Community Status Updates
Five am and I have yet to go to bed :/ when will the madness end?!
“Sleep, those little slices of death — how I loathe them.” Poe
My doctor was way too optimistic about this.
Linna → TiredAgain
Is It A Symptom Of Narcolepsy?? how do i reply to this? I do this too..and then some
LinnaIs It A Symptom Of Narcolepsy??
14 July 2013 - 02:48 AM
Ok this is weird but I make a snort type noise that can happen at anytime. It's kind of a mix between a snort like when your laughing really hard and a snore like when you snore yourself awake, and it can be very embarrassing. I can be talking to someone and it will happen, nobody has ever said anything, but I catch myself saying oh I just snorted sorry.
Before I was diagnosed I told my Dr I think I have somethin...
Nov 01 2013 07:06 PM
LinnaI do something very similar...I will laugh like a nerd....goofy when my husband goes to kiss me i get goofy and snort anf laugh like a nerd....so embarrassing. I did not start this until around last year or so...I think it is definitely neurological and related to N>
Nov 01 2013 07:08 PM
Snorting when your laughing is normal, but getting goofy etc.. isn't. Have you asked your Dr. Has anyone said anything to you besides your husband? I think hearing something from people that don't know you says a lot.
My Dr said I'm falling asleep for like a millisecond, I just don't know if I believe that.
Nov 01 2013 08:04 PM
Yeah, update, Provigil didn't work. That leaves Adderall IR as the only thing which made even a small impact in the stimulant class. On to other classes of drugs, I guess!
I now count the blessings that having Narcolepsy has brought me and quit asking 'why'.
Trying Provigil for the first time today... not sure if I'm more worried about it not working or getting serious side effects. Fingers crossed that it works, I guess.
Actually managed to stay up until 11 last night and get through a whole movie (fell asleep once but BF woke me up)! Unfortunately I feel like I'm paying for it today.
byebye NUVIGIL!! just got my Quick Start Guide for Xyrem!!!! I AM SO HAPPY. I am finally getting help. Looks like it will be a month before I actually get to take it... but I am so excited! I am ready for improvement. Until then... Concerta... we'll see how that goes.
Ginormous, Fresh Tacos!
Sep 08 2013 11:57 AM
Writing in the forums! :D
But... I have work to do! I don't want to sleep!
Just starting to blog here!
Seems my 'warning point' doesn't want to dissapear... =[
sk8aplexyTaco point/s would be preferred.
Aug 20 2013 09:54 AM