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Calling all new users

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#261 Lorax64



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Posted 03 September 2014 - 09:57 AM

Welcome to all! Elaine, we are not from BC but maybe someone is....? 

#262 Cstarr2



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Posted 23 September 2014 - 02:49 PM

My name is Courtney. I am from NOLA but am currently living in Baton Rouge with my fiancé. I was fairly recently diagnosed with N within the past year. I wrote about it on a different post/forum. I haven't been very active on here but recently have had trouble adjusting to living with N and have found myself wishing I had someone to talk to/relate with about it so I found myself back here =)

#263 BeBe24



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Posted 01 October 2014 - 04:08 PM

Hello! My name is Caroline and I'm 22. I just received my N diagnosis today and I also have cataplexy. I've been lurking in these forums for a while and it's been a great help to me in understanding what's going on with me. Was taking Adderall for ADHD, but that didn't help with the symptoms after a while and I ended up getting referred by my Psychiatrist to get tested for N.


With the diagnosis, I hope my quality of life won't be significantly lessened and I'm still holding onto the hope that I'll wake up one morning without N. I know it seems ridiculous to hope that, but I can't help it and I guess I'm still in the pre-acceptance stage...

#264 Kriqit



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Posted 02 October 2014 - 02:20 AM

Welcome Caroline! I know the feeling. What gets me through the tough days is reminding myself how far I'd already gotten with the last 8 years of symptoms. I didn't know what it was then, but now that I do, I've got doctors and knowledge to get me even more out of life. I hope we can help you gather up some answers and push along toward a better day. :)

#265 alyj



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Posted 24 October 2014 - 08:40 PM

My name is Aly, I've had Narcolepsy with Cataplexy since I was 10 years old but got the diagnosis when I was 18. Over the years I had to deal with being yelled at for falling asleep when it was out of my control and people constantly saying 'well if you got more sleep then you wouldn't be tired during the day'. My Cataplexy is triggered by fear/being startled, being upset, and laughing. 

#266 Ferret



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Posted 24 October 2014 - 10:15 PM

Welcome Aly!...short for Allison? That's my granddaughter's name and I've always called her alleycat. She will be 16 in January.

You must be a very strong young lady to be dealing with all this and you're just 20 now. I really hope that you're doing well and striving towards achieving your dreams. My cataplexy is triggered by exactly the same things but laughing is number one for me....I really hope that it's #1 for you too.

#267 xNiks



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Posted 26 October 2014 - 08:06 PM

My nme's Nicole--or Niks--and I've been struggling with narcolepsy with cataplexy since I was 9 or 10. I just got diagnosed this year at 20. I'm trying to get by the best I can, but between the medical bills and trying to go to school, well. A little support sounded nice. I got tired of having no one to take to about Narcolepsy! So here I am!

#268 Hank



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Posted 27 October 2014 - 11:51 AM

Welcome to the club