Is There A Right Decision?

2 posts in this topic

Hi all,

I am new to the network and it is great to know that after suffering with narcolepsy with cataplexy for over 40 years support is finally available. :) I would need to write a book to share my life as a narcoleptic with you, therefore I will only focus on my current concern. At this time I am on a medical leave from work due to the destabilization of my Narcolepsy and my sleep disorder specialist is very concerned that after 10 years of ongoing medical treatment, I am now back to square one. :huh: It seems that the many stimulants (drugs) that I consume each day still do not enable me to meet performance expectations and my ability to do my job is in question. :unsure: I have worked for over 20 years and I have never had reason to have to disclose my disability, however it now seems that the last two years, I have been lacking in all the basic requirements of my position and now find myself looking at dismissal or disability. :o My doctor has recommended to my employers that I be considered for permanent disability, however my employer seems to believe that they would be able to accomodate my disability, however I am very concerned how this would be possible - what type of work would be immuned to the many symptoms of Narcolepsy and do they really know what they are dealing with?? :blink: Some days I do feel that I have the strenght to continue the battle, but there are many days like today that I ask myself why should I even bother. Narcolepsy will be with me forever and how I determine my future will depend upon the stenght and quantity of drugs available to me. If I were to opt for disability, I would be able to decrease the amount of drugs that I would need, however I am not certain if I would be able to live with the stigma that disability carries. :mellow: I know I would consider myself as a burden to society - something I would have great difficulty living with. I am certain that there are others out there that have experienced similar work situations and I would appreciate hearing your comments.

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You're taking a good look at the pros and cons, so give yourself credit for at least going about getting the answer the right way!

The right answer will make you want to live life to your fullest. The right answer will be the one you would be proud of.

You are the only one with the right answer...Just talk out the pros and cons and pick the one that will make you a better you.


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