Posted 23 July 2008 - 02:17 AM
I scored 20 out of 24.
I got a video psg tonight see what happens, 2nd one.
Posted 26 July 2008 - 05:21 AM
Posted 08 October 2008 - 10:45 AM
Posted 08 October 2008 - 05:07 PM
This is a great topic! Thanks for posting.
For those who may not know what the Epworth Sleepiness Scale is, it's a questionnaire used to measure daytime sleepiness. It can be used as a tool to help diagnose sleep disorders. Often times sleep physicians will have you fill out the Epworth Sleepiness Scale (mine has me fill one out at every visit), to compare your scores from when you first came in to scores after you have started new medicine, or changed certain behaviors.
If you've never taken it before, you can do so here: http://www.sleepeduc...SleepScale.aspx . You also have the ability to print it out and take it to your physician on this site.
What you said is SO TRUE for me as well! If I had known about this questionnaire when I first started experiencing my symptoms (in the early 1990's -- when it was developed) I feel like my doctors would have considered my tiredness/sleepiness as a PRIMARY rather than a SECONDARY symptom, and I wouldn't have waited 14 years for a diagnosis.
BTW - before my current medication regimen, my score was 22. Now it is 16.
Posted 08 October 2008 - 08:41 PM
Posted 11 October 2008 - 08:25 PM
Thanks! It did go well. Though i have to admit i was ready to punch the tech each time he woke me up. I ended up not needing the last nap, so he let me sleep for two hours since my ride wasn't coming for a while LOL. they were really great there. "unofficially" (he read me the drs notes, but i have to go to the followup to be officially diagnosed) i have N. Yay finally a reason for this madness! THey gave me some modafinil samples to get me through to the followup so I can take one before driving/work/etc. Hopefully the worse is over, and we'll be able to find a regimine that will help me better cope and get back to working full time!
Posted 11 October 2008 - 11:55 PM
I hope so too. It can be such a relief to know. At the same time, do realize that it might take a while to find the "right" meds. Some of us also experience that strange sensation of being "more" sleepy after the diagnosis. Finally knowing that you are not crazy can make it harder to fight the fatigue sometimes. Good luck! It is wonderful that you likely have an answer. I am guessing that you know this, but this forum and others are also excellent places to figure out how to live as a PWN.
Posted 12 October 2008 - 09:21 AM
Thanks. Yes this forum has been excellent, really helping me cope. After I was told by the neurologist this is what I likely have I researched N. and found that I have most if not all of the "major indicators". Oh my. I had a total crazy attack lol crying freaking out the whole bit, had to take a day off work. I also found that this spell I'm in (I get one every spring and fall for a few months that is worse than the rest of the year) got worse because exactly like you said it was harder to fight since I knew I wasn't crazy and couldn't talk myself out of it. Thanks to everyone on here for the advice/support. it is very helpful. Even though all of my friends are supportive in that they say "aw that sucks", a lot of people (myself not too long ago included) don't realize the severity of N. or the impact it has on ones life. My fiance is being really great, well always has been since i've always been a sleepyface since we've been together. Also, one of my friends was recently diagnosed N and she is helpful. but it's nice to have somewhere to blab on or read about other's problems which helps me not feel alone. THanks everyone again!!!
Posted 12 October 2008 - 03:31 PM
As I read your post, it struck me to remind you that family members, supporters and partners are encouraged to consider looking at stuff here too. It might help him to cope if he knew other life partners who are supporting PWNs. I know I keep encouraging my wife to check things out here. She is incredible and super supportive, but narcolepsy can be just as hard for her (and often much worse since she feels the need to pick up my slack).
Posted 30 December 2008 - 01:56 PM