sleepyavon

Funny, Cataplexy is only really funny in hindsight!

Cataplexy is Funny....   32 votes

  1. 1. Cataplexy is Funny...

    • The Moment it Happens... I like to Freak ppl Out LOL!
      2
    • In Hindsight, after I am safe from injury.
      9
    • A Very Few Certain Occasions become classics, but most are inconviences.
      15
    • No, cataplexy is NEVER funny, absolutely never funny!
      6

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33 posts in this topic

In my experience with severe Cataplexy, aka, before my magic combo Xyrem and Effexor XR and when I am not on them, I find my Cataplexic Episodes to be funny pretty much only after the fact, because I don't like the feeling of being paralized or falling. However, they do make funny stories after the fact... like the time I was paralyzed for well over a half hour, and my Dad wanted to see If I could really hear when in Cataplexy, so he said, "Rachel, the secret word is Pomegranite" I did keep going in and out of cataplexy, because I found my Families's words and reactions funny. When I finally was able to gain my composure back again, I said to my Dad, " The secret word is Forbidden Frrruiiii.....", as I fell again into cataplexy. That is the best cataplexy story I have to tell. I reinacted it at a NN conference just the year before last when it was here in Dallas, TX. Mostly cataplexy is only funny when told in the context of a story. Cataplexy itself, has never really been funny to me. It was ruining my life, and I was afraid to leave.... before my Xyrem and Effexor XR combo, of course! Now my cataplexy is much more mild, unless if I ever have a lapse of my meds, usually when I run out and have trouble getting more, because our copays are high. You have to have no RX insurance to get the PPA help.

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Luckily my C is pretty mild, but it is fun to see people "panic" when the more dramatic ones hit. I think my best was sitting out with some friends at lunch and then I just kind of collapsed at the table a little before the bell rang. So, after a bit of my head being down...one of my friends looked over I guess and said "Oh my God, Chris are you alright?" in a bit of an awkward way, not real panicky, but definitely uncomfortable. I kinda looked up and he relaxed a little when the bell rang...it was funny to me...which didn't really help me recover to quickly, was a tad dizzy and unsteady when I got up :P.

Chris"Toph4er"

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Just when I think my cataplexy is almost gone, I have a weekend like this last and I get to laughing...leading to "that feeling"

The joy of it was I never felt so safe when it happened.

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I am glad you felt safe, Stu. When you are around people you trust, who know how to respond, etc., it can make all the difference. My husband and sister are the ones who help me the most... like making sure my neck is up so I can still breathe, etc.

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Awwww.....Your lucky to have a family that helps you. :)

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Im feeling in a Huggy mood today so every one here is getting a hug! yay! hugs! :lol:

HUG HUG HUG HUG HUG HUG HUG HUG

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On a scale of 1 to 10 of how much I love my NN family I give a 9.999999999 :)

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On a scale of 1 to 10 of how much I love my NN family I give a 9.999999999 :)

Not a 10? :lol:

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Im only joking Id give a 21... lol ;)

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Im only joking Id give a 21... lol ;)

Awww.... I heart you all, too! The feeling in Mutual and all that Fluff LOL! :lol:

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This is a great topic!

ok. . . 2 quick stories. The first time my husband, boyfriend at the time, witnessed my CAT, he ran to the fridge and rubbed ice all over me trying to keep me conscious. He was hysterical. I finally told him what was going on when I came to. OK maybe that one wasn't that funny but this one was great.

I was at a concert/festival when I was 16. I was standing in line at the conscession area and boom. . . When I could finally speak, the paramedics with their ambulance golf cart were there asking my boyfriend what I had "shot up." I laughed, but got fuzzy again. Finally, I got up and when we explained what had happened, I signed a release not to go to the hospital (at 16 I don't know how that one flew), so they put my boyfriend and I on the ambulance/golf cart thing, turned the lights and sirens on, and drove us over the entire yard, through the crowd, right in front of the stage. It was great!

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My worst CAT episodes all seem to happen while I'm laughing. I have a few funny CAT stories but the best one so far is: one day while walking behind my son, I noticed his pants were slowly dropping down lower and lower (he wasn't wearing a belt) and just as I was calling out to him to grab his pants .. whoosh there they were pooling around his ankles!! My gutt was hurting from laughing so hard, my knees started buckling and if it hadn't been for the tree right there for me to hold on to I would have been a "pool" myself on the ground ... however to everyone else in the parking lot it looked like I was humping the tree!

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lol, I was at Disney's grad night last Thursday. I told my friend's girlfriend about my N and she was paranoid that I was gonna collapse and fall into irreversible sleep. A few times i did nod off some, but the best was when I fell asleep on the Matterhorn :D. She was a car ahead of me, and when she looked back when she was getting off the ride she looked back and saw me asleep, well kind of waking up. She was entirely at a loss at how I could fall asleep on that. Really, I think I fell asleep on every ride some, I think it was the excitement of them, but that still doesn't explain Alice in Wonderland :P. Yea I think I did nod off on each ride...Alice, Matterhorn, Thunder Mountain, Pirates, Splash Mountain, Autopia (my cousin works that ride so I had to say hi, nearly ran off the tracks!), Haunted Mansion, the spinning rocket ride (at the same time as fireworks even), the Buzz Lightyear thing, and whatever else we went on.

Ah so fun.

Chris"Toph4er"

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After attending the neurologist, while waiting in a very quiet hallway for the elevator, I started to wonder how people would react if I walked into the elevator, smiled at everyone, asked each individual how their day was and didn't turn around to face the door. In other words give them my full, caring attention. By the time the doors opened, I merely collapsed against the door frame and the elevator left without me. (They probably realized that most of the neurologists were located on that floor.) It still makes me weak in the knees to think about it. Is a quirky sense of humour common among people with narcolepsy? I think the dumbest things are funny but before I can explain why, I usually have another episode. My family looks very uninterested when I drop, only because I have told them to leave me alone, I find it easier to "come out of it"if people aren't flapping about.

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Does anyone have any not funny stories or is it just me?

I am a wreck when people die. And funerals are really embarrassing.

I had to go to one last week of my friend who was robbed shot and killed at the bar he worked at.

I always have to be careful to not go to close to the caskets so I dont fall in.

Not only would that be horribly devastating for the families and me if it were to ever happen...

I am totally afraid of dead people... so it would make it worse I'm sure.

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After attending the neurologist, while waiting in a very quiet hallway for the elevator, I started to wonder how people would react if I walked into the elevator, smiled at everyone, asked each individual how their day was and didn't turn around to face the door. In other words give them my full, caring attention. By the time the doors opened, I merely collapsed against the door frame and the elevator left without me. (They probably realized that most of the neurologists were located on that floor.) It still makes me weak in the knees to think about it. Is a quirky sense of humour common among people with narcolepsy? I think the dumbest things are funny but before I can explain why, I usually have another episode. My family looks very uninterested when I drop, only because I have told them to leave me alone, I find it easier to "come out of it"if people aren't flapping about.

I have a pretty bizarre sense of humor too. when I was reading your story I about lost it! That is totally something I would do! Not because I truly care about them but because it would make them uncomfortable. And that to me is funny! But to answer your question... I don't know. My quirky SOH comes from my dads side of the family. we are all a little crazy. It's great cuz it drives my mom nuts!

I also have told people to shut up till I get up. mostly cuz I stop breathing alot during my cataplexy. So even if I dont land badly, it still hurts really bad.

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I totally stabbed myself with scissors last night so today cataplexy is not funny. <_< It was messy and gross and hurts like all kindsa crazy. I was outside trimming some plants and someones very big dog got loose and scared me. I ended up in the ER.

Maybe tomorrow I will be able to laugh at this. Right now I am still sick from the tetnus shot. ARGH! :angry:

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Hey! I'm totally new here. Just signed up a minute ago cuz I thought it would be cool to talk to people like me!

Anyway, most of my attacks are funny if I'm with other people. But if I home alone or something there are just annoying and sometimes scary. Does anybody else have a problem when you are trying to be really witty and make a good joke? It's like my body has a spike of, idk, something and sometimes I can't even finish the funny thing I'm trying to say! So annoying! Oh and I have no idea if this has anything to do with cataplexy or not but I have a bad reaction to adrenaline. Even just a little dose or it (like when I'm a little excited about a new movie I've been wanting to see) makes me start shaking all over. It's really weird.

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Does anybody else have a problem when you are trying to be really witty and make a good joke? It's like my body has a spike of, idk, something and sometimes I can't even finish the funny thing I'm trying to say! So annoying!

YES!!! I hate when that happens! :)

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Did any of you ever see the episode of Cheers (OK, maybe those over 30) where Cliff Claven lost his vision when he fell in love? Season 8, Episode 4, 10/19/89: How to Marry a Mailman. "Hysterical Blindness," it was called. It is actually a real life psychiatric disorder that is called Conversion Disorder.

Well, for years, when I would lose my muscle tone when laughing really really hard, my family and I joked that it was "Hysterical Blindness." I never thought there was anything wrong with it -- I just figured I was lucky that I laughed so, so hard and had that much joy in my life.

Last summer when I had an episode of Hysterical Blindness while I was driving -- very scary -- I finally figured I should have it checked out. This was after about 13-14 years of symptoms. I didn't know what to call it, so when I got home I Googled "hysterical blindness." Didn't get me the info I needed, but gave me enough time to think of a better search -- "loss of muscle control when laughing" -- and that's when I first learned about Cataplexy and its connection to Narcolepsy. And that's when I when in to my PCP to ask for a referral to a sleep specialist.

We still call it Hysterical Blindness because most of the time it is pretty hysterical.

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Awww.... I heart you all, too! The feeling in Mutual and all that Fluff LOL! :lol:

Well, my catalplexy episodes are quite mild, so there's this guy that i always try to stay away from, cos i can feel my knees and body get all jelly like whenever i just c him, cos i knw he's gona make me laugh...LOL!

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OK, is this cataplexy,or something else? When I was in HighSchool, there was a boy I was infatuated with, I mean really. I joined all the clubs he was in,just to get up the courage to ask him to the Christmas Dance. The problem was, whenever I was near him, I couldn't move or even talk.

Now, I have NEVER been unable to talk - even after a severe car crash!

I mean stunned silence!

I could hear all the things I would have responded to his inacuous Hello,but I couldn't do anything! I was rooted to the spot. I could hear myself telling me to stop being silly and say hello,but I couldn't say anything. This happened over and over again,as he was a cheerful,polite person.

Is this a weird form of Cataplexy, or am i just weird?

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YES!!! I hate when that happens! :)

I hate it when this happens, to a good joke, a thought from the past, sometimes the shock of something horrible happening to someone else that you may hear of on the news.

Recently over in UK there is a girl called Kay Underwood who is nicknamed the giggle girl her friends make her laugh and she falls. She has been on GMTV sub heading Giggle Girl where she drops and they class it as a cataplectic attack she does not fall in a heap and is also able to look up at her friends still laughing telling them to stop. This must be the mildest form of Cataplexy I have ever seen and within a year she is controlled and getting her Driving licence back.

One of the points I am making regarding this girl is she only mentions laughing will make her collapse and the way it is portrayed is that If people would know you had this condition when you go shopping etc, then to make you laugh which would make us collapse. I have stressed my point on the UKAN site here in the Uk as she is a member of it. But others seem to stick up for her and I quote.

" THERE IS NO SUCH THING AS BAD PUBLICITY". Im sorry to rant, but to all the people who do collapse in a heap and hurt/injure themselves on a regular basis this is not pleasent or funny. Her point is that without medication she would collapse 40 times a day!!!!!!!!!!!!!! If anyone made any of us laugh allday I'm sure some people would be into triple figures. So how would this justify the problem if it is brought on more by the so called people around her.

I am slightly hesitant to go down my local street cause I don't like the experience everytime it happens let alone someone who I don't know trying to make a joke just to make me collapse.

Ow and apparently according to her it is laughing only that causes a cataplexy attack. I think that this person needs to see what a proper attack is and what damage her views can cause other people with a neurological disorder.

You may view this if you search GMTV ,Then search videos for Giggle girl.

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