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Simple Ambien Cr Has Helped Us


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#1 lsuazo

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Posted 10 May 2008 - 08:49 AM

My daughter was diagnosed with N ast August at age 16. We've been the route of Provigil and Ritalin - neither helped and actually made her worse with side affects - mostly stomach trouble. Long journey short, an email friend of mine that I met on this board mentioned she was using Ambien. It had not occurred to me that a sleeping pill could help - in fact, I had the information that it could make the EDS worse. But, we tried our daughter on 10mg of Ambien and the next morning she awoke feeling for the first time in years that she had had a good night's sleep! We were very excited. We've since tried different dosages and timings - such as a half pill in the early a.m. - 2 or 3 a.m. as she was popping out of sleep, but right now we're on 12.5mg of Ambien CR and sticking to it. It is not a cure, but since starting the Ambien about 3 weeks ago, my daughter is completely off all stimulants. She is still tired, requires a nap during the day, etc etc, but less medication is great. My daughter has other health issues that could be zapping her strength and our biggest challenge has been to find the right doctors, but we're getting there. I wanted to share the Ambien story just in case it might help someone else. One thing I've certainly learned, Narcolepsy is diffierent for everyone and the reaction to the various meds sure does differ. Take care all!

#2 Toph4er

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Posted 10 May 2008 - 02:42 PM

Interesting, I've thought of trying it but sometimes depressants/sleep aids give me the opposite effect...even Xyrem T_T. At least Provigil works for me along with Clomipramine for sleep paralysis/cataplexy. Also an interesting bit of information about Clomipramine and similar meds to it, it actually reduces sleep onset REM (SOREM) and REM sleep in general (we get too much of that anyways wink.gif), though after stopping the SOREM can get worse for a week or so and then "normalize"...as normal as it gets for us! It really does help me sleep well though, once I fall asleep and cuts down on the sleep paralysis...fewer HH too smile.gif

Chris"Toph4er"

#3 Henry G

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Posted 08 August 2008 - 12:32 PM

QUOTE (lsuazo @ May 10 2008, 02:49 PM) <{POST_SNAPBACK}>
My daughter was diagnosed with N ast August at age 16. We've been the route of Provigil and Ritalin - neither helped and actually made her worse with side affects - mostly stomach trouble. Long journey short, an email friend of mine that I met on this board mentioned she was using Ambien. It had not occurred to me that a sleeping pill could help - in fact, I had the information that it could make the EDS worse. But, we tried our daughter on 10mg of Ambien and the next morning she awoke feeling for the first time in years that she had had a good night's sleep! We were very excited. We've since tried different dosages and timings - such as a half pill in the early a.m. - 2 or 3 a.m. as she was popping out of sleep, but right now we're on 12.5mg of Ambien CR and sticking to it. It is not a cure, but since starting the Ambien about 3 weeks ago, my daughter is completely off all stimulants. She is still tired, requires a nap during the day, etc etc, but less medication is great. My daughter has other health issues that could be zapping her strength and our biggest challenge has been to find the right doctors, but we're getting there. I wanted to share the Ambien story just in case it might help someone else. One thing I've certainly learned, Narcolepsy is diffierent for everyone and the reaction to the various meds sure does differ. Take care all!


Long term use of Ambien is nasty business.
Short term is OK but in hindsight - Stimulants is by far less destructive than Ambien.

I am sorry to break the news and also I believe it is for anyone everyone.

I would save Ambien for the odd occasion, it is extremely addictive and mind-destructive.

#4 lsuazo

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Posted 18 August 2008 - 05:54 PM

QUOTE (Henry G @ Aug 8 2008, 06:32 PM) <{POST_SNAPBACK}>
Long term use of Ambien is nasty business.
Short term is OK but in hindsight - Stimulants is by far less destructive than Ambien.

I am sorry to break the news and also I believe it is for anyone everyone.

I would save Ambien for the odd occasion, it is extremely addictive and mind-destructive.



Why do you say this about Ambien? This is a strong opinion - can you tell me how you came to this? My daughter's neurologist, sleep specialist and internist are all OK with her using Ambien, but I'm definitely not one to blindly trust anything when it comes to the medical profession - too many years of being dismissed. So really, please tell me why you feel this way about Ambien. Thank you!

#5 Henry G

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Posted 19 August 2008 - 01:31 PM

QUOTE (lsuazo @ Aug 18 2008, 10:54 PM) <{POST_SNAPBACK}>
Why do you say this about Ambien? This is a strong opinion - can you tell me how you came to this?


Personal experience and research.

Ambien is not meant to be taken long-term; so what happens when you goes against the medicine own instructions?

I am not just a believer of logic or of common sense but of personal experience. I've personally been to Hell and back and found out why.

#6 Henry G

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Posted 20 August 2008 - 10:33 AM

Oh yes and please note:

You won't be able to cut Ambien like that all of a sudden - the withdrawal symptoms can be very nasty, even dangerous.

#7 momosleepyc

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Posted 21 August 2008 - 06:33 AM

QUOTE (lsuazo @ May 10 2008, 09:49 AM) <{POST_SNAPBACK}>
My daughter was diagnosed with N ast August at age 16. We've been the route of Provigil and Ritalin - neither helped and actually made her worse with side affects - mostly stomach trouble. Long journey short, an email friend of mine that I met on this board mentioned she was using Ambien. It had not occurred to me that a sleeping pill could help - in fact, I had the information that it could make the EDS worse. But, we tried our daughter on 10mg of Ambien and the next morning she awoke feeling for the first time in years that she had had a good night's sleep! We were very excited. We've since tried different dosages and timings - such as a half pill in the early a.m. - 2 or 3 a.m. as she was popping out of sleep, but right now we're on 12.5mg of Ambien CR and sticking to it. It is not a cure, but since starting the Ambien about 3 weeks ago, my daughter is completely off all stimulants. She is still tired, requires a nap during the day, etc etc, but less medication is great. My daughter has other health issues that could be zapping her strength and our biggest challenge has been to find the right doctors, but we're getting there. I wanted to share the Ambien story just in case it might help someone else. One thing I've certainly learned, Narcolepsy is diffierent for everyone and the reaction to the various meds sure does differ. Take care all!


Have u tried melatonin? My daughter takes 3mg a night for about a month and she sleeps all night and has only one nap in the afternoon.