caitlion

Tucson Support Group

10 posts in this topic

I have been interested in starting a support group in Tucson for a while... now that I actually have some free time I would really like to do this. Is there anyone that uses these message boards that lives in Tucson?

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I have been interested in starting a support group in Tucson for a while... now that I actually have some free time I would really like to do this. Is there anyone that uses these message boards that lives in Tucson?

I live in Tucson and I am interested in your idea. Ive been diagnosed 20 yrs. never met anyone else with narcolepsy.

Debbie

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QUOTE (caitlion @ Jan 17 2009, 02:22 PM) I have been interested in starting a support group in Tucson for a while... now that I actually have some free time I would really like to do this. Is there anyone that uses these message boards that lives in Tucson?

I live in Tucson and I am interested in your idea. Ive been diagnosed 20 yrs. never met anyone else with narcolepsy.

Debbie

hi my name is kim i would love to meet other pepole with narcolepsy

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hi my name is kim i would love to meet other pepole with narcolepsy

My name is Debbie, do you live in Tucson?

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You all mite want to enter your support group over at bitesizelife.com

Those folks are trying to collect a database of all N support groups

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My name is Debbie, do you live in Tucson?

yes debbie I do Live in tucson, we should meet sometime.rolleyes.gif

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If you need assistance in starting a support group. NN can offer some guidance. Please feel free to reach out to NN's staff or board of trustees.

-Mee

yes debbie I do Live in tucson, we should meet sometime.rolleyes.gif

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Hello Tucson!

If you are suffering from narcolepsy and experience Excessive Daytime Sleepiness (EDS) as a result, you may qualify for a Research Study in the Tucson area. The study is assessing the safety, tolerability and effectiveness of a potentially new EDS treatment. If you are interested and/or would like to hear more about the research opportunity, please contact me through www.narcolepsystudy.com. The website has additional information and a self-assessment to find out if you may potentially qualify for the study. If you would like to obtain materials with information about the study, please call 1-866-497-5211 and I will be able to assist you with your questions and additional information.

Wish you all the best and hope to hear from you soon!

Warm regards,

The Narcolepsy Study Team

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QUOTE (caitlion @ Jan 17 2009, 02:22 PM) I have been interested in starting a support group in Tucson for a while... now that I actually have some free time I would really like to do this. Is there anyone that uses these message boards that lives in Tucson?

I live in Tucson and I am interested in your idea. Ive been diagnosed 20 yrs. never met anyone else with narcolepsy.

Debbie

hi caitlion my name is kim, sorry it took me so long to wite back i would like to meet

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You all mite want to enter your support group over at bitesizelife.com

Those folks are trying to collect a database of all N support groups

I dont understand your comment and your concern - are you saying that at bitesizelife they do not collect support group info? Please explain your comment.

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