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Everything posted by Jasonm

  1. Here's the actual information about post Lyme's disease syndrome from the CDC, which recognizes it as a real condition and specifically states it's common to take months to recover. The whole concept that the CDC doesn't care, etc is nonsense. https://www.cdc.gov/lyme/postlds/index.html
  2. Just fyi, I have free web hosting so if someone knows how to set up a forum, I'd be happy to donate my web hosting. Given the forums on this site are active and threads routinely produce thousands of hits on NN, if they are dumb enough to to abandon us, I say to hell with them. Surely a WordPress forum can't be hard to set up.
  3. Heed this advice!
  4. @closetwrtr how much does zenzedi run per month? I get generic Dexedrine at the maximum dose for $160 cash per month.
  5. @HBr nah I don't think so. I don't think it's possible to do that on this forum anyway. I wish the polls were better designed so better information could be gathered. Ie it would be nice if I could tell if cold feet was more associated with n2. I think it is. What got me wondering is that I have n2 and frequently have cold feet at night and thermoregulation problems. Since a few studies have shown body temperature regulation in N influences the quality of sleep, I was curious how common this phenomena is because there are potentially some treatments. @Ferret I'm medicated but I always had a heating pad at my feet prior to diagnosis so I was meaning more, if you can recall, was this a frequent problem pretreatment? If that makes sense. One of the medication's mechanism of action showing promise for sleep in N also was being investigated for hot flashes oddly enough. I'm not sure how hot flashes feel though! For the record, normal healthy people tend to have warm or hot feet prior to bed. Cold feet delay sleep onset. It seems the majority of n2 suffer from cold feet at night for some reason based on our less than ideal response rate.
  6. Just trying to get some insight on how frequently these symptoms occur. Please report your experience only while unmedicated.
  7. @Nikorah oh I'm just saying I wouldn't refer to it as chronic because the medical community associates the term with hypochondriacs. You're right that chronic generally means an extended period of time usually. The CDC recognizes about 6% of people continue to have problems after treatment. Many of the chronic Lyme's folks believe that continued antibiotics help but research shows it's no more effective than placebo. The CDC refers to the post infection state as something else, perhaps caused by damage by the infection that persists after the pathogen has been eliminated. I mean hell anything that damages the CNS may be irreparable or take a long time to recover from. Look at narcolepsy for instance. I'm not suggesting there isn't a real post treatment Lyme's disease condition, just that it's not referred to as chronic Lyme's by the medical community.
  8. @Nightmore a B2 deficiency or b12? What dose of Adderall? I'm assuming you're taking instant release? Dexedrine (dextroamphetamine) is more stimulating than Adderall and has fewer cardiovascular side effects. Caffeine really should be stopped after 12-2pm unless you're a rapid metabolizer. It disrupts sleep architecture even if you don't notice it. I've had a few magic bullet experiences but they were short lived. I got to the point where I'd tried everything and nothing worked anymore. After some lifestyle alterations things got better though.
  9. Oh come on 3 people voted? Just doooo it.
  10. Have you tried taking a stimulant break? Like even a weekend can do wonders sometimes.
  11. Pic of the sores? What other medication are you taking? Any heartburn? My guess, outside of an allergy, would be dry mouth from amphetamines is causing the problem.
  12. Oh I just find the sleep trackers helpful for CBTi. My biggest issue with CBTi and those I've helped with it has just been getting people to do the damn thing right lol. Like I'll get a message, I tossed and turned in bed for 4 hours before falling asleep... And I'm like uh that's a huge no for CBTi and worsening the sleep problem. When you see it in an activity monitor it a. Allows you to self address sleep schedule CBTi compliance b. Allows for you to share the results with others. c. See how sedentary or active you actually are. According to mine, my sleepy ass is 88% more active than most people in my area. Was your T that low? And how's the break treating you?
  13. @Pereise1 you took an maoi? My only real interest in serotonin is that 5ht2a antagonism has shown promising results on increasing sws and decreasing awakenings.
  14. @Natdoc yeah I think everyone definitely know my feelings on exercise and sunshine lol. I think a lot of the quackery claims stem from the lack of unbiased well designed research on many natural treatments. I've never had any luck with herbs except kava. I wish the natural community would band together and take a harder stance on therapies that cure everything and have no scientific basis *cough* cranial sacral adjustments and instead emphasize the legitimate stuff. @HBr ever consider getting an activity/sleep monitor?
  15. @Teach if you're primarily suffering from anxiety, effexor, while effective, isn't always the best to combine with adderall since both increase norepinephrine, which in turn can cause hypertension or hypotension, tachycardia, etc. It's not necessarily a bad combination but, it does need to be monitored. If the presyncope only began after adderall, that's probably indicitive of a problematic interaction. My personal experience on both medications was that the effexor combined with adderall made me unbearably fatigued. I had no drive. I can't really tolerate SSRIs or SNRIs though. Stopping effexor was pretty unpleasant but well worth it long term. Effexor has been linked to postural hypotension and some studies found quite frequently. I think regular exercise, particularly if vigorous, is absolutely the best treatment for anxiety. Research tends to show this as well. @Natdoc I really don't understand those dire sounding serotonin syndrome interactions with amphetamines on some drug interaction checkers. While possible I guess, Adderall has very little effect on serotonin. I'd be more concerned about norepinephrine toxicity with that combination but they don't even mention that lol. Now tramadol on the other hand, and you're rolling the dice.
  16. You could inquire as to when such a position would be available and state again you are open to other accommodations. You can fire someone without firing them. It's referred to as constructive termination. It doesn't sound like any attempt was made to reasonably accommodate you. The more unreasonable they seem the better from a legal standpoint. I'm an attorney but don't do employment law so I'm not sure on the specifics.
  17. Are you paid hourly? Or are you essentially being given paid leave? If they effectively fired you, contact an employment attorney. If they think you have a case, they'll often do it for free since I believe actions brought under the ADA provide for mandatory attorney fees if successful. (i) A public entity shall make reasonable modifications in policies, practices, or procedures when the modifications are necessary to avoid discrimination on the basis of disability, unless the public entity can demonstrate that making the modifications would fundamentally alter the nature of the service, program, or activity. (ii) A public entity is not required to provide a reasonable modification to an individual who meets the definition of “disability” solely under the “regarded as” prong of the definition of disability at § 35.108(a)(1)(iii).
  18. @Pereise1 oh believe me I was skeptical of the 8-OH-DPAT study. Serotonin syndrome will cause increased activity too. It's too simple of a model and sounds too good to be true. Not surprising that we've come to the opposite conclusion on presynaptic vs post. Unfortunately the literature is all over the place. It's definitely not settled how SSRIs, depression, etc relate. I kind of feel like they just chose a random neurotransmitter, in this case serotonin, and decided it was the most important factor in depression. Definitely an interesting topic.
  19. Sounds more like presyncope than cataplexy. Could be caused by an arrhythmia rather than pots. I think pots would be more symptomatic if you noticed it from changes in posture. Is this a daily occurrence? Is your heart racing, pounding, etc when it occurs? Sometimes you can't feel an arrhythmia. I'd see a cardiologist. What other medication are you taking? Effexor can contribute to arrhythmias as can any stimulant. Sometimes they are dangerous but often times they are benign.
  20. @DeathRabbit such is the case with all chronic hypnotics it seems. Mirtazapine weirdly is more sedating at low doses and more stimulatory at higher doses. Just 1mg seems to have pretty profound hypnotic properties. I wouldn't suggest it over 3.75mg for insomnia. It has no antidepressant qualities at low doses. One of its enantioners, esmirtazapine, is being studied for sleep onset/maintenance and shown results far superior to most hypnotics. It has a totally different mechanism of action at low vs antidepressant doses. It has a particularly good theoretical pharmacological profile for N if dosed appropriately.
  21. Has anyone tried low dose Remeron for sleep? I'm talking 7.5mg or preferably around 3mg. If so, what dose and what was your experience?
  22. Do you have N+C? What's your blood pressure usually?
  23. Isn't dextroamphetamine (dexamfetamine UK spelling) indicated for N there? Or methylphenidate? Both of those are generic, relatively cheap and potential future options. The doctor sounds like he's got a god complex. I mean, why does he even care? I think most psychiatrists would be thrilled if modafinil cured a patient's supposed depression, even if they thought it was placebo. It almost seems like bullying. I can't find anything suggesting depression is correlated with the mslt. Total sleep time, sure but I'm calling bs on depression as a known cause of rapid sleep onset. If that were true a huge percentage of people would fit the criteria for IH. The mslt is valuable in that it likely excludes simple depression as the sole source of sleepiness or fatigue. What a moron.
  24. @Teach an excellent summary of narcolepsy, available treatments and how each works can be found here.