Posted 08 February 2008 - 09:39 AM
Posted 12 February 2008 - 07:38 PM
If you see a continuing problem, continuing counseling to help him deal with growing up with a chronic health issue could be helpful.
Posted 25 February 2008 - 10:03 PM
I know many adults whos moods are affected by fatigue, or lack of sleep, for my son it is the same. He tends to be more volatile, moody, anxious and impaient when he is sleepy. Although I understand it, it does not make it easier to deal with on a daily basis.
He holds it together at school now, but before the diagnosis and Provigil, he just could not keep it together at school. The new school he is at is clueless about the Drs orders and flatly refuses to give him a quiet place to nap.
Don't forget the hormones at this age too! I have a 14 yr old as well, and he got pretty emotional at this age too. He also has medical issues. It is a lot to deal with at this age.
ANyway, I am so glad to have found this forum. I cannot tell you what a relief it was to find the words children + narcolepsy together!
Posted 27 February 2008 - 11:11 PM
Posted 15 April 2008 - 08:15 PM
How are you and alex doing?
I'll see you at the next NN meeting ok?
Posted 18 April 2008 - 10:25 PM
Heck, try to humor him and have fun as much as possible. Don't just be a friend, but you don't want to be a block wall either!
Posted 02 July 2008 - 01:13 AM
Posted 02 July 2008 - 10:08 AM
It's my husband with N, we do have a daughter diagnosed with Bipolar Disorder. But now we think it may be N instead (taking her for testing to see).
Over the years we noticed that it was very hard for her to keep her emotions in check while she was at school and then would have to decompress when she got home. All of us, including her 2 sisters and 1 brother needed to be able to walk on eggshells incase she had a "bad day".
We have been fortunate enough to have teachers and programs that are willing to offer "time out" spaces and allow her to nap if she needed to after an emotional outburst in the classroom.
My advice is to try to keep a pleasant routine at home that is consistant.
I tend to let her come home and have a snack and unwind while watching tv.
She's 18 now and still has to have the same after school routine, but it does get easier.
I've also learned that if they want space, it's best to give it to them until they are calm.
My thoughts are with you all dealing with kids with outbursts.
Posted 31 January 2009 - 12:34 PM
Posted 30 January 2011 - 10:53 PM
My son, almost 12, is having a hard time controlling his emotions. He has talked to a professional but I think as he matures he is going to have to learn strategies to get himself to calm down. He rarely loses his composure at school, mainly it is at home when he is asked to do something he doesn't want to do. Do any of you have this problem with your children and how do you handle it? Susan in Charlotte
I understand what you are saying. With narcolespy everything is so depleted, brain hormones, adrenals etc. it is a constinant thing balancing hormones and trying to keep them up... one of the many facets of treatment that we used was to teach out son how to cope with the dx, and how to cope with being so tired. i search for someone int his area of expertise... she was great , she gave him tools of everyday living to help him express himself , and things he could do to know what he needed at a given time. We now are having issues with proper meds... and diet. this is definitly a team effort... I too had to go to therepy to come to terms witht his dx. I compare my sons outbursts to that of a baby that is over tired and needs a nap, but wont sleep... he is just bigger and so are the tantrums lol