Jump to content


Photo

New York Support


  • Please log in to reply
8 replies to this topic

#1 greatbig47

greatbig47

    www.newrolemodels.com

  • Members
  • 553 posts
  • Gender:Male
  • Location:Greenville, Michigan

Posted 29 May 2008 - 09:39 PM

Long Island Narcolepsy Support Group
Serving Long Island and surrounding areas

Narcolepsy Institute
Serving NY Metro Area
Website: http://www.narcolepsyinstitute.org/

#2 Lovemyhusband

Lovemyhusband

    Member

  • Members
  • 175 posts
  • Location:Scotia, New York
  • Interests:I love to read, spend time with my family and will always say yes to a trip to an amusement park!

Posted 09 July 2008 - 06:52 PM

Anyone from the Albany area or anywhere in the Capital region?

#3 AssociatedWithFire

AssociatedWithFire

    Member

  • Members
  • 46 posts
  • Gender:Male
  • Location:Sullivan County, NY (Mid up-state)
  • Interests:Bruised and battered from abuse with out a blow

Posted 20 November 2008 - 05:03 PM

Anyone in Sullivan County or surrounding area?

#4 jenji

jenji

    Member

  • Members
  • 187 posts
  • Gender:Female
  • Location:new york
  • Interests:the arts

Posted 20 November 2008 - 11:34 PM

Anyone in Western New York area?

#5 AssociatedWithFire

AssociatedWithFire

    Member

  • Members
  • 46 posts
  • Gender:Male
  • Location:Sullivan County, NY (Mid up-state)
  • Interests:Bruised and battered from abuse with out a blow

Posted 25 November 2008 - 02:06 AM

If I can make it here I can Make it anywhere. I think thats how the song went. where in western NY are you jenji? maybe we can put together a upstate feild trip and try to get people together from more remote locations like us in NY or from anywhere they want to travel from. I wounder if theres a way to create a Narcolepsy event that would be like a group vacation. hehehehe we could all go some where and have a sleep in.hehehehe hmmm a group rate at some posh spa maybe. ok im getting to silly.

#6 Mee

Mee

    Member

  • Administrators
  • 44 posts
  • Gender:Female
  • Location:NYC
  • Interests:Playing pool, Flying Trapeze and Aerial Silks, and Dogs.

Posted 04 January 2010 - 10:32 PM

Anybody interested in a meeting?

#7 twinkiesaram

twinkiesaram

    Member

  • Members
  • 6 posts
  • Gender:Female
  • Location:Western New York

Posted 22 December 2011 - 08:07 AM

Hi! Is anyone here still active living in Western New York? I am newly diagnosed and trying to get regulated on medication. I am really struggling with some of the side effects as well as the lifestyle changes I am being asked to make. Also, having a lot of mixed emotions surrounding the diagnosis: regret, anger, blame, inadequate, hopeless, etc. I would see a counselor, but I don't think they'd understand. Even ONE person to talk to who knows what I'm going through would be helpful. Thank you and have a great holiday!

#8 Ermc26

Ermc26

    Member

  • Members
  • 11 posts
  • Gender:Female
  • Location:New York

Posted 31 January 2012 - 08:24 PM

I'm in Dutchess County.. any others?

#9 keith_harper

keith_harper

    Member

  • Members
  • 4 posts
  • Gender:Male
  • Location:New York, NY
  • Interests:Graphic design, startups, support

Posted 24 January 2013 - 04:47 PM

Hi folks,

 

I just started a New York City meetup, you can sign up for it here: www.nynarcoleptics.org

 

Trying to connect with other narcoleptics in the city, for support and to share experiences.