SnoozyBunny

Members
  • Content count

    93
  • Joined

  • Last visited

About SnoozyBunny

  • Rank
    Member

Profile Information

  • Gender
    Female
  • Location
    UK
  • Interests
    Gaming, programming, psychology, and...stuff.
  1. That is really naff news, Jackalope - however, what I would say is that even if you do have a psychiatric assessment, they will assess your 'depression' with standardised scales/questionnaires which, to be frank, any sufficiently motivated person can figure out. If you're made to go there to continue treatment, take their testing and let's not forget, you've had antidepressants before which haven't resolved your issue, and I presume you self-sought treatment for that, so it's not as if you're dismissive of the possibility. Depression can have a funny effect on sleep. Yes, it can make you sleep a lot, although I know nothing of sleep latency in depression. On the other hand, some people when depressed get more insomniacal than the other way around - depression can actually keep me awake rather than make me sleep more, as I tend to ruminate a lot. I wonder if it's worth submitting a complaint to the PCT with supporting documentation from your family/university/GP to the effect that you were taken off this medication which has had a life-changing impact for you before you could even discuss with the doctor how well it was working for you, that you've had antidepressants in the past which you have solicited yourself and are not averse to a psychiatrist visit/psychiatric label but that treatments for depression have not been effective for your issue and that based on everyone's input and how they've seen you are now, you believe the original diagnosis is correct and that you believe it's very detrimental to your quality of life to suddenly be withdrawn from Modafinil without consultation. (major run-on sentence, sorry). If you do write a complaint, make it as objective and unemotional as possible, and focus on outcomes and failings of process rather than on how the situation makes you feel (I've written some very impactful letters for family members over the years and have always got good results with that approach - unfortunately institutions and organisations don't really care how you feel - they care about how they've messed up and what they need to do to fix it). Basically, this guy should have a very good reason for his presumption that your malady is psychiatric in nature for him to discontinue your current treatment - I'd write the PCT a letter and copy in the consultant who diagnosed you, the doctor who withdrew treatment, and your GP. You could even contact NHS patient groups and see what they say. The idea wouldn't be to show up the consultant as being wrong as such, merely that he hadn't fully considered all the facts of your case before making his decision, or might not necessarily be aware of them - doctors are human and make mistakes, but they can also be reluctant to admit poor judgement, so you won't get that, but you could potentially demonstrate a rational case for your situation without apportioning any blame. If that's a route you are going to go down and you want an outline, let me know.
  2. Antidepressants that affect serotonin (not sure about the others) suppress REM sleep and should be discontinued about 2 weeks prior to the MSLT (unless your doctor says you can't for medical reasons). Wellbutrin is an 'alerting' antidepressant that should make you less sleepy than normal. Sometimes I wonder if 'the uncertainty principle' affects sleep - like just the effect of observing it changes it. In a strange place, with lots of wires hooked up to you, I don't see how your sleep can be completely normal, particularly if you're anxious or running on adrenaline. Can you ask for another test because you weren't off your medications at the time? Have you been diagnosed with cataplexy? That alone should make them consider another test for you - it's very rare to have cataplexy without narcolepsy. Just my two cents, as I'm not a doc. I wish you the best of luck.
  3. This is an interesting one - I've had what you describe for years oortali, but never attributed it to cataplexy (even when I knew what that was). I speak to customers all day on the phone and have always attributed it to nerves, but it can happen any time really. I just put it down to a temporary short circuit between my brain and my mouth. I try to make light of it, but it can be embarrassing. I suppose it must be difficult to know for sure, as glitches with speech could be due to many things. What's the NDRI you're on now if you don't mind my asking?
  4. Thanks for sharing. I might drink one pint every two months, unless I have a cold, then Cherry Brandy is better than throat lozenges. Perhaps in time, the UK will become more permissive for it. I do think it has benefits.
  5. Cannabis is the only drug I'd ever remotely consider in terms of 'street' drugs (I use street because it's not legal anywhere here) - except I find the smell of it really nauseating, so I can't. It's enough for me to sniff an area where it's recently been smoked for me to feel a bit queasy. I did buy some Cannabinoid Hemp Oil from a health shop last year which was supposedly the 'good' stuff in it minus the THC, but didn't notice anything. However, enough people believe that cannabis helps with their medical conditions that I do think we're too prohibitive with it over here and perhaps should adopt a model more like Amsterdam's. Does your oil contain any THC, Ferret? I'm not very clued up on hemp vs marijuana/cannabis vs oils you can buy around it. @Pereise1, your reply is really interesting - now I'm wondering if I bought oil that wasn't very good, or didn't give it long enough to work. The oil I bought is called Elixinol Hemp Oil and is being sold on a high street near me. I have about half the bottle left and it contains 1.7mg of CBD per serving. Does anyone know if a supplement like that would show up positive on a drug screen (oil without the psychoactive properties)? When I go for a sleep study, if they give me a tox screen, I'd be mortified to fail it over something I bought at a health shop.
  6. I know this is an old topic - some really nice songs here, though! The Twin Peaks Theme is really soporific to me.
  7. @slo.mo.a.go.goSluggish Cognitive Tempo is why I asked my GP for Strattera. I had read some people responded better to that med than traditional stimulants. I was DXed with ADHD-PI in 2010, but didn't have a battery of cognitive tests (just questionnaires). The Neuropsych said I was 'high functioning' and compensating just like yourself. I definitely only have the -I version if I do, however - I am sluggish and hypoactive. I don't think it's that uncommon to have comorbid sleep problems or drowsiness in ADHD, For example: https://www.ncbi.nlm.nih.gov/pubmed/25610980 . I was also DXed with DSPD along with ADHD-PI after wearing an actigraph for a week. I don't think I have DSPD - my other half gets to bed later than I do, and is a better candidate - I want to sleep at 11pm at night, he likes 2-3am in the morning, and we have one room in the house which can cause friction over it. I kept later hours at uni, though. The drugs used to treat ADHD have been useful to me. Concerta gave me enough alertness/'energy' to get through my final year of uni with even better grades than I'd managed before as a result, but the effect wasn't all that strong and I likened it to being on strong coffee. I'm pretty sure I wasn't always 'ADHD', but I'll wear any label that results in feeling better. I have noticed a number of posts here mentioning ADHD, though it could just be my confirmation bias. In relation to ADHD, I am like it in some respects: no good at dull or repetitive tasks, despite my best efforts. It is more alerting to me to play computer games (e.g. the new Prey or shooters like Overwatch), and I also use music to focus myself and give myself a bit of a 'boost' where I can.
  8. I think they base the initial assessment of sleep vs wake by checking whether the user is moving and then, after being still for a while, measures of heart rate, which is probably why my ring thought I was napping while I was watching a film last night. Not sure how useful the nap data will be now - might have to exclude anything that only lasts five minutes because it's a false positive. I found out that Fitbit's sleep stages data can run down to 30 second epochs! https://dev.fitbit.com/docs/sleep/ That would be realllly interesting. I'm going to try that next. Edit: I did try it, and here's the output to compare to the Zeo. That 'hump' in the Zeo is a mixure of light, awake, and REM. I think it's a safe bet at this point to conclude (if the Zeo is accurate) that the FitBit can't tell the difference between them very easily. It did get the small 'deep' portion right (to a few minutes or so) on the right hand side, though.
  9. Aw thanks. My hubby gives me a lot of help though, sometimes - he's a Senior Developer, so he's really useful for things I've not done before code-wise. I've attached a snippet of what I've done so far (very basic at this point). The Oura logged a 'nap' the night before last I don't remember having - I'm thinking it's probably confused me chilling out with sleeping. It'll be useful to show that stuff, as long as it comes with a pinch of salt. The thing is with light sleep, I'm actively thinking structured thoughts when these devices say I'm asleep. I'm planning out the next day, or thinking about the helicopter outside and how that's going to stop me nodding off, all while I'm apparently actually asleep. Totally bizarre. I think if I start thinking I'm asleep in future instead of getting antsy because I don't think I am, hopefully I won't wake up so much while I'm drifting off.
  10. Thanks Ferret. I'm kinda excited about building an app for the Oura - I can give something back and create graphs in five minute increments (I've never found the timescales on the FitBit or those on the Oura either to be very useful). The one thing all of those gadgets have taught me, the Zeo most specifically, is that I can't discriminate at all between light sleep and awake (which I don't think is that unusual). I think this is what makes it so tricky for me to get to sleep at night sometimes - I'm bringing myself out of sleep often because I don't perceive myself as being asleep in response to any movement or noise. That makes it tricky for me to catch any wonkiness at the beginning of the night, and it'll be the same way if I have a proper study, so I need to get better at relaxing into sleep.
  11. Ok so, here's a comparison with all 3. Unfortunately, I can't keep the Zeo on my head much of the time. I only have the first and last portion of my sleep. I found it in the corner this morning. In order, the images are: Oura, Fitbit, Zeo (last portion of the night, after I put it back on my head), and Zeo (first portion of the night, before I probably chucked it somewhere). As you can see, I went to bed late this morning after having a busy day sorting out my wedding, which the Oura didn't approve of (good for Oura) :). All devices captured my sleep time within a couple of minutes of each other. The Zeo says 2:22 instantly, The Oura says 2:21, and the FitBit says 2:23. So that's good. And all of the devices show a solid night's sleep. Now things start getting wonky, and it's all to do with temporal resolution because it's hard to compare the graphs to each other over time. I'm not sure about the 'epochs' of the Fitbit. The Oura ring has a developer portal which allows me to access my data as JSON in epochs of five minutes each. Only the Zeo can capture 30 second epochs, by which you can see a little REM at the beginning of the night which won't show up on the other devices because their resolution isn't fine enough. The real wonkiness is with the percentages - the Fitbit thinks I spent 28% of the night in REM. The Oura thinks it was 45% - a massive difference. I think the truth is somewhere in the middle - 25-37% is what the Zeo says on any given night. The Fitbit thinks I spent 14% in deep sleep vs 10% for the Oura. I have never been able to keep the Zeo on my head for a night's sleep that lasted longer than eight hours, but I suspect the lower number is more accurate, simply because I usually get most of my deep sleep over with in the first half of the night (which I think is normal), but long sleep time means less deep sleep proportionally. It's a bit of a shame, because I thought the comparisons would be more illuminating, but it seems I just can't tolerate things on my head at night. I do still prefer the Zeo because it's so fine-grained. After that, I would recommend the Oura over the Fitbit as it seems to show more agreement with the Zeo. I don't think the Oura has a web dashboard like the FitBit does - if it does, I can't access it because I bought my ring second hand (there is a link for logon, but it doesn't work for me). However, the makers made it relatively easy to access mine or anyone's else's data for their sleep through their API (with their permission, of course). I was a baby software developer in another life, so I'm working on a web portal which will show more data which other people can use. One of the cool things is that the Oura's app does not support naps, but the raw data can show multiple sleep periods during the day - a huge bonus for a wearable. The raw data shows seconds in each stage of sleep in addition to the five minute hypnogram, which would make some analysis difficult (as they're not divisible by five minute chunks), so I've asked the developers whether they are planning to support shorter epochs through their API, as the ring itself is collecting more fine-grained data. Shorter epochs would make the ring much more desirable for analysis of wonky sleep (despite what we know, which is that these devices will never be as accurate as a PSG). Hope any of that will be useful to someone.
  12. I think that we probably pay more attention to our sleep (because we're so knackered) compared to most people, so the market isn't huge for trackers that show data that granular. But I think technology is steaming ahead, and perhaps one day will even be good enough to do commercial sleep tracking at medical accuracy (one can only hope!). The Zeo can track daytime naps with the companion app. I don't use it much because once it's gone, it's gone (and I'm not savvy enough to build my own replacement band). It does accurately record wake for me I think, as I've tried to fool it before. I got my Oura today! Wheee. The sizing is rather 'manly' - I guessed that a 9 would be best, which fits on my middle finger. Easy to set up and the interface looks nice, so I'll have a good kip tomorrow night with all three gadgets and see how they differ. The ring is a little heavy to wear, but otherwise is super. The FitBit Blaze has the best battery life (I say as I'm in live chat with their support trying to troubleshoot what is now crummy battery life) - about 5 days between charges. Hopefully the Oura can go 2-3.
  13. Oh my gosh, you must have been boiling! I'd burn to a crisp. I used to study quite a bit in coffee shops. Mmm, Costa. I agree about offices - most of them are flourescent pits of bleh. I have been fortunate enough to work in a couple of places where I can just blast out music on my headphones while I work. Never heard of the Leaf. Just Googled it - nice idea, very pretty, shame about the accuracy. On the other hand, the Oura isn't vastly accurate either - if I'm reading the study accurately they used to compare it to PSG (and I might not be), the device is likely to misclassify REM as light sleep quite a lot more than the other way around. But hopefully it'll be useful. It has a 2-4 day battery life, which isn't as good as my FitBit Blaze, although I've had a few battery and sync issues with that recently (and I've only had the Blaze for about 5 months or so). The Zeo is the only device, through its companion app, that can give 30 second epochs of sleep scoring, which is more useful to me for tracking sleep, but of course keeping it on your head, and the fact that the band wears out after three months and you can't buy replacements, is a real downer. I wish the company hadn't gone bust so I wasn't leery of using it often. That needs to be charged pretty much every day if it's being used. On the other hand, the Oura's user interface looks really neat. I should get the ring by Saturday (second class post is meh), so it'll be interesting to compare all three. Maybe I should check out whether the Oura and FitBit have free 'developer edition' access - since they lump sleep into chunks longer than the Zeo, maybe the raw data is available somehow. Have a great session in the coffee shop.
  14. Your response sounds really promising. Are you sleeping less overall, or do you just feel that you've slept better?
  15. Regarding nicotine as a REM suppressant, it does seem to function that way - the only SOREMs I've had at night on the Zeo have been when I give it up. Although I have no real opinion either way, if nicotine does function as a REM suppressant, is the rebound from discontinuation a temporary effect? I haven't found much in the literature about that.