Hi there! I was diagnosed with Narcolepsy about 8 or 9 years ago, just before Provigil came out, so I started on Ritalin. (Oh man, I hated that stuff, and was really glad when my insurance started covering Provigil!) One year after I was diagnosed, so was my then 14 year old son. His sleep study was almost identical to mine. He took Ritalin for a while, and also hated it. He's refused Provigil. Now at almost 22 he doesn't believe he has N. Never mind that he falls asleep EVERYWHERE, and I bet if he had a sleep study done now he'd be on the top end of the Narc. scale. But, I'm just the mom, what do I know?
I took Provigil off/on for several years, depending upon what insurance I had. It works well for me most of the time. I still have to take a nap, but not a 4 hour one! LOL No, really I'm like a more normal person and a 10-20 minute nap will help me a great deal.
I do have trouble going to bed at night. Well...not the sleeping part..the GOING to bed part. I can stay up till all hours doing stupid stuff. But if I tell myself, "Gee, it's 11:00. I should go to bed." I will always fall asleep as soon as my head hits the pillow. It's just a matter of getting my head to the pillow.
The only other side effect I have from the Provigil is if I skip a day, then the next day that I take it I have a HORRID migraine that puts me into a dark, what I wish was a sound-proof room for a couple of days. It's awful!!! But, if I remember to take it every day, I don't have this problem.
So, I've been off Provigil for about a year because I've been without health insurance. I've gotten more and more sleepy, and my husband more and more frustrated with my seeming inabilty to get anything done in the house. I mean, I'm home all day, with the youngest child in school all day, I should be able to manage to keep my house clean, right? UGH! Like the rest of you, my ambition level is about zero.
And then there is the forgetfulness.....need I say more?
So, like I started to say above, I've been off Provil for about a year, maybe a little more. Then last weekend I was cleaning out a vehicle we were selling, and what did I find? An ENTIRE bottle of Provigil!!!! Aparently I'd filled the script then....hhmmm...must have forgotten about it? Anyway, there were 45 pills in there. SCORE!!! After checking the expiration date, (got 2 more weeks go to before they expire) I've been back on for a week now, and have forgotten what it feels like to be awake.
Here's my problem. I still don't have health insurance. My sleep dr. retired last year, so I have to find a new one. I went to a new sleep clinic today to fill out forms to have my records transferred. I'll have to pay for the visit out of pocket, which I really do NOT have the money for, but man...I'm loving being awake...I want to keep the Provigil going! The last time I saw my old doctor, he said I was probably due to have my sleep study repeated. UGH...I hope the new doctor won't say the same thing. There is no way I can pay for that.
So I need to find a way to 1) pay for a visit to the sleep doc, and 2) find a way to pay for the Provigil. I DO qualifiy for our State's Sliding fee based health insurance, and had it for a couple of months till I forgot to pay the bill, and I was told I'd have to reapply. I'm also raising a daughter who is significanlty disababled and it's all I can do to keep up with her paperwork! (Ok, I did not intend for this to be a whining post!)
Any thoughts on how to get the drug paid for? Man, I can get a free mammorgram through a program here, wish I could get a sleep study! LOL
New Here, But Not To Narc.
1 reply to this topic
Posted 22 November 2008 - 09:39 AM
I don't know the answer to any of your questions, but I do hope that you can get back on your insurance-while you are awake! I know you said the expiration date was coming up on the Provigil, but they are evidently still working ok; so, I personally would not worry about that date-this is just me. I have heard many pharmaceutical representives say that the synthetic drugs would remain effective for many years, but no one really knows how long; so, they arbitarily just put one year. I think soon provigil will be able to be sold generic which should reduce the cost. Also, I think you should pat yourself on the back, you are taking care of a child with disabilities; often times while just caring for one child-without disabilities-my house was a wreck, and I did not work outside the home either. Now I do not have kids at home, and although I work; I can not imagine trying to do much of anything without medications.