I woke up in a morgue
Posted 01 May 2008 - 01:23 AM
Posted 01 May 2008 - 11:21 PM
Ah, here it is! http://archive.thear.../18/187718.html
And I noticed you are forgetting "Rat Race" in the topic description...and the new Dos Equis commercial
After re-reading that article...I'd like to know how she goes from age 17 in 1995 to age 65 in 2000
Ok, the teen girl they show after the first lady...her attacks seem to be random, not triggered by emotion. I'd say those are sleep attacks rather than C wouldn't you? I still collapse with my sleep attacks, but the difference is the emotional trigger, or so I thought. Sometimes my neck collapses when I'm laughing, etc. and other times I just fall down asleep (luckily I'm sitting most of the time!)
Posted 04 May 2008 - 12:48 AM
Posted 06 June 2008 - 11:57 AM
Posted 06 June 2008 - 12:04 PM
I still haven't figured out triggers though eating is definitely one trigger. Interestingly, grocery stores have become someplace i am unwilling to go. It was good to read about the person who found grocery store freezer section a problem.
I live where it is very cold in the winter and find I've become extremely cold averse.
I am interested in what others find to be triggers.
I am certain I have both histamine and cholinergic triggers because antihistamines and anticholinergics have greatly reduced daytime sleepiness.
I'd like to hear from others who have extended cataplexy attacks.
Losing time is interesting too... I thought it happened to everyone when they were driving. Guess not.
Posted 06 June 2008 - 12:42 PM
To your inquiry on extended cat attacks. The trip to the ER lasted 4 days. The first day I regained my face and neck, the second day my torso, the third day some leg movement and the forth day full use of my legs. It took another 2 weeks before I had full use of my muscles, they were all weak and I had to go to PT to help teach my brain that my muscles were still there. The neuro and 2 sleep specialists confirmed this is rare w/cat, but some people experience full disconnects between the nervous system and the muscles, essentially the nervous system doesn't recognize the muscles to get them to work. They all speculate in my case that my cat could be complicated by my other auto-immune diseases. If there was a neurological or bodily test to run, it was run on me in my time in the hospital!! Maybe others hear will chime in that this is not so rare w/people who get cat??
Since then I have continued to have individual muscle group cat attacks and have had a few full attacks, luckily for not as long as the one that sent me to the ER, but always for more than an hour. Pain certainly sets off my attacks (I have chronic pain w/my other health issues), but some seem to have no real triggers other than exhaustion...being awake for more than 45 min to an hour w/out resting. Thankfully, not laughter yet!
I have taken Provigil and Xyrem w/out positive impact and the side effects were dreadful for me, but others have a great response as I have seen here!! I am a very small person, as my docs say, weight wise, I am child, less than 95 lbs (but not unhealthy, just petite and my diet is pretty strictly vegetarian, w/a splurge every so often), so my ability to tolerate strong meds is difficult on top of all of my other compounding health concerns.
I am on Ritalin and Prozac now. They make me nauseated and have not helped at all yet, but I see my doc next week so we will talk about and keep working on it.
The longest amount of time I know I have lost is 4 hours...I lost a full cross country flight. Started on the East Coast, landed on the West Coast and I do not remember it...my hubby says we watched a movie and had a snack and other than looking tired, he had no clue I wasn't "with him". C'est La Vie!
Oh, as for cold, I am EXTREMELY cold averse, even cool weather is too much for me. I also have Raynaud's Phenomenon where my extremities get very cold and painful and turn colors...like frost bite, it can happen in times that are not cold, but USUALLY it is set off by feeling cold weather, even just walking out to check the weather. My hubby and I eventually plan to move somewhere that never has winter, but for now, we are raising 2 kids and want them to experience all 4 seasons...even though my oldest son would hope on a plane to get away from winter forever as well if we said we were going. ;-)
Posted 02 August 2008 - 10:23 PM
Anyway if we were in cold like that it would probably kill us. Least that what my Dad told me.
The whole thing really freaked me out. Not cuz of the idea that people could think I'm dead, but cuz of the morgue thing.
I am freaking crazy nuts scared poopless of Zombies. I hate the idea of being in a morgue ever. especially if I CANT MOVE!!!!! AGH!!!!!
Posted 13 August 2008 - 09:16 AM
She has had people try to administer CPR to her, when she was clearly still breathing! Well-meaning, but sometimes people are idiots.
The dog carries instructions that tell people to check to see if she is breathing and not obviously injured; and if she is OK, to leave her alone and give her space. It also has a brief description of cataplexy. The dog stays near her and calms her and she actually feels that she is able to come out of her cataplexy sooner with the dog nearby.
I see stories like this and am very thankful that my episodes are brief.