important. Find out first - before you judge. Unless his actions are really against you - attacking you, now that is different and inexcusable.

QUOTE
ok realllly to the point, people will get what you are saying, and people wont. those who take offense dont get it so be it, those who get it even when its jumbled or what not well they are the ones to hold close etc

so ya, it's cool i get what you are saying and im sorry you are in a realy *BEEP* spot right now
is there any way you can get them to resend you some drugs and hopefully that guy won't be workin that day?


1. I am appealing.

I have 45 days to do that. It will be decided by an Impartial Review.

2. I am issuing a complaint.

Since his action and decision departs from what the original letter said.

Since he said I should go to my GP giving me hope saying she should email him.

Since another person from the same body, said I should be entitled to the medicine no problem. Hence had it been another officer - would my meds be released?

The decision was then subjective not objective.
And he was clearly no professional on such matters.
He was thick (by the way he spoke on the phone)


QUOTE
or, if you have to email/call, is there anyone who can help you with that (if you are worried about your ability to reason with terrorists to an effective degree?)


I will ring central office and see who can help.

It would help if I can find a human being. Even if the decision is no, I should have been treated at least professionally (if humanely is too much to ask for)

QUOTE
i hope you can figure something out. if it does take a long time hang in there... just remember that how *BEEP*ty you feel is a temporary situation (hopefully a shorter than long one, but temporary nonetheless).


Not being negative but realistic. So can plan ahead.

It will be LONG.

Over 1 month at the very least.
Or indefinitely.

QUOTE
Think back and remember how it IS possible to feel somewhat "normal" and you will feel that way again.


What I wasn't looking forward was the "cold turkey". I've been overdosing on an over-the-counter anti-depressant.

I mean, you shouldn't take more than two capsules - the stuff is powerful.
I've almost finished the bottle already = 60 capsules.

That is why stuff like that. Psychos / Thickos like that are dangerous.
It can drive people to willing or unwilling damage themselves 20x worse than the "CLASS B DRUGS" itself.

In my view. Dickheads like that old fellow, the Officer - should be in jail really.

I am in survival mode, on the edge.

Then starving for 24 hours in order to stay more awake.

My mother is freaking out in Brazil, but I can't tell her those things. She sends me my medicine over the post.

I require energy to fight. That is the Catch 22. Would help if I had the meds. I told him I won't be even be able to write a letter properly. He is probably counting on that now.

QUOTE
when i have crappy days and i seem like its never going to end (at work, with health, hell anytime) that stupid thing from finding nemo gets stuck in my head: dori singing "just keep swimming just keep swimming...." haha it used to annoy me but now it actually works.

hopefully in all that you managed to find something substantial/significant to make it worth the time you spent reading...


I was enjoying build a website for a health service.
I was enjoying just that.

I was enjoying building a website for free - a portal for Narcolepsy but in Brazil.

All things that require meds.
Today I tried for the first time without the Rit. I mean, sure I probably can do it in the very very long run but at 1/4 of the pace. 1/4 of the power. 1/4 of the energy.

The nasty thing about N is not the "attack". Other people have a romanticized view on Narcolepsy. How wonder a disease that makes you sleep blissfully all the time.

My N comes as a nausea feeling. I feel horrid.
And quite embarrassingly I look horrid too!
I look green with black eyes - people go: Yuck!

It feels like I drank something rotten, like bad wine, spirit mixed with a bad depressant pill. It feels like I've been poisoned. It's a lethargy, extreme drowsiness that does not make me sleep, just make me gaga, a droolling zombie.

THe meds relieve that feeling most of the time.

Because When I am weak, people attack. It's an opening.

I need the meds to defend myself.
They protect me. Ah man, seriously .. I tried. I tried survival, be the best at something and even that never worked.

I will wait. The very thing I enjoy: being active and helping others when I can, I am being denied. Anger is my only channel left to harness.

#9 Henry G

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Posted 26 January 2009 - 11:22 PM

I wish I had aperson here in England to help me write that letter of appeal.

I am bad at things like that when with N. I end up never doing it .. and losing my rights

#10 dogdreams

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Posted 27 January 2009 - 01:19 AM

QUOTE (Henry G @ Jan 26 2009, 08:22 PM) <{POST_SNAPBACK}>
I wish I had aperson here in England to help me write that letter of appeal.

I am bad at things like that when with N. I end up never doing it .. and losing my rights


I'm not in England but I'm good at writing letters. I used to be a Legal Assistant.

#11 Henry G

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Posted 27 January 2009 - 01:37 AM

thanks. I must push my self. Also because I would love to (should I get my meds from appeal) email the officer guy with the good news.

dogdreams thanks.

I will be thinking for the next hour or so; what points to add and so on. And we can start composing.

A skeleton draft:

1. Explain why I am writing (and attach copies of the email conv. and the original letter).
Also important: Add my details and the Ref.No of the letter.

2. Explain what is Narcolepsy. Explain (even refer to) the UK Narc Assoc. Since they have an explanation of use of Amphetamines and Ritalin for patients.

3. Explain why I believe it is vital I get these soon. For example I miss appointment and already have missed on with a medical worker.

4. Explain I've been using the meds for the last 6 years and have always behaved responsibly with them. Should they pose a danger I wouldn't be prescribed by specialists for so long. My doctor in Brazil is the top in N.

5. (Tricky now). Explain I was diagnosed in Brazil with Narcolepsy but had to repeat the diagnosis once again in the UK. On both counts I was diagnosed. The only downside to that - is the conflict of UK vs Brazil treatment. The argument being OK - if Rit/Amph is so good why weren't you prescribed them over here? My recollection at the time was that: I thought I should give their recommendation a go. And it may look bad if I say: I wasn't very satisfied with the treatment over here so decided to stick with Brazil's. I am after all a dual citizen, with dual nationality.

6. I shou;dn't be personal on the letter. And it is not a letter of complaint about being unfairly treated. That will be another letter to another department.

7. Bundle some cash with the letter. Say $1000? You never know, it might work.

Nite-nite.

#12 dogdreams

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Posted 27 January 2009 - 02:16 AM

What you do with your $1000 is your business...I don't want any part of that, but I will be happy to help you draft a letter based on your outline.

#13 Henry G

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Posted 27 January 2009 - 04:24 AM

QUOTE (dogdreams @ Jan 27 2009, 07:16 AM) <{POST_SNAPBACK}>
What you do with your $1000 is your business...I don't want any part of that, but I will be happy to help you draft a letter based on your outline.



If I had $1000, I would keep it to my self and fly to Brazil. All problems would be solved.

So yes it was a bad joke ........ smile.gif

#14 dogdreams

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Posted 27 January 2009 - 09:58 AM

Oh, I see. Sorry. tongue.gif

#15 Henry G

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Posted 29 January 2009 - 03:21 AM

QUOTE (dogdreams @ Jan 27 2009, 02:58 PM) <{POST_SNAPBACK}>
Oh, I see. Sorry. tongue.gif


Ok jokes aside. I wrote a letter. I was feeling desperate at the time of writing (how can you not be?) - so it may look to much.

I hope it is OK. Thing is strong emotions override and can taint the objective. So I will paste here for any more sober review.

Thanks again. (And no I shouldn't apologize for truly freaking out)

Here's the letter. Let me know what you think. But I want to send as soon as possible. What is delaying me I have no INK in the PRINTER. Another stumbling block and no meds!

=======================================================


Thursday, 29th January 2009



Ref: 123456789



Dear Sir or Madam,



I am writing to you following the advice of Mr. X Y Z, Officer of HM Revenue & Customs and the Notice of Seizure of Controlled Drugs letter received on 13/01/2009 and of Reference: 123456789.

The medicines within the package are issued by a leading Hospital in Sao Paulo, Brazil. They are prescribed by a neurologist, and specialist in Sleep Studies and Narcolepsy - whom I consult about roughly twice a year when possible. My mother pays for the ticket.

My mother collects the medicine on my behalf and sends them to me. She ensures all prescription and documents are contained inside the package.

I have dual nationality both British and Brazilian. I have been diagnosed as suffering from Narcolepsy both in the UK and in Brazil.

I was referred to a specialist in London, but after several visits I didn't feel too pleased at first. Their own combination of medicines were making me sicker. So I decided to continue to receive treatment and medicines from Brazil instead, visiting the doctors over there periodically whenever I could. I believed I had the right to choose.

I have recently requested my current GP to be referred to a Narcolepsy specialist in the NHS once again.

But these medicines that have been seized from Brazil - I need them urgently so I can ensure I can make it to that appointment.

Since the confiscation of my medicine, I have already missed a medical appointment here, which I had been looking forward to, for over one year.

I have been receiving these medicines (Ritalin and Amphetamines) from Brazil regularly.

We were advised at the time that we were following the correct procedures. That every shipment sent should contain the senders address (my mother's) and doctors letters and always copies of officially endorsed prescriptions.

I apologise if I had been misinformed I did not know.

Even recently after phoning a HM Customs Office, I did enquire about the procedures. And the person on the phone said that it didn't matter whether the substances were controlled or not if they are for my personal use and documents are attached then I do have the rights to that medication.

Those were the recommendation of an HM Customs operator. I cannot prove this, as I do not have the name of the person. But it does show how very easily one could embark on a wrong assumption.

About my Narcolepsy

Narcolepsy is an incurable neurological condition whereby the sufferer experiences extreme sleepiness, drowsiness or fatigue throughout the day.

The common symptoms of Narcolepsy are:

  • Excessive Daytime Sleepiness
  • Hypnagogic Hallucinations
  • Sleep Paralysis
  • Cataplexy
Sleep laboratory studies where the patient is wired and brain patterns are analysed during sleep and multiple awakenings confers a diagnosis. These are very expensive tests and are named as: Multiple Latency Test and Polymnosonography.

The Narcoleptic Association in the UK has an informative section on both drug use and common symptoms. Their website address:


Those who do suffer from Narcolepsy are often prescribed a combination of medicines in order to reduce the various symptoms. These medicines are often stimulants such as amphetamine or amphetamine-like substances notably: Ritalin and Amphetamines.

These are essential to the treatment of a Narcoleptic patient and should never be stopped, specially abruptly. It hampers normal faculties, it becomes debilitating.

Please: I need those medications. Medication which has been professionally sanctioned and responsibly prescribed.

Please: I am a patient following a medical treatment, not a drug addict. I have asked to seek treatment here in the UK again. But I need my medicine in the mean time. These are not recreational drugs, they are medicines endorsed by a Hospital Pharmacy and make part of my treatment.

My GP is aware of my condition

Unfortunatelly she cannot prescribe me those stimulant medicines. Only certified specialists can do that.

She is also aware of my shipment has been confiscated.

She has pleaded on my behalf by emailing the Officer responsible. Should you need to contact her again, her name is:

Dr A B C - GP
D F Z Surgery
London XY15 YPP
Tel: 020 1234 5678

She is also aware of my twice confirmed diagnosis of Narcolepsy.

I had an appointment with my GP (under the Officer request). And she did email him as instructed. She pleaded to release the medicines but the Officer decided the shipment should be apprehended.

He emailed me saying I have the right to appeal, and so am writing this letter.

I am attaching 3 copies of medical documents to support my case.

Should you request a more recent letter. I will get my current neurologist in Brazil to write you one.


I will stop my treatment from Brazil if that is what is required from me from now on. I will be seeking future treatment here instead.

But I need those medicines I need them urgently. So I can function. So I can honour appointments and commitments. So that my condition stops from deteriorating.


Thank you for your attention and consideration,


Yours sincerely,


Henry Gilbert


#16 chimbakka

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Posted 29 January 2009 - 02:23 PM



Thursday, 29th January 2009



Ref: 123456789



Dear Sir or Madam,



I am writing to you following the advice of Mr. X Y Z, Officer of HM Revenue & Customs, in response to the Notice of Seizure of Controlled Drugs letter received on 13/01/2009, of reference: 123456789.

The medicines within the package are issued by a leading hospital in Sao Paulo, Brazil. They are prescribed by a neurologist and specialist in sleep studies and narcolepsy with whom I meet about twice year regarding my condition.
[/size]

My mother collects the medicines on my behalf and sends them to me. She ensures all prescriptions and documents are contained inside the package. We were advised that this is the correct method to mail such packages; every shipment contains the address of the sender as well as letters from the doctor and copies of officially endorsed prescriptions. I have been recieving my medication (Ritalin and amphetamines) from Brazil via this method regularly, with no problems up until this point. Upon learning of the confiscation of this last shipment, I phoned the HM Customs Office and was told by an officer there that because the medications are for my personal use and all necessary documentation was included there should have been no problem with this delivery.

I have dual nationality both here and in Brazil. I have ben diagnosed by two specialists with a neurological condition, and the medications I have been recieving are the only treatment that has shown to be effective for me. Without them I am unable to leave my home, go to work, or function effectively in society. I realize that these medications can be obtained here by prescription, and am currently awaiting an appointment with a specialist to do just that. My GP has refferred me to such a specialist, but without my medication I will be unable to function until then, and quite possibly will be physically unable to go to this appointment. Not only will I likely miss this appointment, but I am currently missing work and other important commitments and obligations. Specifically, I have already missed one appointment that was scheduled over 12 months ago, one which I cannot reschedule in the near future.
[/color]
[color="#000000"]I have recently spoken with the officer who confiscated my package, and was told that my doctor should write to him and this would be resolved. She has, and it has not yet been resolved. Should you need to contact her again, here is her contact information:
Dr A B C - GP
D F Z Surgery
London XY15 YPP
Tel: 020 1234 5678

She is also aware of my neurological condition and of the pressing need for this situation to be resolved so that I can resume my medication routine. She can also inform you of the problems associated with stopping the medications I am taking abruptly: the serious side effects this can cause, and the negative effects this will have, and has started to have, on my condition.

The officer I last spoke with, and to whom my doctor wrote, emailed me stating I have the right to appeal, and so am writing this letter. I am attaching 3 copies of medical documents to support my case. Should you require a more recent letter, my current neurologist in Brazil would be happy to supply one.

[size="1"]
If there is any more information or further action I need to take to reasolve this issue as quickly as possible, please let me know. Also, if you could please advise me of the correct procedure for shipping such medication from Brazil in the future I would greatly appreciate it, and will do everything I can to ensure this mistake does not happen again.

Thank you for your attention and consideration,


Yours sincerely,


Henry Gilbert
[/quote]

#17 Henry G

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Posted 29 January 2009 - 02:54 PM

Brilliant! THanks!

#18 dogdreams

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Posted 30 January 2009 - 01:53 AM

QUOTE (Henry G @ Jan 29 2009, 11:54 AM) <{POST_SNAPBACK}>
Brilliant! THanks!


Oh good someone helped. I'm really sorry I haven't gotten to it...I've been working long hours at work and the family has been overly demanding at home. I hope Chimbaka's letter was sufficient.

#19 Henry G

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Posted 30 January 2009 - 03:08 AM

QUOTE (dogdreams @ Jan 30 2009, 06:53 AM) <{POST_SNAPBACK}>
Oh good someone helped. I'm really sorry I haven't gotten to it...I've been working long hours at work and the family has been overly demanding at home. I hope Chimbaka's letter was sufficient.


I need to revise his letter as they are somethings I need to change - for example I don't go to work - as I don't work sad.gif

So I will do that .. and you have the entire weekend to revise (if you have time of course)

But no pressure.

see you soon.

#20 Henry G

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Posted 30 January 2009 - 03:28 AM

Dear Sir or Madam,


I am writing to you following the advice of Mr. X Y Z, Officer of HM Revenue & Customs, in response to the Notice of Seizure of Controlled Drugs letter received on 13/01/2009, of reference: 123456789.

The medicines within the package are issued by a leading hospital in Sao Paulo, Brazil. They are prescribed by a neurologist and specialist in sleep studies and narcolepsy with whom I meet about twice year regarding my condition.

My mother collects the medicines on my behalf and sends them to me.
She ensures all prescriptions and documents are contained inside the package.
We were advised that this is the correct method to mail such packages; every shipment contains the address of the sender as well as letters from the doctor and copies of officially endorsed prescriptions.
I have been receiving my medication (Ritalin and amphetamines) from Brazil via this method regularly, with no problems up until this point.
Upon learning of the confiscation of this last shipment, I phoned the HM Customs Office and was told by an officer there that because the medications are for my personal use and all necessary documentation was included there should have been no problem with this delivery.

* Note this might imply things differently. What I want to say is that I spoke with (could have been an operator or a clerk or a nobody) when I phoned a kind of central HM Customs helpline(?). And that person gave those views. I am not sure whether the person was an HM Customs Officer himself .. so this one is tricky *

I have dual nationality both here and in Brazil. I have ben diagnosed by two specialists with a neurological condition, and the medications I have been receiving are the only treatment that has shown to be effective for me. Without them I am unable to leave my home

* but I don't go to work *

or function effectively in society.

I realize that these medications can be obtained here by prescription, and am currently awaiting an appointment with a specialist to do just that. My GP has refferred me to such a specialist, but without my medication I will be unable to function until then, and quite possibly will be physically unable to go to this appointment.

Not only will I likely miss this appointment, but I am currently missing work * I don't work *

and other important commitments and obligations. Specifically,

I have already missed one appointment that was scheduled over 12 months ago,

* ok, the appointment wasn't scheduled over 12 months ago, but I have been pressing for a chance to see this person (namely a council) for a long time possibly a year. So I need to rephrase. Suffice to say, after my insistance and finally my doctor referring me to her. I miss the appointment because I wasn't well *


one which I cannot reschedule in the near future.

* they should be able to reschedule in the near future. Unlike specialist referrals I believe once the doctor feels it's ok to see a Surgery Councillor . then it's a matter of weeks or a maximum of 1-2 months to get it rescheduled *




I have recently spoken with the officer who confiscated my package, and was told that my doctor should write to him and this would be resolved. She has, and it has not yet been resolved. Should you need to contact her again, here is her contact information:
Dr A B C - GP
D F Z Surgery
London XY15 YPP
Tel: 020 1234 5678

* What I wanted to put across is that the officer wasted my time. But perhaps shouldn't here. No point in me being subtle and trying to prove he possibly did something wrong acting as the Judge and Jury. Maybe he has the right, maybe he doesnt. I will need to phone the HM Customs Office sometime and find that out. If he was acted wrongly then go for a formal complaint - a different section.

So therefore I will drop this subtle-blaming part. And just remain objective:

1. I have spoken with the officer.
2. He told me my doctor should email him back (not write I think that is importand in case the Commissioner request the electronic communication between them)
3. She did
4. But he felt I wasn't worthy (put in a better phrase of course)

*


She is also aware of my neurological condition and of the pressing need for this situation to be resolved so that I can resume my medication routine.

She can also inform you of the problems associated with stopping the medications I am taking abruptly: the serious side effects this can cause, and the negative effects this will have, and has started to have, on my condition.

* She probably can't. She is a GP (Family Doctor) and in the UK , GPs have very little knowledge of medicine and general medical knowledge.

So that part , will need to rethink again

*



The officer I last spoke with, and to whom my doctor wrote, emailed me stating I have the right to appeal, and so am writing this letter.

I am attaching 3 copies of medical documents to support my case. Should you require a more recent letter, my current neurologist in Brazil would be happy to supply one.

If there is any more information or further action I need to take to reasolve this issue as quickly as possible, please let me know.

Also, if you could please advise me of the correct procedure for shipping such medication from Brazil in the future I would greatly appreciate it, and will do everything I can to ensure this mistake does not happen again.

Thank you for your attention and consideration,


Yours sincerely,


Henry Gilbert

--------------------------------------------------------------------


Final notes;

Legally and apparently I am writing to a Commissioner.

BUT

It will be a Jury that will decide on a verdict


Whilst it is very proper to dilute the my frantic tone at the time.
I want that my desperation still goes across.

It is a plea.

And I believe - as if - I was talking before a panel of jury, defending my case.

I will be hoping to get a final draft before Monday

Thanks very much for all your help in this.