Welcome to all! Elaine, we are not from BC but maybe someone is....?
Calling all new users
Posted 23 September 2014 - 02:49 PM
Posted 01 October 2014 - 04:08 PM
Hello! My name is Caroline and I'm 22. I just received my N diagnosis today and I also have cataplexy. I've been lurking in these forums for a while and it's been a great help to me in understanding what's going on with me. Was taking Adderall for ADHD, but that didn't help with the symptoms after a while and I ended up getting referred by my Psychiatrist to get tested for N.
With the diagnosis, I hope my quality of life won't be significantly lessened and I'm still holding onto the hope that I'll wake up one morning without N. I know it seems ridiculous to hope that, but I can't help it and I guess I'm still in the pre-acceptance stage...
Posted 02 October 2014 - 02:20 AM
Posted 24 October 2014 - 08:40 PM
My name is Aly, I've had Narcolepsy with Cataplexy since I was 10 years old but got the diagnosis when I was 18. Over the years I had to deal with being yelled at for falling asleep when it was out of my control and people constantly saying 'well if you got more sleep then you wouldn't be tired during the day'. My Cataplexy is triggered by fear/being startled, being upset, and laughing.
Posted 24 October 2014 - 10:15 PM
Welcome Aly!...short for Allison? That's my granddaughter's name and I've always called her alleycat. She will be 16 in January.
You must be a very strong young lady to be dealing with all this and you're just 20 now. I really hope that you're doing well and striving towards achieving your dreams. My cataplexy is triggered by exactly the same things but laughing is number one for me....I really hope that it's #1 for you too.
Posted 26 October 2014 - 08:06 PM