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The Great Part About Narcolepsy.


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#1 Marcianna

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Posted 15 September 2008 - 02:44 AM

Ok There is alot of people who have such a hard time with this. I understand I have been in that state of mind. Took years to accept who I was really. But I want to try and do a fun little exercise with everyone.
I want you to think of ONE good thing about having Narcolepsy. Even the tiniest thing. No matter how Obscure. Or rediculous.
For every negative there is a positive. So what is yours?
Perhaps we will find we also have alot of positives in common.
And that can help to see things in a diffrent light.


I will go first.



The great thing about having narcolepsy for me is that since I am a night owl, I never got my bra frozen at sleep overs in the junior high for being the first one to fall asleep. (thank God no one did that during the day!)

#2 Lais02

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Posted 15 September 2008 - 11:35 AM

I always have something to do when I'm bored smile.gif zzz

#3 greatbig47

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Posted 15 September 2008 - 12:01 PM

For me, it comes down to just being able to say...

"Decaf Coffee? Are you out of your mind!?!?!"

#4 Marcianna

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Posted 15 September 2008 - 01:51 PM

QUOTE (greatbig47 @ Sep 15 2008, 06:01 PM) <{POST_SNAPBACK}>
For me, it comes down to just being able to say...

"Decaf Coffee? Are you out of your mind!?!?!"


LOL... That is great!
Accually Caffiene makes my EDS worse. (weird) So rather than being a wuss and drinking decaf, I just quit all together.

Which BTW if you don't drink coffee, and have a cup randomly just to look cool, DO go with decaf. Or at least have a toilet handy! Caffiene can be a strong laxitive.

ummmm..... yeah.... I have heard that anyway.... unsure.gif

#5 Cryopathic

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Posted 19 September 2008 - 12:17 PM

The Dreams......smile.gif

#6 Mike M

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Posted 19 September 2008 - 10:00 PM

The great part about narcolepsy is that it has forced me to slow myself and my life down. I must live intentionally now to live the life that I actually want. Narcolepsy makes me mindful of the importance of each moment of each day. As a result, I feel more stable and balanced living with my narcolepsy than I every did when I didn't know about it (or was fighting it). Even better though, is the reality that I am just beginning this journey of discovery. While the road may be long, the trip will most certainly be worth it.

#7 Ashley

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Posted 22 September 2008 - 06:55 PM

If I ever go to prison I'll sleep through it.

I just have to be sure not to drop the soap. ohmy.gif

#8 Marcianna

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Posted 23 September 2008 - 06:59 PM

QUOTE (Mike M @ Sep 20 2008, 03:00 AM) <{POST_SNAPBACK}>
The great part about narcolepsy is that it has forced me to slow myself and my life down. I must live intentionally now to live the life that I actually want. Narcolepsy makes me mindful of the importance of each moment of each day. As a result, I feel more stable and balanced living with my narcolepsy than I every did when I didn't know about it (or was fighting it). Even better though, is the reality that I am just beginning this journey of discovery. While the road may be long, the trip will most certainly be worth it.


Excellent answer!

You win 200 NN Gold.
(just kidding I made that up.. wink.gif heehee!)

#9 Marcianna

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Posted 23 September 2008 - 07:01 PM

QUOTE (Ashley @ Sep 22 2008, 11:55 PM) <{POST_SNAPBACK}>
If I ever go to prison I'll sleep through it.

I just have to be sure not to drop the soap. ohmy.gif


It pains me to admit that I know this... But they wont let you sleep through it. They are kinda jerks like that.
wait... ????????????? BE HAVE YOURSELF! duh!

#10 Mike M

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Posted 23 September 2008 - 10:05 PM

QUOTE (Marcianna @ Sep 23 2008, 06:59 PM) <{POST_SNAPBACK}>
Excellent answer!


The kind compliment is worth WAY more than the NN gold (made up or not). Thanks! Awesome forum idea.

#11 misslu

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Posted 24 September 2008 - 11:15 AM

when my mother-in-law is driving me nuts, I pretend (ok, it's usually not pretend) to be asleep ;-)

But seriously, it's really helped me learn to not sweat the small stuff. I used to be an obsessive worrier, and now I've learned that life is too short to worry about things that just don't matter.

#12 Ashley

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Posted 25 September 2008 - 12:22 AM

Sleeping is how I get through Christmas at the inlaws. I might could fight sleep off if I tried but why would I want to do that? wink.gif
...................................
I've actually thought about not being allowed to sleep through prison time and I came up with a plan to do something really bad and get confined to the "hole." I think (hope) that's what they call it. Right?..



#13 sleepless sleeper

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Posted 30 September 2008 - 11:19 PM

When I first saw this topic on Marcianna's personal info page, I thought it was f'ing sad because I couldn't think of anything positive. But - then I read the post about not ever having had a bra frozen. THANK YOU! I really needed to see the lighter side of things.

Mine? When not on meds, I have AWESOME dreams. On the lighter side of things, well, there are too many one liners that I don't need to get started on. Thanks again!

#14 Marcianna

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Posted 01 October 2008 - 08:59 AM

QUOTE (sleepless sleeper @ Oct 1 2008, 05:19 AM) <{POST_SNAPBACK}>
When I first saw this topic on Marcianna's personal info page, I thought it was f'ing sad because I couldn't think of anything positive. But - then I read the post about not ever having had a bra frozen. THANK YOU! I really needed to see the lighter side of things.

Mine? When not on meds, I have AWESOME dreams. On the lighter side of things, well, there are too many one liners that I don't need to get started on. Thanks again!

lol... you see? Sometimes it is really hard to find the light in the dark, but if you keep looking it will glow!

#15 Marcianna

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Posted 07 October 2008 - 10:01 AM

lol.... my sis just came up with a new pick up line for me:

I will have to use it some day!!!!

"Hey baby, wanna go.... take a nap?"

Hmmm. come to think of it that may be on my new list of Narcolepsy Tshirt idea's.....

#16 angellus

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Posted 08 October 2008 - 07:54 PM

QUOTE (Marcianna @ Oct 7 2008, 11:01 AM) <{POST_SNAPBACK}>
lol.... my sis just came up with a new pick up line for me:

I will have to use it some day!!!!

"Hey baby, wanna go.... take a nap?"

Hmmm. come to think of it that may be on my new list of Narcolepsy Tshirt idea's.....


Of course the ever popular...

"Narcoleptics sleep around"...

Or "I like naps"

#17 Marcianna

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Posted 08 October 2008 - 09:24 PM

QUOTE (angellus @ Oct 9 2008, 01:54 AM) <{POST_SNAPBACK}>
Of course the ever popular...

"Narcoleptics sleep around"...

Or "I like naps"


lol.... I just put that up on my myspace, the first one...
I saw it on Rachels site and HAD TO HAVE IT!!!! LOL


Wait are you the guy with the tiny penny? that was sooo freakin cool.......

#18 Lais02

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Posted 08 October 2008 - 11:28 PM

QUOTE (Marcianna @ Oct 8 2008, 07:24 PM) <{POST_SNAPBACK}>
Wait are you the guy with the tiny penny? that was sooo freakin cool.......


huh? I must have missed that too this weekend...

#19 angellus

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Posted 09 October 2008 - 11:27 AM

QUOTE (Lais02 @ Oct 9 2008, 12:28 AM) <{POST_SNAPBACK}>
huh? I must have missed that too this weekend...


That would be me... but i changed the trick to make a dime out of the penny... after dropping that little penny and having to crawl around on my hands and knees to find it.. anyway... why not make 9 cents every time...lol

#20 Marcianna

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Posted 09 October 2008 - 12:04 PM

QUOTE (angellus @ Oct 9 2008, 05:27 PM) <{POST_SNAPBACK}>
That would be me... but i changed the trick to make a dime out of the penny... after dropping that little penny and having to crawl around on my hands and knees to find it.. anyway... why not make 9 cents every time...lol



I have a picture of you doing that! It was pretty cool!