Jump to content


Photo

I woke up in a morgue


  • Please log in to reply
7 replies to this topic

#1 greatbig47

greatbig47

    www.newrolemodels.com

  • Members
  • 553 posts
  • Gender:Male
  • Location:Greenville, Michigan

Posted 01 May 2008 - 01:23 AM

The Discovery channel has a series called My Shocking Story. One of the installments in the series was called "I woke up in a morgue" It actually addresses Cataplexy like no one else has. I swiped the clips from YouTube, and posted them here...

Part 1

Part 2

Part 3

Part 4

Part 5



#2 Toph4er

Toph4er

    Member

  • Members
  • 139 posts
  • Location:So. Cal
  • Interests:Narcolepsy, chemistry, soccer, video games, sleeping

Posted 01 May 2008 - 11:21 PM

I've heard about this...I thought it was like an Onion thing lol. I don't remember where the article was, it was something like "The woman who died three times". Quite crazy, I think it led to a discussion about medical alert bracelets to avoid such a situation tongue.gif.

Chris"Toph4er"

Ah, here it is! http://archive.thear.../18/187718.html

And I noticed you are forgetting "Rat Race" in the topic description...and the new Dos Equis commercial dry.gif

After re-reading that article...I'd like to know how she goes from age 17 in 1995 to age 65 in 2000 tongue.gif

Ok, the teen girl they show after the first lady...her attacks seem to be random, not triggered by emotion. I'd say those are sleep attacks rather than C wouldn't you? I still collapse with my sleep attacks, but the difference is the emotional trigger, or so I thought. Sometimes my neck collapses when I'm laughing, etc. and other times I just fall down asleep (luckily I'm sitting most of the time!)

#3 sleepyavon

sleepyavon

    Member

  • Members
  • 63 posts
  • Gender:Female
  • Location:Frisco, TX 75034
  • Interests:Disability Activism, Narcolepsy, Fibromyalgia, RA, lipstick, fragrance, sports, FUN!, Xyrem, Cataplexy

Posted 04 May 2008 - 12:48 AM

Without Xyrem and Effexor XR, my cataplexy is very severe, and is triggered by the most common triggers, but also the most minute emotions caused me to fall into cataplexy, sometimes even really severe, like 45min to 2hrs.

#4 mastkids

mastkids

    Member

  • Members
  • 3 posts

Posted 06 June 2008 - 11:57 AM

QUOTE (sleepyavon @ May 4 2008, 06:48 AM) <{POST_SNAPBACK}>
Without Xyrem and Effexor XR, my cataplexy is very severe, and is triggered by the most common triggers, but also the most minute emotions caused me to fall into cataplexy, sometimes even really severe, like 45min to 2hrs.


#5 mastkids

mastkids

    Member

  • Members
  • 3 posts

Posted 06 June 2008 - 12:04 PM

I had a long time finally getting to a diagnosis of cataplexy because my episodes last up to 3 hours. I feel as if I've been hit by a tranquilizer dart. I can't move but I can see, hear, talk. I was beginning to think it was pyscjhosomatic because I kept being told cataplexy only lasts seconds or minutes.
I still haven't figured out triggers though eating is definitely one trigger. Interestingly, grocery stores have become someplace i am unwilling to go. It was good to read about the person who found grocery store freezer section a problem.
I live where it is very cold in the winter and find I've become extremely cold averse.
I am interested in what others find to be triggers.
I am certain I have both histamine and cholinergic triggers because antihistamines and anticholinergics have greatly reduced daytime sleepiness.
I'd like to hear from others who have extended cataplexy attacks.

Losing time is interesting too... I thought it happened to everyone when they were driving. Guess not.


#6 sleepylama

sleepylama

    Member

  • Members
  • 33 posts

Posted 06 June 2008 - 12:42 PM

I have had cataplexy for years (at least 7-8 years), individual muscle groups and such and had a full episode a few years back which we hadn't figured out what caused it (I eventually fell asleep during it...shocker since I sleep so much). Along w/EDS, sleep paralysis, hallucinations, loss of time, realizing I was somewhere that I didn't expect to be (driving, while out shopping, etc), memory loss, etc, etc, it was a full blown case of cataplexy this past January that really set the doc's wheels turning and got sleep studies, etc. It took all of these years because I have other auto-immune illnesses that have fatigue, muscle, tendon, and nervous system components, so figuring out what was and was not N was a challenge.

To your inquiry on extended cat attacks. The trip to the ER lasted 4 days. The first day I regained my face and neck, the second day my torso, the third day some leg movement and the forth day full use of my legs. It took another 2 weeks before I had full use of my muscles, they were all weak and I had to go to PT to help teach my brain that my muscles were still there. The neuro and 2 sleep specialists confirmed this is rare w/cat, but some people experience full disconnects between the nervous system and the muscles, essentially the nervous system doesn't recognize the muscles to get them to work. They all speculate in my case that my cat could be complicated by my other auto-immune diseases. If there was a neurological or bodily test to run, it was run on me in my time in the hospital!! Maybe others hear will chime in that this is not so rare w/people who get cat??

Since then I have continued to have individual muscle group cat attacks and have had a few full attacks, luckily for not as long as the one that sent me to the ER, but always for more than an hour. Pain certainly sets off my attacks (I have chronic pain w/my other health issues), but some seem to have no real triggers other than exhaustion...being awake for more than 45 min to an hour w/out resting. Thankfully, not laughter yet!

I have taken Provigil and Xyrem w/out positive impact and the side effects were dreadful for me, but others have a great response as I have seen here!! I am a very small person, as my docs say, weight wise, I am child, less than 95 lbs (but not unhealthy, just petite and my diet is pretty strictly vegetarian, w/a splurge every so often), so my ability to tolerate strong meds is difficult on top of all of my other compounding health concerns.

I am on Ritalin and Prozac now. They make me nauseated and have not helped at all yet, but I see my doc next week so we will talk about and keep working on it.

The longest amount of time I know I have lost is 4 hours...I lost a full cross country flight. Started on the East Coast, landed on the West Coast and I do not remember it...my hubby says we watched a movie and had a snack and other than looking tired, he had no clue I wasn't "with him". C'est La Vie!

Oh, as for cold, I am EXTREMELY cold averse, even cool weather is too much for me. I also have Raynaud's Phenomenon where my extremities get very cold and painful and turn colors...like frost bite, it can happen in times that are not cold, but USUALLY it is set off by feeling cold weather, even just walking out to check the weather. My hubby and I eventually plan to move somewhere that never has winter, but for now, we are raising 2 kids and want them to experience all 4 seasons...even though my oldest son would hope on a plane to get away from winter forever as well if we said we were going. ;-)

#7 Marcianna

Marcianna

    Member

  • Members
  • 817 posts
  • Gender:Female
  • Location:Sleep State
  • Interests:Compassion

Posted 02 August 2008 - 10:23 PM

I saw this Show! Actually my parents saw it first and I got and ID bracelet for xmas. lol. The thing is about that womans experiences, is that is not likely to happen anymore. for starters she lived in a different country, that at the time, did not use the fancy smancy devices we have now to MAKE DEAD SURE, your gone. Also now with the cold storage drawers and such, if our bodies run that on that low of a ....uh... I dont know the word I'm looking for at the moment... shoot.
Anyway if we were in cold like that it would probably kill us. Least that what my Dad told me.

The whole thing really freaked me out. Not cuz of the idea that people could think I'm dead, but cuz of the morgue thing.
I am freaking crazy nuts scared poopless of Zombies. I hate the idea of being in a morgue ever. especially if I CANT MOVE!!!!! AGH!!!!!

#8 Kimberly

Kimberly

    Member

  • Members
  • 250 posts
  • Gender:Female
  • Location:Charlotte, NC
  • Interests:Retired racing Greyhounds

Posted 13 August 2008 - 09:16 AM

There is a woman on another message board that I have frequented who has an assistance dog because of the duration of her cataplexy attacks.

She has had people try to administer CPR to her, when she was clearly still breathing! Well-meaning, but sometimes people are idiots.

The dog carries instructions that tell people to check to see if she is breathing and not obviously injured; and if she is OK, to leave her alone and give her space. It also has a brief description of cataplexy. The dog stays near her and calms her and she actually feels that she is able to come out of her cataplexy sooner with the dog nearby.

I see stories like this and am very thankful that my episodes are brief.