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Narcolepsy And Marijuana

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One of my concern with promoting MJ use for the treatment is the chain of events that follows.

 

- if you have a responsible occupation, MJ use can ruin your career.

- if your employer has any suspicion of drug use, you may be randomly drug tested

- N and C symptoms can mimic intoxication. If you are then piss tested and it shows positive, you will be unable to defend yourself.

- if you are ever in a divorce/custody dispute, your substance use history will be wide open for scrutiny. The courts frown on drug use and it can damage your case.

- if you discuss your MJ use with your physician, that becomes part of your medical records. If those are ever subpoenaed for a court case, it will undermine your credibility.

- if you ever need to pursue a disability claim, child custody or medical malpractice, your medical records will be scrutinized for "contributing factors" that can be used to deny your claim.

 

So, if anyone is considering self medication with MJ, you might want to consider how this decision may impact you in future circumstances.

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I am in total agreement with your thought process Hank. However, I am not advocating "self medication"...I am advocating "Medical Prescription MJ" with the prescription from a Medical Doctor. That is what my stepson has and the Doctor has all of his history and scans to back up that decision.

PRESCRIPTION mj is KNOWING what is in the mj and a specific strain to help with the problem.

 

Just out of curiosity...what about drug testing on those Narcoleptics who are taking amphetamines as stimulants...doesn't all of your list apply to those people too?????

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Amphetamines would certainly show up on a urine test. I know someone who tested false positive for Heroine because he ate a lemon-poppy seed muffin before a random drug test. So, you have to be careful.

 

MJ use is still a federal crime, even though it has been de-criminalized in some states. So, you need to be very careful before making this decision.

 

MJ is not a main stream treatment for N or C. I have not heard of any sleep medicine specialist who has prescribed it for treatment, although that may have occurred.

 

Since I am currently going through some of the life events I mentioned above, I am thankful that I can honestly answer "no" to any questions regarding drug or alcohol use. I have had maybe 1 drink a year for the past 8 years because it makes me feel like &^%$. So, it makes my answers very simple and uncomplicated. I would not want to be getting into the medical marijuana debate with  someone who was scrutinizing my life decisions.

 

People will make their own decisions about their treatment. I am tossing this out because it is far too easy to make decisions with little to no awareness of the consequences. Just food for thought.

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Amphetamines would certainly show up on a urine test. I know someone who tested false positive for Heroine because he ate a lemon-poppy seed muffin before a random drug test. So, you have to be careful.

 

MJ use is still a federal crime, even though it has been de-criminalized in some states. So, you need to be very careful before making this decision.

 

MJ is not a main stream treatment for N or C. I have not heard of any sleep medicine specialist who has prescribed it for treatment, although that may have occurred.

 

Since I am currently going through some of the life events I mentioned above, I am thankful that I can honestly answer "no" to any questions regarding drug or alcohol use. I have had maybe 1 drink a year for the past 8 years because it makes me feel like &^%$. So, it makes my answers very simple and uncomplicated. I would not want to be getting into the medical marijuana debate with  someone who was scrutinizing my life decisions.

 

People will make their own decisions about their treatment. I am tossing this out because it is far too easy to make decisions with little to no awareness of the consequences. Just food for thought.

 

 

I agree with Ferret on the validity of treatment of medical MJ wholeheartedly, but I have to agree with you Hank, on the fear of severe implications of even a fully-legal Rx of MJ, and how it could effect something like a child custody case.

 

We have patients at my workplace getting divorced and fighting each other for custody of their children, and it is UGLY. Both have subpoenaed one another's medical records, and are calling each other "unfit parents" due to (legit) Rx-drug usage and other medical conditions...

 

Benzos for anxiety for both, Ambien for sleep for both, painkillers for spinal disease for one & rheumatoid arthritis for the other, Adderall for ADD for one & Chronic Fatigue Syndrome/Fibromyalgia for the other, and MANY more...

 

Even though both have thoroughly chronicled legitimate Rx use, the enusing public court battles, nasty abuse accusations, medical documentation required, and harsh scrutiny from the courts is horrendous. I'd hate to ever have to face anything like that...

 

Even mild physical dependency on any legal prescription, without addiction or abuse,  can be twisted make a parent look unfit- as can many medical conditions, especially mental ones.

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What a sad, sad world....and a POX on any parent who stoops that low. Remember that children do grow up and will find out the truth of your actions if they were done in an underhanded manner.

 

BTW, had the discussion about the "poppy seeds" with my (then 12) granddaughter in March of this year. I just about choked when she said it and choked again when she said that her "science" teacher told her that. I can't find the link now but...you would have to eat something like four and a half pounds of poppy seeds to test positive on a drug test. That's a seriously big lemon/poppy seed muffin.

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Before I was diagnosed with cataplexy, I was accused of being drunk several times, including once by a police officer at 10 am. After diagnosed, I was accused by a police officer of being intoxicated- my medic alert bracelet helped me set that straight.

 

It was a lot easier for me to say that I do not drink and was not drunk. If I said, well sometimes I drink or get drunk but I wasn't drunk this time, I would have had less credibility.

 

I am going through a divorce now. Narcolepsy is being presented as a mental illness for which I am on multiple medications (2). Of course this is baseless and her position is weak, but I still have to defend myself against the accusations. And that gets expensive and time consuming.

 

I am glad I can just check all the boxes "no" for recreational drug and alcohol use. I don't have to equivocate or explain. All my medical records support that. All my friends and family know that to be true.

 

If you choose to use MJ, I would suggest being very confident that your future will always be uncomplicated. Sometimes, we need to consider how our decisions would sound from the witness stand.

 

While this is an imperfect world, it is just best to accept that it is imperfect and live with that in mind. I do not want to hang my hat on my children learning in the future how unjustly I was treated with false accusations. I would rather win and never discuss it again. And that is what I am prepared to do.

 

So, MJ may have its merits for some. Just don't cry about the injustice of it all when it comes back to bite you. You will have walked right into a trap. The only way to prevent that is to avoid it. And avoiding it comes waaaay before you ever know where the trap is set.

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Totally agree with the warnings to be prepared to deal with the consequences of MJ use. That's the reason why I'm not using it on a trial and error basis right now to see if it can effectively treat N. But if/when I get a new job (one that doesn't drug test) and move to a more progressive state in terms of drug laws, I will certainly give it another go.

However, I'd really really like for some studies to come out on this considering there are plenty of states now that will allow such studies to occur. It seems odd to me that to date, I haven't come across anything scientific looking at the effect MJ has on N. If anyone out there comes across such literature, please post a link.

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@Hank

Nice work on the research. I can't find my link at all and it hardly seems worth looking for the rebuttal when you've presented your case so well and so logically.

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Going back to the personal experiences, I personally do not like the feeling THC gives me. The first time I was high, I was paralyzed on the floor for a good amount of time before sleeping it off. I'm not sure if that would be my first cataplexy experience, as it did last a lot longer (like an hour or so) than normal episodes would. Any calming/relaxing agents, I avoid, even if I desperately would love to completely veg out. Any time I touch one, I'm too far gone for my own good.

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Just out of curiosity...what about drug testing on those Narcoleptics who are taking amphetamines as stimulants...doesn't all of your list apply to those people too?????

 

If you did show a positive for amphetamine, you would either receive a call or have to call the company that gave you the drug test and talk with a Medical Review Officer to verify that you actually have a prescription.

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Going back to the personal experiences, I personally do not like the feeling THC gives me. The first time I was high, I was paralyzed on the floor for a good amount of time before sleeping it off. I'm not sure if that would be my first cataplexy experience, as it did last a lot longer (like an hour or so) than normal episodes would. Any calming/relaxing agents, I avoid, even if I desperately would love to completely veg out. Any time I touch one, I'm too far gone for my own good.

Have you been diagnosed with cataplexy yet? I get confused when you talk about cataplexy. I cannot tell if you have it or you think you have it.

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Well, they're treating me for it, but they want a sleep study to confirm. Which I'm stuck waiting for another month.

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Good for you. You are headed in the right direction.

 

How did you manage to get a clinical diagnosis of cataplexy? How is it being treated?

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Kriqit...knee buckling is how my C started. So, what were your emotional triggers to cause it?

 

You are now on Adderall to control your EDS and Imipramine (Tofranil) to control the Cataplexy...and you feel better. I HOPE, HOPE, HOPE that it stays that way for you.That's how I started out in '86 except substitute Ritalin for the Adderall. And I had the psg/mslt BEFORE any medication...and you should be clean of all medication before taking those tests too. DAMN BUT THERE'S A REALLY BAD ECHO ON THIS FORUM. 

Here's some personally experienced warnings for you...

1) Do not ever stop Imipramine cold turkey...you will experience the worst rebound cataplexy possible. Buckling knees is a walk in the park by comparison.

2) Watch out also for weight gain on Imipramine...about 10 pounds a month...and don't assume that it will come off if you stop the med.

3) I hope you have someone close to you who knows you well enough to recognize IF you go off the rails on this combo...I'm talking about irritability, short fused anger and losing your temper very easily about nothing much at all.

 

These things may not happen to you at all. This is just a warning to be aware...'cuz they sure as hell happened to me.

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Ferret: Im not sure. I trained myself over time to not really hang on to emotions. Partially from a hard-working, 1950s parents and grandparents, and any time I ever felt an emotion, it would exhaust me. I used to get so annoyed that my emotion wouldn't last to portray it. If I were angry at something, I'd take a nap, and it was like it never happened. Anger is the only one that has happened recently. It'll make my arms feel like they are heavy or asleep and after a nap, I'm fine.

As for the adderall, my body builds up tolerance ridiculous quick to anything, and is resistant to medications I've never even had. Like the oral anesthetic, it wouldn't knock me out with a normal dose for a 200lb man, they had to up it, and it made the dentist almost cancel it all together after even that almost didn't work.

Any new meds/chemicals to my body has either one of two effects. It either knocks me out, or does seemingly nothing. Even the adderall fades its effect within a few days.

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