Causes Of Narcolepsy
Posted 04 September 2008 - 05:05 AM
I got all the symptoms at once - before 6 months ago i was 110% ok.
my specialist said that N is usually brought on from getting sick - like having a fever, headache etc over a few days.
i havn't been sick for about a year and a half when i got a bad cold so it doesnt sound like thats what brought it on.
i had a blow to the head about 3months before i got symptoms - is it likely that concussion can cause N to happen?
would love to hear your thoughts!!
Posted 04 September 2008 - 08:24 AM
Posted 20 November 2008 - 01:12 PM
Posted 20 November 2008 - 07:31 PM
Is it caused by an infection? I have never heard that one before. On the other hand, if the science boys are right, something had to turn on the immune system for an autoimmune response.
Is it caused by a lack of sunlight? If this were true then it would be an occupational hazard for underground miners and photo lab technicians. It isn't.
Can it be brought on by a head injury? There are a small number of anecdotal reports of such things. These are rare and there is no proof for or against this line of thought.
Posted 20 November 2008 - 09:00 PM
For other people the trigger can be illness, a vaccination (those make mine worse too), injury, I've even heard maybe reactions to bug bites. The triggers vary widely but the result of N is usually about the same.
Posted 22 November 2008 - 07:42 AM
They can't always see the injury in a conventional or FLAIR MRI scan - which is same as when they don't know what the cause is.
So either the lasting brain injury causing the narcolepsy must be about as tiny as the damage there is in narcolepsy when they don't know what the cause is, or the injury tips off the same or similar kind of process.
As well as direct damage to those cells in an injury there's some processes that happen as a result of lots of different types of brain injury - I've been wondering about how so many types of brain damage and other environmental factors and illnesses could cause the same illness or at least a similar set of symptoms, but we still often can't see the damaged bit on the scans -
The blood brain barrier - the bit that 'decides' what gets through from our blood into contact with our brain cells - gets damaged temporarily or longerterm in a lot of different types of brain injury and it can let the wrong stuff through and this could start or contribute to causing or worsening autoimmune or degenerative damage or damage from toxins. The blood brain barrier gets more permeable in infections, too so that would fit with N getting worse with fevers. I had that happen.
the blood brain barrier gets weakened by other things that could cause or contribute to N.
And in a lot of types of brain injury we get lots of tiny injuries from the brain getting a bit short of oxygen. This type doesn't show up so well on the sort of scans most people are given . And with this sort of damage the damage doesn't always show up as symptoms immediately, or even if it does, it can get worse long after the acident when everyone thinks you are OK. There's been cases of N from oxygen shortage in cardiac arrest, so maybe oxygen shortage is what happens in some people with post traumatic brain injury narcolepsy. I'm not meaning this is what must be happening to lots of us , just been wondering about it.
this was one of the papers about brain injury and N, i've more can look out if that's useful. Not sure if this will make sense - when I'm more awake I could find out I been talking sleepy-mince again - but I'm in the best company for it here.
Posted 24 November 2008 - 09:47 PM
Posted 25 November 2008 - 11:03 PM
It's just a shame it takes so long to get properly diagnosed!
Posted 25 November 2008 - 11:25 PM
What I really wonder is in addition to a so called "trigger" events, can events subsequent to that event further exacerbate the degree of N and/or symptoms from which one suffers? For instance, after that strep episode I had a horribly traumatic, personal experience and two very serious car accidents within 5 years. So, I suppose I've had the virus, the bacteria, the trauma and the blow to the head that could have been potential triggers and/or exacerbaters. I dunno, it's a mystery, but I've also had my share of remission-like episodes; periods of time where I was functioning at say 45%, as opposed to the usual 20%.
Regardless, I managed to drag my butt to school and earn 3 college degrees, although I wasn't able to do so until my 30's b/c I was so debilitated by my condition prior; then again, by this time I had learned how to best cope with my condition throughout the years and found a way to get through in my own way. Better late than never! Going back to attempt university despite the N and its tempermental, inconsistent, unpredictable attitude was the best decision I ever made. So take that N!
still I'm asking, is there a spell check on this deal?? I don't see the button.