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Toph4er

NN's Support Group List

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The following is from Narcolepsy Network's list of support groups by state. If links are broken, don't tell me, I'm just relaying the list!

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There are many Narcolepsy Support Groups throughout the U.S., and throughout the world. We maintain a database of active Support Groups, persons interested in starting up Support Groups, and local contact people who are not part of a Support Group but who are happy to provide one-on-one support to other people with narcolepsy in their areas.

The privacy of our Support Group leaders is of utmost importance to us and to them. Therefore, the listing provided below does not include personal contact information. Anyone interested in finding or starting an in-person support group should contact NN for further information and/or assistance:

Narcolepsy Network Inc.

National Office

79 Main Street

North Kingstown, RI 02852

TOLL FREE: (888) 292-6522 | Phone: (401) 667-2523 | Fax: (401) 633-6567

Email: narnet@narcolepsynetwork.org

In the U.S.

ALABAMA

Friends & Family of Persons Living with

Narcolepsy &/or Idiopathic Hypersomnia

Location: Serving Cullman, Alabama and Vicinity

Website: http://www.baptistmedical.org/cullman/prog...rders/index.asp

Contact: Wanda B. Hyde at Wanda.Hyde@crmchospital.com

ARIZONA

Southwestern Narcolepsy Association, Inc.

Serving all areas of Arizona

Location: Mesa, AZ

CALIFORNIA

Narcolepsy Support Group

Area served: Fullerton and Vicinity

Contact: Margaret White, Ph.D.

Tel. (714) 446-7240 or Email: MWhite@Exchange.Fullerton.edu

2006 Meetings: Saturdays, Januuary 21, April 22, Jul 22, Oct. 28

10 am - Noon

Location: Sleep Disorders Institute

St. Jude Medical Center

1915 Sunny Crest Drive

Fullerton, CA 92834

Narcolepsy Network Support Group of San Diego County

Serving the San Diego Metropolitan Area and all of San Diego County

Location: San Diego, CA

Website address: http://www.sandiegodreamcatchers.org

COLORADO

Narcolepsy Network Support Group of MetroDenver

Website: http://groups.msn.com/nn-support-denvermetro

Contact: Beverly at emerging2@msn.com

DISTRICT OF COLUMBIA

Washington Area Narcolepsy Support Group

Serving Washington, DC and Vicinity

Next Meeting: March 3, 2007. Details.

FLORIDA

Florida Narcolepsy Association

Serving Sarasota, St. Petersburg and Vicinity

Website: http://www.flnarcolepsy.org/

Narcolepsy Network Support Group of Tampa Bay

Serving Tampa Bay and Vicinity

Contact: Cheryl Conaty at (813) 884-2825

ILLINOIS

Narcoleptics and Partners (NAP)

Serving 7-state region surrounding Metro Chicago

Center for Narcolepsy Research

University of Illinois at Chicago

Website: www.uic.edu/depts/cnr

INDIANA

Indianapolis Area Narcolepsy Support Group

Serving North Indianapolis Area

Meets on the second Saturday of every even month at 4 p.m.

7250 Clearvista Drive, Indianapolis

(professional bldg. behind Community North Hospital) 3rd Floor multi-service room

For further information and/or meeting reminders, write to k.heeter@insightbb.com or call (765) 621-2799

Website: http://home.insightbb.com/~narcolepsy_indiana/

MASSACHUSETTS

Boston Area Narcolepsy Suport Group

Serving Boston and vicinity

Address: Lahey Clinic Medical Center

Burlington, MA 01805

Next Meeting: September 16, 2006. Details.

MISSOURI

The St. Louis Narcolepsy Support Group

Serving St. Louis Metro Area

Website: http://pages.sbcglobal.net/stlouissleeper

NEW YORK

Long Island Narcolepsy Support Group

Serving Long Island and surrounding areas

Narcolepsy Institute

Serving NY Metro Area

Website: http://www.narcolepsyinstitute.org/

OHIO Central Ohio Sleep Disorders Support Group

Serving Columbus, Ohio and surrounding areas

Website: http://groups.yahoo.com/groups/centralohiosleepdisorders

NOTE: Group meets from 2:00 - 4:00pm on the third

Sunday of the month at various locations in the Columbus area. Wed. evening meetings will be held from 5:30 - 7:00pm in the first month of each quarter. All are welcome to attend. We are an informal patient support group of people with various sleep disorders who started meeting in 1986. We exist to help each other and anyone interested in learning more about sleep through educational materials, guest speakers, referrals to community services, suggested readings, contact with national organizations, and most importantly, support among our members.

SNEWS

Serving Cincinnati and surrounding tri-state area

Location: Cincinnati

PENNSYLVANIA

Awake In Philly Community Education Group

Serving the Greater Philadelphia metropolitan area (southeastern PA, NJ, DE, MD) Websites: http://www.awakeinphilly.org/

http://www.sleepetimes.net/

NAPS, Narcolepsy Association of Philadelphia and Suburbs

Serving Philadelphia and surrounding areas

Website: http://hometown.aol.com/katlynran

TEXAS

Gulf Coast Narcolepsy Support Group

Serving Texas/Louisiana Gulf Coast area

Location: Houston, TX

Outside the U.S.

AUSTRALIA

Narcolepsy and Overwhelming Daytime Sleep Society of Australasia Inc.

Website: http://www.nodss.org.au/

CANADA

Canadian Sleep Societe

Website: http://www.css.to/sleep/info.htm

Sleep Wake Disorders Association of Toronto

Meets monthly.

Website: http://www.geocities.com/swdatoronto

GERMANY

Landesverband Bayern Ute Veit,

Website: http://www.dng-ev.de/

SWITZERLAND Swiss Narcolepsy Association

Website: http://members.tripod.com/~dongari

UNITED KINGDOM

Narcolepsy Association UK

Website: http://www.narcolepsy.org.uk/

ONLINE SUPPORT

A number of websites offer people with narcolepsy the opportunity to participate in online chats or discussion groups. Many people find that "talking" to others with narcolepsy is reassuring, and provides lifestyle information that is helpful. However, be aware that information available through these online discussion groups does not constitute medical advice. Always seek expert medical advise before modifying the treatment prescribed by your physician.

NARCOLEPSY NETWORK MESSAGE BOARD

NARCOLEPSY INTERNET (aka The N-List)

Subscription-based private E-mail Discussion Group

(Membership limited to persons with narcolepsy and their caregivers.)

Website: http://www.narcolepsy.org/

SPANISH LANGUAGE

Spanish language Narcolepsy Forum

http://angelfire.com/nc/narco

TALK ABOUT SLEEP

Information, Chats, Message Boards, Links

http://www.talkaboutsleep.com/

PEOPLE WITH NARCOLEPSY

Patient-run narcolepsy support forum.

htto://www.teamidesign.com/pwn

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