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About mustangashley

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  • Birthday 09/20/1985

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    North Carolina
  1. Im in my own little world, but it's ok, they know me here.

  2. I have one of those bosses as well. I tried to educate my boss about narcolepsy. It depends on how open minded your boss will be to understanding an illness that can be quite invisible to him. I can say from personal experience educating my employer didn't help my situation. I educated my employer and provided them with other resources to educate themselves such as the Narcolepsy Network web address. One of the most difficult task I have faced with N is getting others to really understand what I go through everyday. There are still people in my family who fail to understand and empathize. I have finally stopped trying to make them understand. My energy is very precious to me and I must choose wisely how I use it. I finally stopped worrying about the people in my life who do not want to understand my condition. Most importantly, do not let someone who is not educated about your condition tell you what you CANNOT do. There are many scientists who suffer from narcolepsy. Personally I hope you take his comment and let it fuel your fire to succeed.
  3. I am a sonographer/ultrasound tech. I have degrees in both x-ray and ultrasound. Working in radiology can be challenging because it requires me to work in a dark or dim room. I do the ultrasound in the dark and my desk is in the ultrasound work room where the images are interpreted. That room requires dim lighting as well. I work the typical 9-5, 40 hour week job. I was diagnosis with narcolepsy 4 months ago. Working is about all I can do. I have a 45 minute one way commute to work. I get up at 5am and get home at 6pm. Working a 9 hr day and driving nearly 2 hours takes all of my energy. My employer did not agree to accommodate the 1 reasonable request I submitted. I dont get any 15 minute naping breaks. I work for one of the biggest and best university/medical centers in the nation yet they still do not understand what narcolepsy really is...even after I educated them on the condition. I've been feeling really down and depressed about my situation lately.