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NN's Support Group List


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#1 Toph4er

Toph4er

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Posted 18 April 2008 - 11:20 PM

The following is from Narcolepsy Network's list of support groups by state. If links are broken, don't tell me, I'm just relaying the list!

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There are many Narcolepsy Support Groups throughout the U.S., and throughout the world. We maintain a database of active Support Groups, persons interested in starting up Support Groups, and local contact people who are not part of a Support Group but who are happy to provide one-on-one support to other people with narcolepsy in their areas.

The privacy of our Support Group leaders is of utmost importance to us and to them. Therefore, the listing provided below does not include personal contact information. Anyone interested in finding or starting an in-person support group should contact NN for further information and/or assistance:

Narcolepsy Network Inc.
National Office
79 Main Street
North Kingstown, RI 02852
TOLL FREE: (888) 292-6522 | Phone: (401) 667-2523 | Fax: (401) 633-6567
Email: narnet@narcolepsynetwork.org

In the U.S.

ALABAMA
Friends & Family of Persons Living with
Narcolepsy &/or Idiopathic Hypersomnia
Location: Serving Cullman, Alabama and Vicinity
Website: http://www.baptistme...rders/index.asp
Contact: Wanda B. Hyde at Wanda.Hyde@crmchospital.com

ARIZONA
Southwestern Narcolepsy Association, Inc.
Serving all areas of Arizona
Location: Mesa, AZ

CALIFORNIA
Narcolepsy Support Group
Area served: Fullerton and Vicinity
Contact: Margaret White, Ph.D.
Tel. (714) 446-7240 or Email: MWhite@Exchange.Fullerton.edu
2006 Meetings: Saturdays, Januuary 21, April 22, Jul 22, Oct. 28
10 am - Noon
Location: Sleep Disorders Institute
St. Jude Medical Center
1915 Sunny Crest Drive
Fullerton, CA 92834

Narcolepsy Network Support Group of San Diego County
Serving the San Diego Metropolitan Area and all of San Diego County
Location: San Diego, CA
Website address: http://www.sandiegodreamcatchers.org

COLORADO
Narcolepsy Network Support Group of MetroDenver
Website: http://groups.msn.co...ort-denvermetro
Contact: Beverly at emerging2@msn.com

DISTRICT OF COLUMBIA
Washington Area Narcolepsy Support Group
Serving Washington, DC and Vicinity
Next Meeting: March 3, 2007. Details.

FLORIDA
Florida Narcolepsy Association
Serving Sarasota, St. Petersburg and Vicinity
Website: http://www.flnarcolepsy.org/

Narcolepsy Network Support Group of Tampa Bay
Serving Tampa Bay and Vicinity
Contact: Cheryl Conaty at (813) 884-2825

ILLINOIS
Narcoleptics and Partners (NAP)
Serving 7-state region surrounding Metro Chicago
Center for Narcolepsy Research
University of Illinois at Chicago
Website: www.uic.edu/depts/cnr

INDIANA
Indianapolis Area Narcolepsy Support Group
Serving North Indianapolis Area
Meets on the second Saturday of every even month at 4 p.m.
7250 Clearvista Drive, Indianapolis
(professional bldg. behind Community North Hospital) 3rd Floor multi-service room
For further information and/or meeting reminders, write to k.heeter@insightbb.com or call (765) 621-2799
Website: http://home.insightb...olepsy_indiana/

MASSACHUSETTS
Boston Area Narcolepsy Suport Group
Serving Boston and vicinity
Address: Lahey Clinic Medical Center
Burlington, MA 01805
Next Meeting: September 16, 2006. Details.

MISSOURI
The St. Louis Narcolepsy Support Group
Serving St. Louis Metro Area
Website: http://pages.sbcglob.../stlouissleeper

NEW YORK
Long Island Narcolepsy Support Group
Serving Long Island and surrounding areas

Narcolepsy Institute
Serving NY Metro Area
Website: http://www.narcolepsyinstitute.org/

OHIO Central Ohio Sleep Disorders Support Group
Serving Columbus, Ohio and surrounding areas
Website: http://groups.yahoo....osleepdisorders
NOTE: Group meets from 2:00 - 4:00pm on the third
Sunday of the month at various locations in the Columbus area. Wed. evening meetings will be held from 5:30 - 7:00pm in the first month of each quarter. All are welcome to attend. We are an informal patient support group of people with various sleep disorders who started meeting in 1986. We exist to help each other and anyone interested in learning more about sleep through educational materials, guest speakers, referrals to community services, suggested readings, contact with national organizations, and most importantly, support among our members.

SNEWS
Serving Cincinnati and surrounding tri-state area
Location: Cincinnati

PENNSYLVANIA
Awake In Philly Community Education Group
Serving the Greater Philadelphia metropolitan area (southeastern PA, NJ, DE, MD) Websites: http://www.awakeinphilly.org/
http://www.sleepetimes.net/

NAPS, Narcolepsy Association of Philadelphia and Suburbs
Serving Philadelphia and surrounding areas
Website: http://hometown.aol.com/katlynran

TEXAS
Gulf Coast Narcolepsy Support Group
Serving Texas/Louisiana Gulf Coast area
Location: Houston, TX

Outside the U.S.

AUSTRALIA
Narcolepsy and Overwhelming Daytime Sleep Society of Australasia Inc.
Website: http://www.nodss.org.au/

CANADA
Canadian Sleep Societe
Website: http://www.css.to/sleep/info.htm
Sleep Wake Disorders Association of Toronto
Meets monthly.
Website: http://www.geocities.com/swdatoronto

GERMANY
Landesverband Bayern Ute Veit,
Website: http://www.dng-ev.de/

SWITZERLAND Swiss Narcolepsy Association
Website: http://members.tripod.com/~dongari

UNITED KINGDOM
Narcolepsy Association UK
Website: http://www.narcolepsy.org.uk/

ONLINE SUPPORT

A number of websites offer people with narcolepsy the opportunity to participate in online chats or discussion groups. Many people find that "talking" to others with narcolepsy is reassuring, and provides lifestyle information that is helpful. However, be aware that information available through these online discussion groups does not constitute medical advice. Always seek expert medical advise before modifying the treatment prescribed by your physician.

NARCOLEPSY NETWORK MESSAGE BOARD

NARCOLEPSY INTERNET (aka The N-List)

Subscription-based private E-mail Discussion Group
(Membership limited to persons with narcolepsy and their caregivers.)
Website: http://www.narcolepsy.org/

SPANISH LANGUAGE

Spanish language Narcolepsy Forum
http://angelfire.com/nc/narco

TALK ABOUT SLEEP

Information, Chats, Message Boards, Links
http://www.talkaboutsleep.com/

PEOPLE WITH NARCOLEPSY

Patient-run narcolepsy support forum.
htto://www.teamidesign.com/pwn