Hi, I have completed my first week of college (after a two year absence), and every day I went to bed earlier than the first, and took a longer nap.
Following a sleep schedule, taking my medicine, it doesn't seem to be working enough. I can go to class, and then I'm done for the day.
I got a severe sore throat on Friday, and since then I haven't been able to sleep longer than the exact halflife of Xyrem that I take, giving me maybe six hours (usually less), and I can hardly nap. I spent the weekend staying in, doing homework, and trying to nap/sleep in.
I feel like sleeping extra is giving in to the Narcolepsy. I'm also not sure how I'm supposed to function with Narcolepsy and a severe cold! I'm seeing my doctor next week, but I just want to know how to get through this week. I've already missed out on several things I wanted to do this weekend, I don't want my whole life to be Homework, Sleeping. I have to walk fifteen minutes to class, uphill, and then climb stairs and go five to ten minutes between classes so I am getting enough excercise.
Caffeine has no effect on my cognition nor wakefulness/sleepiness.
I'm not really hungry because I don't feel good, so I'm eating high protein food like eggs or protein shakes and drinking lots of water.
What is the deal?! I'm losing the battle here!
Falling Off The Narc Wagon
2 replies to this topic
Posted 20 January 2009 - 04:24 AM
Hang on and don't give up. You sound like you're going through quite a transition and the stress has taken its toll on you. Especially since you are fighting a cold, too. You may need to settle down into your new school routine for a little while before you get back to feeling like you're on top of the sleep thing. I know how rough it can be at first going back to school after taking a break for N and it does get easier. You will adjust and maybe your doctor can help you find ways to get there.
Keep us posted!
Keep us posted!
Posted 25 January 2009 - 05:46 PM
When my daughter's narcolepsy symptoms are worse (or maybe when the medication doesn't seem as effective as usual), her doctor usually asks what else is going on. A bad cold makes most people feel tired & wiped out. So does starting back to school. Now add the narcolepsy & it's no wonder you are struggling. Her doctor also reminds her that there is no treatment for narcolepsy that will take away all of the symptoms, especially always feeling sleepy. His treatment goal is for her to take enough medication so she can USUALLY function in spite of the narcolepsy. I hope you feel better soon.