What do you do for a living?
Posted 14 January 2012 - 04:03 PM
Posted 14 January 2012 - 10:18 PM
lol. yes!!!! if i take any EDS meds during the day, I will have horrible rebound insomnia at night. I do better at night if I take no wake meds during the day. Oxymoron is right. I struggle to stay awake with meds, then struggle to fall asleep at night: It's during those kind of nights that my sleep walking is the worst...by the time I do fall "asleep". Go figure. It's like my brain has a mind of its own, and so do the meds, and they're stark opposites.
I'm an RN on the Adult Behavioral Health Unit. I've had hypersomnia since for over 15yrs. I work PRN and raise my son and he is a full time job! I worked full time on a med/surg unit prior to what I do now and working second shift helps me not have to get up so early. Does anyone with hypersomnia also have insomnia? It seems like an oxymoron but it's very real. I'm tired all day but can't sleep at night. It's crazy!
Posted 04 June 2012 - 05:50 PM
I haven't gotten a diagnosis yet, but I feel pretty confident that it's N. I just recently had the PSG and MSLT done, and during the MSLT I went in to REM 3/4 of the naps. But I'm not sure whether I want to tell my agency about it... Like I said, none of my current clients are at risk to suddenly go in to cardiac arrest, but it is true that these things happen unexpectedly and I need to be able to recognize subtle signals. And I can't do that if I'm dozing off >.<
Posted 05 June 2012 - 11:03 AM
Posted 02 August 2012 - 07:15 PM
Posted 12 August 2012 - 11:30 PM
Basically, if it involves art and I think I can do it, then I probably have my thumb in it. I already have stuff up for t-shirts on CafePress, and I entered a MightyFine Adventure Time t-shirt design contest, but I also plan on putting my own original artwork up as posters and as t-shirt designs.
And, ugh, working birthday parties and commissions and stuff like that. I've got a birthday party coming up in the beginning of September, for the daughter of my moms co-worker. Originally I was supposed to do only one thing, but then she went and had ideas... so now I'm doing three different things. I'm making a big Cat in the Hat drawing but w/o the hat for a "pin the Hat on the Cat" game, making Thing bodies with no heads so you can put your head where that's supposed to be and have your picture taken, and then I'm doing Thing caricatures for the kids.
You wanna know the horrible part though? I'm so bad with children, it's not even funny. So my mom is coming with me to make sure I don't screw it up. But also the lady who 'hired' me is nice so she said she'd handle the kids and all I would have to do was focus on drawing.
So yeah, I'm unemployed, trying to make money off my art and doing little jobs here and there. Not that this has been very successful... but, it'll work, I just need time.
Posted 13 August 2012 - 10:29 AM
Although I was just diagnosed We're pretty sure I've been living with N for over 4 or 5 years. I just assumed it was exhaustion due to the long hours of work with no breaks. I have found that I stay awake better when I have stuff to focus on. As soon as I got put in an office setting things started getting much worse. The progression was riddiculous. Before the worst thing I had to deal with were the ticks from stress and guiddiness, and the sleep spells from being up to long. Now I fight to stay awake all day long because I stare at a computer all day long. I guess maybe a degree in Computers is an odd thought, but if it holds my interest I'm better with the focus. I think the Cataplexy is as bad as it is now due to the high stress of the medical seperation. Not knowing what i'm going to do on the outside is a hard thing to deal with. Finding a job is not easy for a weapons loader, if you know of a job please let me know! The worrying about how I'm supposed to support my wife and kids is crazy. I don't know where to even start. I haven't been a civilian in forever. I forgot what the life is like. I know that the spot we're in now as a nation means work is going to be even harder to find. These are all the little things that stress me out. The meds were great at first. I had to try and find a way to express how they affected me because I just couldn't describe it myself. The best thing I had was that movie Limitless. Trying to explain how it felt like the haze was gone and I was awake instead of blurry was very difficult. Most people just don't understand. Sadly the effects were short lived. I've switched meds twice since then. I'm now using Ritilin and Dexadrine to stay awake. That and a whole lot of willpower.
Sorry for dragging on. This is my first time posting on the site, and it very liberating knowing that people might actually understand what I'm saying.
Posted 14 August 2012 - 10:36 AM
Posted 23 August 2012 - 09:12 AM
Posted 05 September 2012 - 11:33 PM
Before medical school, I spent a year teaching high school and coaching track and cheerleading. I always knew I wanted to be a doctor (since ~age 13), but I wanted to make some cash and I was a tutor for my university, where I discovered I loved teaching. It was a wonderful year, and we don't give our teachers enough credit :-) It's like babysitting 90+ kids a day. 90+ kids, most of whom, have no discipline at home and don't give a crap about school. It got a little wild, but I loved every minute. I also developed my "teacher face," "mom face" and "poker face" at the age of 22. Useful tools, for sure.
So happy to finally find N network and people who get what it's like!!!!
Posted 07 September 2012 - 10:34 PM
Posted 26 September 2012 - 07:52 PM
Like someone else said though - I'm not going to let N stop me from what I love to do! I love genetics, I love my job, I love to craft, I am going to start up taekwondo and kick-boxing again... And again, like someone else said, I'm so glad to have found a place that is full of people who know exactly what this is like.
Posted 14 October 2012 - 10:04 PM
I am an RN in an Adult ICU, day shift, full-time. Sometimes it's a struggle to concentrate when it's busy.
What type of work do you do?
I have a high achieving daughter (in her late 20's) who was diagnosed with Narc in her last year of university.She is now pursuing a stressful career as an attorney.With the assistance of meds she strives to maintain a normal professional career and social life for a bright & outgoing young person.She is single & has not advised anyone at work of her Narc.My impression is she works harder & longer to compensate.I would like her to lead a less pressured lifestyle and ,to the extent feasible,reduce her reliance on meds.What advice can others provide on how I can encourage this outcome? - or even if I should do so ?
Posted 28 October 2012 - 01:15 PM
Posted 13 December 2012 - 11:59 PM
Posted 14 December 2012 - 01:32 AM
However, I'm back in school, working on my BS in Computer Science, specializing in programming. I've been coding for fun since I was a kid, but not in any language that's actually useful in the business world, so I need to learn new languages (yay!) and get the paper that says I know them. Then, hopefully, I can find a job as a programmer--either with my current company or elsewhere. Then I'll have a job where I actually have things to work on! Programming can be stressful, yes, but nothing beats the feeling you get when you finally work out a problem that's been driving you up a wall. Love, love, love that feeling! Plus, a lot of the programmers for the company I currently work for get to work from home. I'm all for that.
Posted 15 December 2012 - 03:38 PM
Posted 30 May 2015 - 12:42 PM
I work in volunteer administration for a non-profit building wheelchair ramps for low-income seniors and families. It's been difficult because all of our teams are scheduled in the morning, and I can't always guarantee that I will wake up soon enough to get everything ready and make it to the site on-time. My boss has been thinking about firing me for a long time now because of this, despite the enormous expansion and funding I've brought into the program. I was diagnosed after I was hired, and it's proving to be real obstacle to any sort of professional development because of the strain it puts on my employee and my supervisor. I love this job, I love the work that I do every day, and I wish N didn't stand in the way so much, I just don't want to admit defeat, has anyone figured out how to make stringent morning schedules work? With my medication I don't have terrible sleep attacks anymore, but the c is getting worse. Anyone have any advice on controlling the c?