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Narcolepsy And Surgery


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Poll: Narcolepsy And Surgery (20 member(s) have cast votes)

Have you ever had major surgery requiring general anesthesia or have you been administered drugs to force sleep/coma due to an accident or something similar?

  1. Yes (18 votes [90.00%])

    Percentage of vote: 90.00%

  2. No (2 votes [10.00%])

    Percentage of vote: 10.00%

Vote Guests cannot vote

#1 Chuck Z.

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Posted 15 May 2008 - 05:20 PM

This is a followup regarding the karmic dictionary (or whatever it's called). In my replies I proposed a "theory" about anesthesia so this is an informal way to gain validity or debunk it smile.gif

#2 Chuck Z.

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Posted 16 May 2008 - 08:50 AM

Day 1 - bump!

Please vote only if you are a PWN...

#3 sleepylama

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Posted 16 May 2008 - 09:50 AM

I have had several surgeries and was born 3.5 months premature on all kinds of meds back then. I was always "the sick kid" and now I am "the sick adult"...it is a theme I clearly have stuck with. ;-)

Interesting idea on Anesthesia!

#4 Toph4er

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Posted 17 May 2008 - 01:31 AM

like the vaccines potentially causing Autism? lol

I've had a bunch of eye surgeries (3) to correct double vision...
1st at age 5 (almost exactly!)
2nd at age 15 (right before series of 3 seizures which preceded my N diagnosis)
3rd 1yr after (the second didn't hold and i got tired of prism glasses)

Chris"Toph4er"

#5 Chuck Z.

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Posted 17 May 2008 - 05:21 PM

day 2 of 3 - *bump*

If you have been diagnosed with Narcolepsy, please fill out the survey. Thanks!

#6 Toph4er

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Posted 18 May 2008 - 02:30 AM

scroll...click...scroll...click...done biggrin.gif

#7 Chuck Z.

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Posted 18 May 2008 - 05:35 AM

QUOTE (Toph4er @ May 18 2008, 03:30 AM) <{POST_SNAPBACK}>
scroll...click...scroll...click...done biggrin.gif


ty ty ty for the new bump! but I wish folks would answer instead of just viewing? Does everyone think that Yes is the ONLY answer here? Hey, if are a PWN and have NOT had surgery, hit NO.

#8 Chuck Z.

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Posted 19 May 2008 - 10:07 PM

last *bump*

#9 Shambo

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Posted 20 May 2008 - 01:52 PM

Where can I read your reply about your theory? I have no idea where to look.

#10 Chuck Z.

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Posted 20 May 2008 - 02:15 PM

http://narcolepsynet...?showtopic=1881

#11 Shambo

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Posted 20 May 2008 - 02:49 PM

Thanks!

I had IV sedation to get my wisdom teeth removed and general anesthesia to have my tonsils removed. Both of these were with in a year (possibly 6 months) of each other and right around when my symptoms showed up. I had never put that timing together until just now.

Makes sense to me that there could be a correlation.

I have always wondered about sleepwalking too. (Maybe I should start a new topic...) I was a crazy sleep walker when I was little, up until 11 or 12. I would constantly wake up on the couch, in my mom's bed, curled up in a ball on the bathroom rug. I would also get up and walk around and do things and talk to others etc.





#12 Chuck Z.

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Posted 06 June 2008 - 02:26 PM

To follow up on the idea of a correlation of anesthesia and progression of narcoleptic symptoms. During my appointment with my neuro, we talked about this. I was a bit taken back (positively, of course) by how much his interest was piqued - to the point that he almost stopped listening to me and was browsing to study sites, LOL

As with other matters we discussed (eg Steroids), he referred me to the following sites.

http://www.iom.edu/
http://www.nationalacademies.org/

He considers these sites to be "gospel" because they are not swayed by special interests or funding from corporations.

[I realize this a double-post, but wanted to make sure folks following this thread, and not other threads, would get this info as well]

#13 Chuck Z.

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Posted 08 June 2008 - 07:47 AM

Sorry, but I feel compelled to keep this poll active -- if you have not already answered, PLEASE do! PWN's ONLY PLEASE!

#14 Diane in North Carolina

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Posted 08 June 2008 - 11:31 AM

I have had surgery and general anesthesia five times, beginning in my mid 20's. I am now 49.

Diane



#15 Chuck Z.

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Posted 08 June 2008 - 04:44 PM

QUOTE (Diane in North Carolina @ Jun 8 2008, 12:31 PM) <{POST_SNAPBACK}>
I have had surgery and general anesthesia five times, beginning in my mid 20's. I am now 49.

Diane


Thanks for the input Diane! If you have not done already, please place your "vote" at the top of this thread as well.

#16 sleepylisa

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Posted 13 June 2008 - 10:21 PM

I have had several surgeries and after the first few I actually began to look forward to having future surgeries just for the anesthesia...It's the only time in my life that I can honestly say that I feel like I slept. I wake up on morphine and in lots of pain, but I wake up feeling rested and can't remember any terrifying dreams...weird.

#17 Chuck Z.

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Posted 14 June 2008 - 12:07 AM

I must give a shout out of thanks to Jerry Siegel of UCLA for calling me today!

We spent a few minutes chatting about some of his research and offered some of my own "layman" theories about the correlation of anesthesia and narcolepsy. My biggest suspicion, after all said and done, is that the body may simply be "allergic" to some of the chemicals used and the body has no way of "flushing out" these elements -- hence, Narcolepsy being a manefestation of the body's immflamation.

I encouraged him to peruse my related posts and everyone else's as I hope he will find more informaton and feedback from the rest of the group.