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About BrainScatters

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  • Birthday 10/31/1944

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  1. I finally found something positive about my N in dreaming. I wake up in the morning from really long, involved, vivid dreams. And that got me thinking. Are PWN likely to be more adept at lucid dreaming? Seems like a natural fit. Anybody tried it?
  2. Don't know if you guys have seen this one, has anybody tried it? Basically it's an alarm clock with wheels. It jumps off your nightstand/whatever and rolls away forcing you to get up and find it. It only let's you hit snooze once which I think might be a bad thing. Because if I can't hit snooze, I'm hitting off and rip van winkling it for the next 10 to 20 years.
  3. Just wanted to jump in on the "I hate pharmacists" note and put my order in for a card. I'm so sick of getting crap from pharmacists who think that because they count out pills for people (yes, I know there's more to it) that they can offer medical advice and are part of the medical profession. I was going on a trip to Austin and went to get my Nuvigil refilled a couple of days before I ran out so I wouldn't run out on the trip. It wasn't any kind of too early by the legal terms, but they wouldn't do it until like the day before it ran out. I asked them what the deal was and mentioned I was well past the legal waiting, blah blah and they said it's just arbitrary. They do it on a case by case basis. On an up note I was so furious it woke me right up for like 3 hours. On a down note I had to reschedule my trip because they arbitrarily try to pick out the junky. Now, I don't have a lot of experience with narco meds yet, but I'm just guessing that Nuvigil isn't exactly at the top of the list for people to abuse. Maybe it does something for "normal" people, but if I was looking for something recreational, the amount I spend on this stuff would support a pretty healthy illegal drug habit. Anyway, sorry to rant.
  4. Hi all - Long story short, I recently was diagnosed with Narcolepsy w/o cataplexy (via sleep tests and HLA panels) after a year of them trying to figure out what was wrong with me. I know I got off easy, as a lot of people spend much longer trying to get it figured out. And while the process of figuring it out was horrible in itself (2 Endoscopies and a colonoscopy looking for internal bleeding that wasn't there, 13 blood draws, a psych panel, oncologist, you name it) - Now that I finally HAVE a diagnosis, it's not much better. The doctor put me on Provigil and then Nuvigil and it really doesn't seem to do much except help a bit with will power. I expected more considering how much it costs. They tried ritalin before my diagnosis and it just made me MORE tired. Yeah, not knowing was horrible - People telling me I was lazy. Wife telling me that "Everybody's tired, not just you. But they get up and live their lives" (she's much better about it now that I've been diagnosed). ME thinking I was going crazy. But knowing that I'll have this forever, and possibly not have any relief from it isn't any better. Seeing this site has made me hopeful that there's information out there which might be able to let me live my life again. That I'm not alone in this. I miss running. I miss being active. I miss doing 100 things at once. Now I'm lucky to be doing one. I'm not looking for sympathy, just answers. Just to see if somebody can point me in the right direction as to what I should be doing/shouldn't be doing. Other than the meds, my neurologist hasn't been a ton of help. Thanks in advance for any advice you can give. -Matt