Posted 24 August 2008 - 08:03 PM
Posted 24 August 2008 - 10:09 PM
I had Narcolepsy symptoms in college but was not diagnosed until age 33. You are very lucky to know about your condition going in.
Whichever schools you're considering, I would recommend looking into the resources they have in place to support students with disabilities. I went to Arizona State University, and during my time there I worked in the Disability Resource Center. They had a very comprehensive program for students with visual impairments, hearing impairments, mobility impairments, learning disabilities, and even "hidden" disabilities like Narcolepsy. The program coordinators there arranged accommodations based on documentation provided by the students' doctors. For Narcolepsy, some of the things you might want to have lined up could be a notetaker (in case you have bad Automatic Behavior in lecture classes), allowing you to tape-record lectures in case you fall into a microsleep, and potentially even setting up longer test times to be administered outside of the classroom with a break in between for a nap. You might not need them, you might not need them all the time, but it would be important to already be registered with the center "just in case."
There is a LOT of information on this website : http://www.jan.wvu.edu . It is JAN, the Job Accommodation Network, which is a site that is focused on assisting people with disabilities obtain appropriate accommodations in the workplace. They also have an education portal so there will be resources on there to help you in your college planning too.
If a school would be less likely to accept you because you reveal your Narcolepsy in your college essay, you probably don't want to go there anyway. That's just my two cents!! You may also want to look into grants or scholarships that are available to students with disabilities. Every little bit helps!
Again, congratulations and best of luck to you.
Posted 27 August 2008 - 09:23 PM
Posted 16 October 2008 - 08:55 AM
I do have a question for you? Any suggestions on waking up in the morning? 2 alarm clocks, full blast, he has to get out of bed to turn them off, but then doesn't remember it at all!
Thanks so much for your response Kimberly! haha it is exciting but also pretty daunting. Checking out the disability resource center is def on my to do list haha i'm also looking at some schools that have an honor code where you can take your tests wherever you want! As you can imagine it would be much better to take a test outside of those stuffy classrooms! I will def. look at that website a littler later prob when i'm less tired haha My school's counselor said she heard a lecture about Narcolepsy at Cornell this year that was really impressive. I was wondering if anyone else has heard about school's that have it at least a bit on the radar haha since as my school says i'm the "trailblazer" for them b/c they hadnt even heard about Narcolepsy until I came along! But def. I do agree that "If a school would be less likely to accept you because you reveal your Narcolepsy in your college essay, you probably don't want to go there anyway." I guess I was just fishing around for any sucess stories to give me the confidence in taking that big a risk since its the applicant pool is reaching its peak right now! [/quote]
Posted 16 October 2008 - 12:58 PM
I had Narcolepsy when I was in College. Afer the first day of each class I would tell the teacher that I have N and would fall asleep during the class. also, I would tape the class so I could go back and hear what I missed. I graduated with a 3.7g.p.a. During exam time I could never take two exams in a row so I would have to get special permission to change the exams around. It is challenging, but remember a lot of people have challenges and I will share this one with you. My son who is now 33, has dyslexia so bad that he can't read his own handwriting. He went to a very challenging high school and then to college at Sewane in Tenn. It was very, very difficult, but he was persistent and now I am very proud to say he has his PhD. in molecular biology. Believe me, it was just as tough for him, but in a different way. so good luck to you and YOU CAN do it!!
Posted 16 October 2008 - 11:33 PM
For a time, I was struggling terribly in the morning. My doctor offered two suggestions. One was taking my meds (my first dose of stimulants-amphetamine for me) immediately upon waking. So, as I "get up" to shut off the alarms, I swallow the 30 mg (I keep the pills and water on my night table). The second suggestion was even stranger. He suggested that I take a methylphenidate ER tablet with my second Xyrem dose (1 AM for me). I tries it with a 20 mg methylphenidate ER tablet, but that was too strong (I keep waking at 4 AM). So, we switched to a 10 mg methylphenidate ER tablet. Surprisingly, it works. I know it sounds crazy - I literally take a sleep aid and a stimulant within seconds of each other, but I find it much easier to "wake up" now. So, it might be worth having your soon talk to his doctor. Good luck!
Posted 17 October 2008 - 03:27 PM
It can be done!
Posted 23 October 2008 - 10:23 AM
Good luck to you!