Posted 03 September 2008 - 06:06 AM
However your consultant/ sleep specialst can put a report together and give this to the PCT (patients Care Trust). The PCT will hold a meeting to decide if you meet the critria for the drug. If they do (and did in my case) they will allowing funding for your local hospital to carry and supply you with the drug. This process will take a few months as the PCT don't hold many meetings and are busy people. Put it is worth taking this route if needs be. If your hospital carry xyrem then none of the above matters as you will automatically be given your prescription.
Posted 03 September 2008 - 07:58 AM
Posted 03 September 2008 - 09:05 AM
I have read somewhere that Scotland (the powers that be) doesn't think that the benefical effects of xyrem warrent the its price tag. I will try and find the web page.
Posted 03 September 2008 - 09:17 AM
Found several websites about xyrem not being allowed for the treatment of cataplexy in Scotland. But couldn't copy and paste the files as it suppressed the information, i.e. could not find etc. when opening up acrobat reader.