Hello, I'm 33 y/o female in the U.S. I recently visited a neurologist due to excessive sleepiness after having thyroid and hormone levels checked. This Dr. had me pegged after answering several questions and observing my behavior, which I had never really noticed before. He said I most likely have Restless Leg Syndrome and have several symptoms of Narcolepsy (twitching/jerking, sleep paralysis, acting out dreams, having dreams during short naps). So he ordered a sleep study and an MSLT that I will be doing soon. After that visit, I started thinking back through my childhood and feel that I may have narcolepsy. I would often have my legs buckle/feel weird when laughing & standing, vivid dreams with naps, waking up in the middle of a dream acting out what I was doing in the dream like sweeping the bathroom floor, during classes in the military, I would often stand up and walk around in the back of the classroom & fall asleep standing up and walking, no matter how much caffeine I took in, hitting/pinching myself, I could not fight it. People nicknamed me Narcy short for Narcoleptic. I just laughed it off, but now I think they may have been right -_-. I've always been tired, take several naps throughout the week/weekend to have the energy to get through the day. What scares myself and my husband the most is how I will often fall asleep driving and as a passenger will fall asleep 90% of the time. It's just something that's always been normal for me but it comes and goes in frequency and severity so I just thought it was something that was a part of me. The first time I remember having sleep paralysis was when I was 9 years old and it scared the crap out of me. I guess I'm coming here to say hello and even though I haven't been diagnosed yet, start researching information in case I am diagnosed to learn more about how I can live with it as normally as possible. I will be graduating with my Bachelor's of Science degree in Nursing in 6 months, I'm a reservist in the military and I have a husband and two kids. I don't want this to stop me from living my life but I also hate being so exhausted all the time. I guess I don't really understand anything about narcolepsy other than google saying they don't know how a person gets narcolepsy and there's no cure. Hoping, after reading through your posts and information, I'll have a better idea of what it is and what to expect.
Thanks for listening to my long winded rant