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Taking The Sats/acts


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#1 merrymom1013

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Posted 23 June 2008 - 07:18 PM

I think I posted about this topic before, but I can't find it tonight. Anyway, awhile back, on an email support group, a mom posted about her son being denied accomodations on the SAT despite receiving them at school and a very clearly stated recommendation from his sleep specialist. I mentioned it at my daughter's IEP meeting- they confimred that the SAT people had gotten very strict about granting extra time. My daughter will take the SATs next school year. We recently applied for accomodations of 50% extra time, extra breaks and testing over two days. We just received notice that she was approved only for the 50% extra time.
In her case the extra breaks & 2 day testing are critical- she fatigues easily & will not be able to sustain her attention for several hours of testing. In addition to her diagnosed narcolepsy, she had neurologic lyme disease which left her with dysautonomia, fibromyalgia, and a host of chronic fatigue type symptoms...all of which we can provide medical documentation for. I have initiated an appeal, and unlike the other mom who's son was a senior and had to take the test right away, we have a few months to work this out. I would appreciate any advice for dealing with the SAT people, but I also want to sound the alarm for other parents of kids & teens with narcolepsy & high schoolers. In my daughter's case, her multiple medical condiitons & their educational impact should make this a no brainer. But the narcolepsy alone should make this a no-brainer as well. These accomodations are no more than are often provided for students with ADHD. How can we make the SAT disability experts recognize narcolepsy?


#2 sarahlue

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Posted 02 August 2008 - 05:27 AM

Good luck with the accomodations! It might be easier for your daughter to receive them because she has another condition on top of her narcolepsy. Testing over a two-day period does seem a little overboard to me, though - good luck! I fell asleep during my SAT test and had a terrible score. I did better on the ACT and made sure to slap my face when I was getting sleepy or ask to go to the bathroom. The ACT also has more section so maybe that also helped stimulate my brain and wake me up a bit more. I wasn't diagnosed until I was in my 20's and after college but I wish I would have received extra time or more breaks during all my tests - that would have helped. Worse case senario, your daughter doesn't get the accomodations - just tell her what my mom always tells me when I have to do something dispite being too sleepy to function, "Just Suck It Up!!" That always seems to work for me for some reason. Good luck to you and let us know how everything goes.
Sarahlue

#3 Lais02

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Posted 05 August 2008 - 01:48 PM

I took the ACT's and I did fall asleep during the English section... although somehow I still did well. I didn't know I had N until I was 23. I had been diagnosed with ADD, and I took the ACT's at the school I was planning on attending. The official ACT people didn't allow me to get extra time. Try contacting the school she is planning on attending and talking to the disability services people. I was not allowed to split the test between 2 days, but the extra time did make a huge difference to me. Good luck!

#4 merrymom1013

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Posted 08 June 2009 - 05:49 PM

A good news update. We appealed the SAT determination & followed their instructions for doing so to the letter. Dug up & sent supporting information, including the doctor's letter about how he had arrived at the diagnosis (sleep study, mslt, genetic type..). The process took months- it took us about a month to gather the information & put it together, then several months to hear back from them. The accommodations were approved & my daughter has taken the SATs this spring.
Could she have taken it in one day? Yes, but she would have been so exhausted for the next week she would have been non-functional. Spreading it out allowed her to take it without fatigue being a big factor. And yes, her scores were good!