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Jolting While Falling Asleep


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#21 lkcty873

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Posted 09 November 2008 - 09:20 PM

[quote name='sleepy

#22 lkcty873

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Posted 09 November 2008 - 09:35 PM

QUOTE (sleepyhead84 @ Oct 13 2008, 07:48 PM) <{POST_SNAPBACK}>
Ah so at least I am not alone. The nurse said those jolts are when the brain changes sleep stages (goes from a deeper sleep to a lighter sleep) and is probably from my apnea. But really I'm not sure. I don't think she is either. She was concerned about whether the jolt starts from my legs, which it doesn't.

I've never been struck by lightening. But it feels like I am when I get those jolts!

Sleeplesssleeper, interesting to note that my mom has MS. I should ask her if she experiences that. And my mom, she gets hypnogogic hallucinations and sleep paralysis when she naps...

Erin



OK, I'm going to try this again. It didn't work the first time. I thaught what your nurse said about changing sleep stages was interesting. I have had these jolts also, I thaught they were from apnea, but I don't have any. What I do have according to the sleep technician guy that hooked me up, I have stange Alpha brain wave activity, several times a minute. The technician showed me on the monitors. It looked like an earthquake on a seismograph, pretty cool if it wasn't my brain doing that. Anyway this alpha wave activity either woke me up completely or sent me from a deeper sleep stage back to stage one instantly. Has anyone else ever been told that?

#23 Henry G

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Posted 09 November 2008 - 09:52 PM

QUOTE (duff8 @ Oct 18 2008, 11:11 PM) <{POST_SNAPBACK}>
I think you need to focus on the initial issue, sleep apnea. Untreated sleep apnea can be dangerous. The most important part of this is to get treated for the sleep apnea. Then, and only then can the IH or N or whatever be treated. Just my two cents. My hope is that you know you are not alone.


From my little understanding - Sleep Apnea is when you gasp for air while you sleep.

And most likely unrelated to the "Jolting" being discussed.

Sleep Apnea causes Excessive Daytime Sleepiness.
But Sleep Apnea does not cause Narcolepsy
Narcolepsy is becoming more defined as a group of symptoms (ie Hypnagogic Hallucinations) due deficiency in Orexin production in the brain.

It is very possible though; for Narcoleptics to have sleep Apnea also.

But it is also possible (and in fact very common) for a person to have just sleep Apnea but no Narcolepsy at all.

That person will suffer from Excessive Daytime Sleepiness.
But if that person gets treatment - he can be at times completely cured, so bye-bye EDS forever.

The treatment for Sleep Apnea varies according to the severity.
From "sticking a tennis ball on your back" - so as to force your body to sleep on it's side.
To losing weight.
To using Breathing Machines.

But some treatments given to Narcoleptics may (and someone correct me if I am guessing wrong) exarcebate Sleep Apnea.

So say a person has Sleep Apnea, but the Doctor just read and discovered or saw a Documentary about Narcolepsy and misdiagnosis that person.

Then gives sleeping pills like Zolpidem/Ambien.
That person will carry on suffering from extreme fatigue next day, because the sleep Apnea is not tackled.

Xyrem can cause difficulty in breathing while sleeping on some people. And if the person is a primarily an Sleep Apnea sufferer - you exarcebate the problem to very dangerous levels.

Xyrem is contra-indicated for people with sleep Apnea.

#24 lkcty873

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Posted 09 November 2008 - 10:11 PM

During my road to diagnosis, I also was found to have sleep apnea, I had surgery and it was cured. I still jolt awake, and I really can't see that there is any difference in the quality of my sleep before and after the surgery (prior to provigil) but my blood oxygen stayed up after the surgery and my apnea episodes are gone. I don't ever really remember "gasping" when I woke up just the jolt thing.



#25 dogdreams

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Posted 10 November 2008 - 02:16 AM

Jolting awake isn't apnea, it's a form of mycolonus, like hiccups, and everyone gets it. it used to happen to me all the time as a kid, usually after a weird repetitive dream. I had 4 specific recurring dreams that would wake me up on alternate nights...only one per night. They were a bit abstract and repeated as precisely as computers, but this was before I'd ever heard of a computer. the most common for me was the fallling off the bike dream. The others were a lot weirder than that.

#26 jenji

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Posted 10 November 2008 - 04:36 PM

Yes, yes...I've experienced these electric jerks/jolts early into sleep/awake as well. Incidentally, I've also been jolted awake by a jerk, but we broke up long ago, so no worries. I've seen my dog, cat, friends, even my mother jolt while asleep when I was a kid, so I'm sure it's not all that unusual per se. Now, while I've never been hit by lightning, I do see lightning when I close my eyes at night--flashes, strobe like flashing--very annoying. As an artist, the images/effects/incessant dreams that stream through my head as I try to go to sleep are most helpful, however not as helpful in the -time to go to sleep and rest- department.

I find that I twitch quite a bit as well, however I'm pretty sure this is due to my uppers b/c as I was instructed to increase the dose of the stimulant, the twitching became more evident. Right now, my left forefinger twitches pretty much all day long, however it's definitely more prevalent at night while watching television etc and even more so if I'm especially exhausted, sick or run down. My thigh muscles also tend to twitch quite a bit, but at this point I rarely make note of oddities, as I'm just trying to make the best of my condition and focus on things other than what my body is or is not doing properly.

Funny story: I was riding in a friend's car over the summer and all of a sudden my friend says to me "oh my God, is your ass on fire?" I said, "actually, yes it is, how did you know that?!" And she says, "well b/c your seat warmer is on, I'm sorry I must have accidentally bumped the button." Here's the ironic part: After 15 years of enduring, searching and observing my condition and all of the oddities related to it, when I do have a symptom/feeling that's different than usual, I tend to just think, "eh, well...it's part of N and it is what it is." Of course, I wouldn't ignore something that was really out of line b/c that is quite common for those with a chronic condition to do, while it can be a dangerous thing to chalk another symptom up to N when in fact it could indeed be something more serious.

However, in this instance, I certainly wasn't going to get all bent out of shape when I was sitting there thinking in my head, "huh. my butt is totally on fire...great...okay....well, i guess my butt is just gonna be on fire now."

Very, very odd.

jenji
ps does this reply area have a spellchecker? If so, I can't seem to find the button for it.

#27 dogdreams

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Posted 11 November 2008 - 11:30 PM

Haha I've never experienced ass fire in living with N. ROTFL!

#28 judycasper

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Posted 12 November 2008 - 11:48 AM

Wow! I just came across this dialogue as I was about to post my message about “electric jolts!” But since I already wrote it, here it is:

Hi all – I was diagnosed with narcolepsy two years ago and don’t have cataplexy. However, a few weeks ago I needed to make some decisions about a lawsuit I have against someone I used to date who owes me a lot of money. So it is obviously a very stressful and emotional situation for me. Twice in one day, and six times the following evening right after I talked to my attorney, I felt what can best be described as an electrical charge in my head. It was as if I could hear and feel the charge in my brain. The “sound” was similar to the one made by an electrical transformer when it is struck my lightening or shorted-out by something else. The first few times it happened it probably lasted a second or two, the other instances were probably three seconds or so, but its hard to tell. I haven’t experienced this since those two days a few weeks ago, but I also haven’t needed to spend time thinking about the lawsuit since then either! Has anyone else experienced “electrical charges” like this? Do you think it is related to cataplexy? The only other thing I could think of is maybe a spike in blood pressure, but my blood pressure has always been fine.

Any thoughts on this are appreciated!


#29 AssociatedWithFire

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Posted 18 November 2008 - 02:13 PM

I also get the full jolts/spasms. For me it is most common when I am just falling asleep but still awake. I have insomnia kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk
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#30 AssociatedWithFire

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Posted 18 November 2008 - 02:15 PM

oh no, Im sorry I went out again. Sorry for that.

#31 dogdreams

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Posted 18 November 2008 - 06:00 PM

QUOTE (judycasper @ Nov 12 2008, 08:48 AM) <{POST_SNAPBACK}>
I felt what can best be described as an electrical charge in my head. It was as if I could hear and feel the charge in my brain. The “sound” was similar to the one made by an electrical transformer when it is struck my lightening or shorted-out by something else.



Oh I was going to reply to this days ago and then something happened to my computer and I forgot.

I get what I call "zings" that sounds just like what you described. It happened a lot if I was late for my klonopin when I took that years ago. It also happened when I started taking L-Tyrosine, but stopped after a couple of days when my body adjusted. I take L-Tyrosine to boost alertness...its supposed to help stimulate neurons. I can tell you it does!

All I can think is that it's when my neurons start to become hyperactive. It also happens if I sleep too "hard" and have too much REM. Then I hear and feel "zings" all day whenever I move my eyes. I have a co-worker that experienced the same thing when she stopped taking Paxil (tapered, of course.) It's weird for sure, but probably not harmful. It feels like an electric shock goes through my head and I hear a "zing!" You are not alone.

#32 dogdreams

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Posted 18 November 2008 - 06:03 PM

QUOTE (AssociatedWithFire @ Nov 18 2008, 11:13 AM) <{POST_SNAPBACK}>
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Hehe! I love posts like this. I think this is the only forum where people actually fall alseep on their keyboard mid-sentence. I love it! laugh.gif

#33 sleepless sleeper

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Posted 18 November 2008 - 09:26 PM

Neurological diseases are so weird. This is the same topic that I made my parasitic conjoined twins analogy in a previous topic. I really believe that various neurological symptoms piggy back on each other. Everybody on this site has "weird" symptoms. I'm like you, anytime that I experience something new I rack it up to N and have the same "eh, well...it's part of N and it is what it is." attitude.

Anyone else having freezing cold spots on their body?

"Ass on fire" is great. The one and only good thing about N separating my husband and me from sleeping in the same bedroom (in regards to "ass on fire") is that my husband seems to develop really horrible gas while he's asleep. It's so bad that I wake up gagging. I feel like it's my nose on fire, though. And my lungs, my throat, ....


#34 Irishhh

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Posted 12 March 2009 - 05:54 PM

I've heard of this being called "Hypnotic Jerk." I'm not really sure if this is what you are referring to. I have never had pain with this, but I often wake myself up with the jerking of my body, usually my legs. I have even realized that I'm doing it in the daytime now when I think I'm wide awake.

Idiopathic hypersomnolence is pretty much narcolepsy, but more mild. Which is definitely a good thing for you! My boyfriend's cousin has it, and she was diagnosed very early, in her teens actually.

When were you diagnosed? Have you consulted any other doctors about this? Did you have a sleep test done for narcolepsy or just apnea? Some people who have apnea have a problem w/ their brain not telling them when to breathe. It is possible you could have that issue? It might be worth mentioning to someone.

#35 malachi777

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Posted 12 March 2009 - 08:01 PM

The jerk you get when first falling asleep is call a hypnic jerk as Irishhh stated. It is completely normal even among completely healthy individuals. My girlfriend has them all the time and I have them too. Researchers believe the brain thinks you are falling when all your muscles relax upon falling asleep and it makes your muscles suddenly tighten to jerk you back upright. It appears to be brain confusion caused by stress, anxieties or just being in an uncomfortable position. smile.gif

#36 sleepless sleeper

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Posted 12 March 2009 - 08:16 PM

QUOTE (sleepyhead84 @ Oct 13 2008, 06:48 PM) <{POST_SNAPBACK}>
Sleeplesssleeper, interesting to note that my mom has MS. I should ask her if she experiences that. And my mom, she gets hypnogogic hallucinations and sleep paralysis when she naps...

Erin


I've now gotten electric painful jolts in the palms of my hands and the bottoms of my feet.

Today I saw the specialist, and guess what he's testing me for (with another MRI?)

#37 MyTwistedSister

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Posted 02 June 2009 - 03:59 PM

QUOTE (Marcianna @ Oct 13 2008, 03:12 PM) <{POST_SNAPBACK}>
I hope we get tons of feed back on this subject.... I am wondering if I should be worried about it or not... since the lightning thing I figure I would give it a year or so before I brought it up.... but now...hmmm..... Great subject Erin thank you for bring this up!

To sleeplesssleeper: I cant believe you are working with wheights! OMG I would drop them for sure! OUCH! Your are crazy brave for it!!!
I do get that extra Jolt/Buzz and yes, sometimes it hurts really bad. I talked with my psychiatrist and she said its like a mioclonic epilepsy/seizure kind of thing.

And sometimes I have done stuff like almost get thrown out of my chair by this "electric thing". That is no fun when you wake up on your hands and knees and your knees aren't that young anymore. Also, I have hit my face sometimes on my computer keyboard.

Sounds funny but doesn't feel funny, lol. dry.gif

#38 MyTwistedSister

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Posted 02 June 2009 - 04:01 PM

QUOTE (AssociatedWithFire @ Nov 18 2008, 02:13 PM) <{POST_SNAPBACK}>
I also get the full jolts/spasms. For me it is most common when I am just falling asleep but still awake. I have insomnia kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk
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Did you do that on purpose? Sometimes, lots of times, I fall asleep at my computer for seconds maybe and when I "come to" I have a long string of k's across my computer screen.

Its ALWAYS K. I am consistent if nothing else. tongue.gif

#39 Irishhh

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Posted 02 June 2009 - 04:38 PM

QUOTE (MyTwistedSister @ Jun 2 2009, 05:01 PM) <{POST_SNAPBACK}>
Its ALWAYS K. I am consistent if nothing else. tongue.gif


I'm pretty much all about the K myself lol. I think once at work, like the very first time it happened it was J.

#40 malachi777

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Posted 02 June 2009 - 05:08 PM

These jolts are normal as a couple of you have stated. My girlfriend, my kids and I get them all the time. It is believe they are caused by the brain falling into a deeper sleep and the body is out of sync, or the brain is confused while the muscles relax and it thinks you are falling. Just close your eyes and consider it a normal symptom for those with narcolepsy or without.

Oh, just to make sure, look at your hands and make sure they are not inserted in an electrical outlet. If they are safely away from an outlet, go back to sleep. If they are in an outlet, call 911.