chrissy

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    7
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About chrissy

  • Rank
    Member
  • Birthday 10/11/1967

Contact Methods

  • MSN
    chrissy10317@hotmail.com
  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Location
    Colorado
  • Interests
    Family,friends,my dogs traveling and going to our cabin in Grand Lake Colorado.
  1. Chrissy, I too would like to extend a birthday greeting. I do hope that your day is filled with joy. I also hope that your love ones cater to your every whim.

  2. Hi, My name is Chrissy and I was diagnosed this past February with N. I am 40 years old and started having symptoms EDS, and some minor cataplexy about 2 years ago after having a concussion from an automobile accident. It is very nice to meet everyone.
  3. Protectionlady, hello I was unable to find one with Narcolepsy so I contacted the medical Alert ID company and had a custom one made for me with my specific information on it. Hope this helps. Chrissy (sleepy in Colorado)
  4. [Hello, I just wanted to let you know that I wear a medical ID bracelet and on it I have written Narcolepsy,CFS my husbands name his phone number I hope this helps.i]
  5. Hello all my sleepy friends, thank you so much for all of your input. Just a quick FYI I tried the Ritalin and thought I was having a heart attack everytime I would take it I would get such severe chest pain that once I had to pull over on the highway and call 911 to come get me. Of course after spending the day in the ER they could not find anything wrong. I am now on dextroamphetamine is anyone on that? It seems to help with my sleepyness but my multi tasking seems to be getting worse I didn't know it could get worse. My memory is probably the most frustrating trying to have a conversation with someone is so crazy 9 out of 10 times I can't remember what I was going to say or what the other person just said. People will look at me like HELLO are you listening or like they what to finish for me what I was trying to say because at least they can remember what the topic was we were talking about. Can anyone tell me if this might be cataplexy? I have not fallen but my legs are so weak, if I try and carry any weight and then try to say go up a step or curb it takes every ounce of energy I have to get up that step or curb. It feels like I can't step down because my legs will give out. Sorry to ramble on but like someone else said you guys are the only ones that seem to be able to understand and relate. Thank You! :wink:
  6. I can completely understand what you are going through I have recenty been denied Disability and now I have submitted my appeal but I am thinking that I need to get an attorney to help me out with this. I was going to contact the network for some help in locating an attorney in my area that is familiar with this type of case. I can relate to your frustration about feeling like a lump. My family has been wonderful but I can't help but feel like I am such a burden to them. Best of luck to you!
  7. I am still trying to get used to the meds I am on Ritalin and I seem to be having some chest pains with this I am waiting for the Dr. to see what the next step will be regarding the meds. Sorry to hear that you have been recently diagnosed. I think the hardest thing for myself and my family to grasp onto is the fact that some days are pretty good and then others really stink it's so up and down.
  8. Hi my name is Chrissy in Colorado and I have recently been diagnosed with Narcolepsy and Chronic Fatigue Syndrome. I have been having symptoms for about a year now and finally they have diagnosed it. It is a very confusing thing to deal with sometimes I feel pretty good and then bam it hits me I can not stay awake. My family has been incredible trying to understand what is going on with me and helping me learn to deal with it. I found this site when I was looking up info on Narcolepsy and I am hoping to find a local support group. Thank you all for your stories it is helping me to understand more about it and that I am not alone.