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cowladycc

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I am hopeing my child does not have narcolepsy but lately getting email from teacher saying stuff like this.

I often have to wake him up during my class. This sometimes results in an attitude on his part, but usually it means he will be awake for a few minutes before dozing off again. He takes TAKS benchmark tests in my room. During the last two benchmarks we gave, I had to wake up Cody numerous times. During the most recent test, I finally sent him to the bathroom to splash water on his face; that helped some. He is not laying his head down to take a break, as many students do; Cody falls asleep while sitting up and reading a question. He barely keeps his eyes open some days. He often props his head on his hand; this position almost always results in him falling asleep. If it is quiet in the room, like it is during testing, I have to wake him up every five to ten minutes. I have Cody right before lunch, between 9:50 and 10:35. If he had a good, restful night's sleep, I would expect him to be alert and participating; some days he is, and most days he is not. Please let me know if you have further questions. My child was dignosed with cancer when he was three now in remissons. Then was dignosed with ADHD years later but we dont give him anything for it now sleeping in class could he have narcolepsy? Help

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Hi Cowlady:

If your son is getting enough sleep, it's not normal for him to be falling asleep during the day. Narcolepsy or another sleep disorder is a strong possibility.

You'll need to get a referral for a sleep study. You can check www.sleepcenters.org for the sleep disorders centers in your area. Insist that he be tested at an accredited sleep center. Offer to take a cancellation if there is a long wait list.

If you do have to wait for the sleep study, don't wait to ask for accommodations. A nap or two during the school day, right before Cody gets sleepy, may help him stay awake for the rest of the day. If not, home tutoring is an option until he is diagnosed and treated. He won't learn much in the classroom if he's sleepy all the time. At home, there is much more flexibility in what he can be doing during lessons to stay awake ... breaks, physical movement, faster pace, etc.

Kudos to the teacher, BTW. So many of us were ignored when we slept in class, and some were even taunted and ridiculed by the teachers and school administration. An early diagnosis, treatment and non-medication management will go a long way in restoring Cody's alertness and success in school!

The parents on this board are terrific in sharing experiences and answering questions. There is no better resource than someone who's been there. Keep us all posted!

Sharon

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Hi there,

It was not long ago, that I recieved similar notes, like.."Just wanted you to know that Kaine fell asleep during class again, was taken to the nurses office where he slept a majority of the day."

I started taking him to the Dr because I was concerned that he might be sick, or have a sleep disorder.

My suggestion is to take him to the Dr as soon as possible. Especially because he has a history of cancer. We took our son to his Primary Care Dr wh ordered lab tests, an MRI, EEG, etc. When all the tests results came back normal, she sent him to a sleep specialist, who diagnosed him with Narcolepsy.

It definitely does not sound normal to fall asleep like that, and to that extent. If he has a medical condition causing it, then you can get a 504 plan or IEP to make accomodations for him at school.

How old is your son? Do you think anything is going on at night or during the day that could acount for his severe fatigue?

Feel free to contact me anytime,

Ammey

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Yes, I would aggree it would be best to take your child to the doctor. Explore all possible diagnoses. I got N as a young adult, but I still couldn't make it without my parents, nor my husband.

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You know, Thats exactly what I was like In school when I was young. I have a strong feeling that Narcolepsy is a possibility.

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